Skip to main content

Assessment of Pain: Tools, Challenges, and Special Populations

  • Chapter
  • First Online:
Handbook of Pain and Palliative Care

Abstract

At its core, an individual’s pain experience is ultimately unknowable to the outside world. Nevertheless, we must persist to excavate and understand one’s pain, to address it, and hopefully to alleviate it. Even today, our best tools for pain assessment remain language and the physical exam; this is how we listen to the patient’s story and help to clarify the pain narrative. Through a focus on cancer pain, this chapter provides an overview of pain assessment, including generally accepted definitions and classifications. We consider approaches to individualized patient assessment including psychosocial-spiritual considerations. We include special populations, including pediatrics, noncommunicative patients, and patients with substance use disorder. We also introduce key concepts of opioid risk assessment.

To have great pain is to have certainty; to hear that another person has pain is to have doubt.

Elaine Scarry

When suffering knocks at your door and you say there is no seat for him, he tells you not to worry, because he has brought his own stool.

Chinua Achebe

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 229.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 299.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Ahola Kohut, S., & Pillai Riddell, R. (2009). Does the neonatal facial coding system differentiate between infants experiencing pain-related and non-pain-related distress? The Journal of Pain, 10(2), 214–220. https://doi.org/10.1016/j.jpain.2008.08.010.

    Article  PubMed  Google Scholar 

  • Akbik, H., Butler, S. F., Budman, S. H., et al. (2006). Validation and clinical application of the Screener and Opioid Assessment for Patients with Pain (SOAPP). Journal of Pain and Symptom Management, 32, 287–293.

    Article  PubMed  Google Scholar 

  • American Academy of Pediatrics Committee on Psychosocial Aspects of, C., Family, H., Task Force on Pain in Infants, C., & Adolescents. (2001). The assessment and management of acute pain in infants, children, and adolescents. Pediatrics, 108(3), 793–797.

    Article  Google Scholar 

  • American Cancer Society. (2015). Cancer facts & figures 2015. Atlanta: American Cancer Society.

    Google Scholar 

  • Anand, K. J. (2000). Pain, plasticity, and premature birth: A prescription for permanent suffering? Nature Medicine, 6(9), 971–973. https://doi.org/10.1038/79658.

    Article  PubMed  Google Scholar 

  • Bair, M. J., Robinson, R. L., Katon, W., & Kroenke, K. (2003). Depression and pain comorbidity: A literature review. Archives of Internal Medicine, 163(20), 2433–2445.

    Article  PubMed  Google Scholar 

  • Ballantyne, M., Stevens, B., McAllister, M., Dionne, K., & Jack, A. (1999). Validation of the premature infant pain profile in the clinical setting. The Clinical Journal of Pain, 15(4), 297–303.

    Article  PubMed  Google Scholar 

  • Baumbauer, K. M., Young, E. E., Starkweather, A. R., Guite, J. W., Russell, B. S., & Manworren, R. C. (2016). Managing chronic pain in special populations with emphasis on pediatric, geriatrics, and drug abuser populations. Medical Clinics of North America, 100(1), 183–197.

    Article  PubMed  Google Scholar 

  • Beyer, J. E., & Knott, C. B. (1998). Construct validity estimation for the African-American and Hispanic versions of the Oucher Scale. Journal of Pediatric Nursing, 13(1), 20–31. https://doi.org/10.1016/S0882-5963(98)80065-1.

    Article  PubMed  Google Scholar 

  • Beyer, J. E., DeGood, D. E., Ashley, L. C., & Russell, G. A. (1983). Patterns of postoperative analgesic use with adults and children following cardiac surgery. Pain, 17(1), 71–81.

    Article  PubMed  Google Scholar 

  • Boelen-van der Loo, W. J., Scheffer, E., de Haan, R. J., & de Groot, C. J. (1999). Clinimetric evaluation of the pain observation scale for young children in children aged between 1 and 4 years after ear, nose, and throat surgery. Journal of Developmental and Behavioral Pediatrics, 20(4), 222–227.

    Article  PubMed  Google Scholar 

  • Breau, L. M., McGrath, P. J., Camfield, C., Rosmus, C., & Finley, G. A. (2000). Preliminary validation of an observational pain checklist for persons with cognitive impairments and inability to communicate verbally. Developmental Medicine and Child Neurology, 42(9), 609–616.

    Article  PubMed  Google Scholar 

  • Breau, L. M., Finley, G. A., McGrath, P. J., & Camfield, C. S. (2002). Validation of the non-communicating children’s pain checklist-postoperative version. Anesthesiology, 96(3), 528–535.

    Article  PubMed  Google Scholar 

  • Breau, L. M., Camfield, C. S., McGrath, P. J., & Finley, G. A. (2003a). The incidence of pain in children with severe cognitive impairments. Archives of Pediatrics & Adolescent Medicine, 157(12), 1219–1226. https://doi.org/10.1001/archpedi.157.12.1219.

    Article  Google Scholar 

  • Breau, L. M., MacLaren, J., McGrath, P. J., Camfield, C. S., & Finley, G. A. (2003b). Caregivers’ beliefs regarding pain in children with cognitive impairment: Relation between pain sensation and reaction increases with severity of impairment. The Clinical Journal of Pain, 19(6), 335–344.

    Article  PubMed  Google Scholar 

  • Breau, L. M., McGrath, P. J., Stevens, B., Beyene, J., Camfield, C. S., Finley, G. A., … Ohlsson, A. (2004). Healthcare professionals’ perceptions of pain in infants at risk for neurological impairment. BMC Pediatrics, 4(1), 23. doi:https://doi.org/10.1186/1471-2431-4-23.

  • Breitbart, W., Rosenfeld, B., Roth, A., Smith, M. J., Cohen, K., & Passik, S. (1997). The memorial delirium assessment scale. Journal of Pain and Symptom Management, 13(3), 128–123.

    Article  PubMed  Google Scholar 

  • Brown, R. L., & Rounds, L. A. (1995). Conjoint screening questionnaires for alcohol and other drug abuse: criterion validation in a primary care practice. Wisconsin Medical Journal, 94(3), 135–140.

    PubMed  Google Scholar 

  • Brown, J. C., Klein, E. J., Lewis, C. W., Johnston, B. D., & Cummings, P. (2003). Emergency department analgesia for fracture pain. Annals of Emergency Medicine, 42(2), 197–205. https://doi.org/10.1067/mem.2003.275.

    Article  PubMed  Google Scholar 

  • Bruera, E., MacMillan, K., Hanson, J., et al. (1989). The Edmonton staging system for cancer pain: Preliminary report. Pain, 37, 203–209.

    Article  PubMed  Google Scholar 

  • Bruera, E., Moyano, J., Seifert, L., et al. (1995). The frequency of alcoholism among patients with pain due to terminal cancer. Journal of Pain and Symptom Management, 10, 599–603.

    Article  PubMed  Google Scholar 

  • Bultz, B. D., & Carlson, L. E. (2005). Emotional distress: The sixth vital sign in cancer care. Journal of Clinical Oncology, 23(26), 6440–6441.

    Article  PubMed  Google Scholar 

  • Butler, S. F., Budman, S. H., FaFernandez, K. C., et al. (2007). Development and validation of the current opioid misuse measure. Pain, 130, 144–156.

    Article  PubMed  PubMed Central  Google Scholar 

  • Campbell, C. M., & Edwards, R. R. (2012). Ethnic differences in pain and pain management. Pain Management, 2(3), 219–230.

    Article  PubMed  Google Scholar 

  • Caraceni, A., & Weinstein, S. M. (2001). Classification of cancer pain syndromes. Oncology (Williston Park), 15(12), 1627–40, 1642; discussion 1642–3, 1646–7.

    Google Scholar 

  • Carteret, M. (2011). Cultural aspects of pain management. Retrieved from http://www.dimensionsofculture.com/2010/11/cultural-aspects-of-pain-management/

  • Cassidy, K. L., Reid, G. J., McGrath, P. J., Smith, D. J., Brown, T. L., & Finley, G. A. (2001). A randomized double-blind, placebo-controlled trial of the EMLA patch for the reduction of pain associated with intramuscular injection in four to six-year-old children. Acta Paediatrica, 90(11), 1329–1336.

    Article  PubMed  Google Scholar 

  • Chambers, C. T., & Craig, K. D. (1998). An intrusive impact of anchors in children’s faces pain scales. Pain, 78(1), 27–37.

    Article  PubMed  Google Scholar 

  • Chambers, C. T., Giesbrecht, K., Craig, K. D., Bennett, S. M., & Huntsman, E. (1999). A comparison of faces scales for the measurement of pediatric pain: children’s and parents’ ratings. Pain, 83(1), 25–35.

    Article  PubMed  Google Scholar 

  • Chang, V. T., Hwang, S. S., & Feuerman, M. (2000). Validation of the Edmonton symptom assessment scale. Cancer, 88, 2164–2171.

    Article  PubMed  Google Scholar 

  • Chen-Lim, M. L., Zarnowsky, C., Green, R., Shaffer, S., Holtzer, B., & Ely, E. (2012). Optimizing the assessment of pain in children who are cognitively impaired through the quality improvement process. Journal of Pediatric Nursing, 27(6), 750–759.

    Article  PubMed  Google Scholar 

  • Cimpello, L. B., Khine, H., & Avner, J. R. (2004). Practice patterns of pediatric versus general emergency physicians for pain management of fractures in pediatric patients. Pediatric Emergency Care, 20(4), 228–232.

    Article  PubMed  Google Scholar 

  • Cleeland, C. S., & Ryan, K. M. (1994). Pain assessment: Global use of the brief pain inventory. Annals of the Academy of Medicine, Singapore, 23, 129–138.

    PubMed  Google Scholar 

  • Cleeland, C. S., Gonin, R., Baez, L., Loehrer, P., & Pandya, K. J. (1997). Pain and treatment of pain in minority patients with cancer. The eastern cooperative oncology group minority outpatient pain study. Annals of Internal Medicine, 127, 813–816.

    Article  PubMed  Google Scholar 

  • Cleeland, C. S., Mendoza, T. R., Wang, X. S., Chou, C., Harle, M. T., Morrissey, M., & Engstrom, M. C. (2000). Assessing symptom distress in cancer patients. Cancer, 89, 1634–1646. https://doi.org/10.1002/1097-3

  • Coambs, R. B., Jarry, J. L., Santhiapillai, A. S., et al. (1996). The SISAP: a new screening instrument for identifying potential opioid abusers in the management of chronic nonmalignant pain within general medical practice. Pain Research & Management, 1(2), 155–162.

    Article  Google Scholar 

  • Cohen, S. R., & Mount, B. M. (2000). Pain with life-threatening illness: Its perception and control are inextricably linked with quality of life. Pain Research & Management, 5, 271–275.

    Article  Google Scholar 

  • Dalal, S., & Bruera, E. (2012). Assessing cancer pain. Current Pain and Headache Reports, 16(4), 314–324.

    Article  PubMed  Google Scholar 

  • Davis, M. P., & Walsh, D. (2004). Epidemiology of cancer pain and factors influencing poor pain control. The American Journal of Hospice & Palliative Care, 21, 137–142.

    Article  Google Scholar 

  • Dedeli, O., & Kaptan, G. (2013). Spirituality and religion in pain and pain management. Health Psychology Research, 1(3). https://doi.org/10.4081/hpr.2013.e29.

    Article  Google Scholar 

  • Del Fabbro, E. (2014). Assessment and management of chemical coping in patients with cancer. Journal of Clinical Oncology, 32(16), 1734–1738.

    Article  PubMed  Google Scholar 

  • Dueñas, M., Ojeda, B., Salazar, A., Mico, J. A., & Failde, I. (2016). A review of chronic pain impact on patients, their social environment and the health care system. Journal of Pain Research, 9, 457. https://doi.org/10.2147/JPR.S105892.

    Article  PubMed  PubMed Central  Google Scholar 

  • Everdingen, M. H. J. V. D. B., De Rijke, J. M., Kessels, A. G., Schouten, H. C., Van Kleef, M., & Patijn, J. (2007). Prevalence of pain in patients with cancer: A systematic review of the past 40 years. Annals of Oncology, 18, 1437–1449.

    Article  Google Scholar 

  • Ewing, J. A. (1984). Detecting alcoholism: The CAGE questionnaire. Journal of the American Medical Association, 252, 1905–1907.

    Article  PubMed  Google Scholar 

  • Fanurik, D., Koh, J. L., Schmitz, M. L., Harrison, R. D., & Conrad, T. M. (1999). Children with cognitive impairment: Parent report of pain and coping. Journal of Developmental and Behavioral Pediatrics, 20(4), 228–234.

    Article  PubMed  Google Scholar 

  • Finley, G. A., Franck, L., Grunau, R. E., & von Baeyer, C. L. (2005). Why children’s pain matters. Pain: Clinical Updates, 13(4), 1–6.

    Google Scholar 

  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”.A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198.

    Article  PubMed  Google Scholar 

  • Frunau, R. (2007). Long-term consequences of pain in human neonates. In J. K. S. Anand, B. J. Stevens, & P. J. McGrath (Eds.), Pain in neonates (3rd ed., pp. 55–76). Amsterdam: Elsevier.

    Google Scholar 

  • Gorczyca, R., Filip, R., & Walczak, E. (2013). Psychological aspects of pain., 20(special issue 1), 1:23–1:27 Retrieved from http://www.aaem.pl/Psychological-Aspects-of-Pain,72041,0,2.html.

  • Gordon, D. B., Dahl, J. L., Miaskowski, C., et al. (2005). American pain society recommendations for improving the quality of acute and cancer pain management: American pain society quality of care task force. Archives of Internal Medicine, 165(14), 1574–1580.

    Article  PubMed  Google Scholar 

  • Gourlay, D. L., Heit, H. A., & Almahrezi, A. (2005). Universal precautions in pain medicine: A rational approach to the treatment of chronic pain. Pain Medicine, 6(2), 107–112.

    Article  PubMed  Google Scholar 

  • Gragg, R. A., Rapoff, M. A., Danovsky, M. B., Lindsley, C. B., Varni, J. W., Waldron, S. A., & Bernstein, B. H. (1996). Assessing chronic musculoskeletal pain associated with rheumatic disease: Further validation of the pediatric pain questionnaire. Journal of Pediatric Psychology, 21(2), 237–250.

    Article  PubMed  Google Scholar 

  • Grunau, R. E., Oberlander, T., Holsti, L., & Whitfield, M. F. (1998). Bedside application of the Neonatal Facial Coding System in pain assessment of premature neonates. Pain, 76(3), 277–286.

    Article  PubMed  Google Scholar 

  • Hagen, N., Stiles, C., Nekolaichuk, C., et al. (2009). The Alberta breakthrough pain assessment tool for cancer patients: A validation study using a Delphi process and patient think-aloud interviews. Journal of Pain and Symptom Management, 35, 136–152.

    Article  Google Scholar 

  • Hanks, G., Cherny, N. I., Christakis, N. A., et al. (2010). Oxford textbook of palliative medicine (4 th ed.). Oxford: Oxford University Press. Section 8; pp 449–500; 691–692.

    Google Scholar 

  • Hartrick, C. T., et al. (2002). Pain assessment following general anesthesia using the toddler preschooler postoperative pain scale. Journal of Clinical Anesthesia, 14(6), 411–415.

    Article  PubMed  Google Scholar 

  • Hasin, D. S., O’Brien, C. P., Auriacombe, M., Borges, G., Bucholz, K., Budney, A., Compton, W. M., Crowley, T., Ling, W., Petry, N. M., Schuckit, M., & Grant, B. F. (2013). DSM-5 criteria for substance use disorders: Recommendations and rationale. The American Journal of Psychiatry, 170, 834–851.

    Article  PubMed  PubMed Central  Google Scholar 

  • Hausheer, F. H., Schilsky, R. L., Bain, S., et al. (2006). Diagnosis, management, and evaluation of chemotherapy-induced peripheral neuropathy. Seminars in Oncology, 33, 15–49.

    Article  PubMed  Google Scholar 

  • Herr, K., Coyne, P. J., Key, T., Manworren, R., McCaffery, M., Merkel, S., … American Society for Pain Management, N. (2006). Pain assessment in the nonverbal patient: Position statement with clinical practice recommendations. Pain Management Nursing, 7(2), 44–52. doi:https://doi.org/10.1016/j.pmn.2006.02.003.

    Article  PubMed  Google Scholar 

  • Herr, K., Coyne, P. J., McCaffery, M., Manworren, R., & Merkel, S. (2011). Pain assessment in the patient unable to self-report: Position statement with clinical practice recommendations. Pain Management Nursing, 12(4), 230–250. https://doi.org/10.1016/j.pmn.2011.10.002.

    Article  PubMed  Google Scholar 

  • Hicks, C. L., von Baeyer, C. L., Spafford, P. A., van Korlaar, I., & Goodenough, B. (2001). The faces pain scale-revised: Toward a common metric in pediatric pain measurement. Pain, 93(2), 173–183.

    Article  PubMed  Google Scholar 

  • Hjermstad, M. J., Fayers, P. M., Haugen, D. F., et al. (2011). Studies comparing numerical rating scales, verbal rating scales, and visual analogue scales for assessment of pain intensity in adults: A systematic literature review. Journal of Pain and Symptom Management, 41, 1073–1093.

    Article  PubMed  Google Scholar 

  • Holsti, L., & Grunau, R. E. (2007). Initial validation of the Behavioral Indicators of Infant Pain (BIIP). Pain, 132(3), 264–272. https://doi.org/10.1016/j.pain.2007.01.033.

    Article  PubMed  PubMed Central  Google Scholar 

  • Im, E. O., Lee, S. H., Liu, Y., Lim, H. J., Guevara, E., & Chee, W. (2009). A national online forum on ethnic differences in cancer pain experience. Nursing Research, 58(2), 86–94.

    Article  PubMed  PubMed Central  Google Scholar 

  • Katz, J., & Melzack, R. (2011). Self-report measures of pain. In D. C. Turk & R. Melzack (Eds.), Handbook of pain assessment (3rd ed.). New York: Guilford Press.

    Google Scholar 

  • Kim, M. K., Galustyan, S., Sato, T. T., Bergholte, J., & Hennes, H. M. (2003). Analgesia for children with acute abdominal pain: A survey of pediatric emergency physicians and pediatric surgeons. Pediatrics, 112(5), 1122–1126.

    Article  PubMed  Google Scholar 

  • Krechel, S. W., & Bildner, J. (1995). CRIES: A new neonatal postoperative pain measurement score. Initial testing of validity and reliability. Paediatric Anaesthesia, 5(1), 53–61.

    Article  PubMed  Google Scholar 

  • Krentzman, A. (2016). What is spirituality? Retrieved from https://www.takingcharge.csh.umn.edu/what-spirituality

  • Kroenke, K., Theobald, D., Wu, J., et al. (2010). The association of depression and pain with health-related quality of life, disability, and health care use in cancer patients. Journal of Pain and Symptom Management, 40, 327–341.

    Article  PubMed  PubMed Central  Google Scholar 

  • Kwok, W., & Bhuvanakrishna, T. (2014). The relationship between ethnicity and the pain experience of cancer patients: A systematic review. Indian Journal of Palliative Medicine, 20(3), 194–200.

    Article  Google Scholar 

  • Kwon, J. H., Tanco, K., Park, J. C., et al. (2015). Frequency, predictors, and medical record documentation of chemical coping among advanced cancer patients. Journal of Clinical Oncology, 20(6), 692–697.

    Google Scholar 

  • Laird, B. J., Boyd, A. C., Colvin, L. A., & Fallon, M. T. (2009). Are cancer pain and depression interdependent? A systematic review. Psycho-Oncology, 18, 459–464.

    Article  PubMed  Google Scholar 

  • Lawrence, J., Alcock, D., McGrath, P., Kay, J., MacMurray, S. B., & Dulberg, C. (1993). The development of a tool to assess neonatal pain. Neonatal Network, 12(6), 59–66.

    PubMed  Google Scholar 

  • Linhares, M. B. M., Doca, F. N. P., Martinez, F. E., Carlotti, A. P. P., Cassiano, R. G. M., Pfeifer, L. I., Funayama, C. A., Rossi, L. R. G., & Finley, G. A. (2012). Pediatric pain: Prevalence, assessment, and management in a teaching hospital. Brazilian Journal of Medical and Bioloigcal Research, 45(12), 1287–1294.

    Article  Google Scholar 

  • Loggia, M. L., Berna, C., Kim, J., Cahalan, C. M., Martel, M. O., Gollub, R. L., Wasan, A. D., Napadow, V., & Edwards, R. R. (2015). The lateral prefrontal cortex mediates the hyperalgesic effects of negative cognitions in chronic pain patients. Journal of Pain, 16(8), 692–699.

    Article  PubMed  Google Scholar 

  • Ma, J., Horton, J., Hwang, M., et al. (2014). A single-center, retrospective analysis evaluating the utilization of the Opioid Risk Tool in opioid-treated cancer patients. Journal of Pain & Palliative Care Pharmacotherapy, 28(1), 4–9.

    Article  Google Scholar 

  • Malviya, S., Voepel-Lewis, T., Tait, A. R., Merkel, S., Lauer, A., Munro, H., & Farley, F. (2001). Pain management in children with and without cognitive impairment following spine fusion surgery. Paediatric Anaesthesia, 11(4), 453–458.

    Article  PubMed  Google Scholar 

  • Malviya, S., Voepel‐Lewis, T., Burke, C., Merkel, S. & Tait, A. R. (2006). The revised FLACC observational pain tool: Improved reliability and validity for pain assessment in children with cognitive impairment. Pediatric Anesthesia, 16: 258–265. https://doi.org/10.1111/j.1460-9592.2005.01773.x

    Article  PubMed  Google Scholar 

  • Manworren, R. C. B., & Hynan, L. S. (2003). Clinical validation of FLACC: Preverbal patient pain scale. Pediatric Nursing, 29(2), 140–146.

    PubMed  Google Scholar 

  • Mather, L., & Mackie, J. (1983). The incidence of postoperative pain in children. Pain, 15(4), 271–282.

    Article  PubMed  Google Scholar 

  • McCaffery, M. (2002). Choosing a faces pain scale. Nursing, 32(5), 68.

    Article  PubMed  Google Scholar 

  • McCaffery, M., & Pasero, C. (1999). Teaching patients to use a numerical pain-rating scale. The American Journal of Nursing, 99(12), 22.

    PubMed  Google Scholar 

  • McGrath, P. A. (1995). Pain in the pediatric patient: Practical aspects of assessment. Pediatric Annals, 24(3), 126–133 137–128.

    Article  PubMed  Google Scholar 

  • McGrath, P., Vair, C., McGrath, M. J., Unruh, E., & Scjnurr, R. (1985). Pediatric nurses’ perception of pain experienced by children and adults. Nursing Papers, 16(4), 34–40.

    PubMed  Google Scholar 

  • McGrath, P. A., Seifert, C. E., Speechley, K. N., Booth, J. C., Stitt, L., & Gibson, M. C. (1996). A new analogue scale for assessing children’s pain: An initial validation study. Pain, 64(3), 435–443.

    Article  PubMed  Google Scholar 

  • Mcguire, D. B. (2004). Occurrence of cancer pain. Journal of the National Cancer Institute. Monographs, 2004(32), 51–56.

    Article  Google Scholar 

  • Mehta, A., & Chan, L. (2008). Understanding the concept of “Total pain”: A prerequisite for pain control. Journal of Hospice and Palliative Nursing, 10, 33–34.

    Article  Google Scholar 

  • Meltzer, E. C., Rybin, D., Meshesha, L. Z., et al. (2012). Aberrant drug-related behaviors: Unsystematic documentation does not identify prescription drug use disorder. Pain Medicine, 13(11), 1436–1443.

    Article  PubMed  Google Scholar 

  • Melzack, R. (1975). The McGill pain questionnaire: Major properties and scoring methods. Pain, 1, 277–299.

    Article  PubMed  Google Scholar 

  • Melzack, R. (1987). The short-form McGill pain questionnaire. Pain, 30, 191–197.

    Article  PubMed  Google Scholar 

  • Merkel, S. I., Voepel-Lewis, T., Shayevitz, J. R., & Malviya, S. (1997). The FLACC: A behavioral scale for scoring postoperative pain in young children. Pediatric Nursing, 23(3), 293–297.

    PubMed  Google Scholar 

  • Merskey, H., & Bugduk, N. (1994). Classification of chronic pain. Descriptions of chronic pain syndromes and definitions of pain terms (2nd ed.). Seattle: IASP Press.

    Google Scholar 

  • Mishra, S., Bhatnagar, S., Chaudhary, P., & Rana, S. P. S. (2009). Breakthrough Cancer pain: Review of prevalence, characteristics and management. Indian Journal of Palliative Care, 15(1), 14–18. https://doi.org/10.4103/0973-1075.53506.

    Article  PubMed  PubMed Central  Google Scholar 

  • Nader, R., Oberlander, T. F., Chambers, C. T., & Craig, K. D. (2004). Expression of pain in children with autism. The Clinical Journal of Pain, 20(2), 88–97.

    Article  PubMed  Google Scholar 

  • National Comprehensive Cancer Network, Inc. (2015). NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) Adult Cancer Pain, Version 1.2015. Fort Washington: National Comprehensive Cancer Network, Inc.

    Google Scholar 

  • O’Mahony, S., Goulet, J. L., & Payne, R. (2010). Psychosocial distress in patients treated for cancer pain: A prospective observational study. Journal of Opioid Management, 6, 211–222.

    Article  PubMed  Google Scholar 

  • O’Rourke, D. (2004). The measurement of pain in infants, children, and adolescents: From policy to practice. Physical Therapy, 84(6), 560–570.

    PubMed  Google Scholar 

  • Oldenmenger, W. H., de Raaf, P. J., de Klerk, C., & van der Rijt, C. C. (2013). Cut points on 0–10 numeric rating scales for symptoms included in the Edmonton symptom assessment scale in cancer patients: A systematic review. Journal of Pain and Symptom Management, 45, 1083–1093.

    Article  PubMed  Google Scholar 

  • Pachman, D. R., Watson, J. C., & Loprinzi, C. L. (2014). Therapeutic strategies for cancer treatment related peripheral neuropathies. Current Treatment Options in Oncology, 15, 567–580.

    Article  PubMed  Google Scholar 

  • Pasero, C., Gordon, D. B., McCaffery, M., & Pasero, C. (1999). JCAHO on assessing and managing pain. The American Journal of Nursing, 99(7), 22.

    PubMed  Google Scholar 

  • Peacock, S., & Patel, S. (2008). Cultural influences on pain. Review in Pain, 1(2), 6–9.

    Article  Google Scholar 

  • Peterson, D. E., & Lalla, R. V. (2010). Oral mucositis: The new paradigms. Current Opinion in Oncology, 22(4), 318–322.

    Article  PubMed  PubMed Central  Google Scholar 

  • Peterson, B. S., Vohr, B., Staib, L. H., Cannistraci, C. J., Dolberg, A., Schneider, K. C., … Ment, L. R. (2000). Regional brain volume abnormalities and long-term cognitive outcome in preterm infants. JAMA, 284(15), 1939–1947.

    Article  PubMed  Google Scholar 

  • Puchalski, C., Vitillo, R., Hull, S., & Reller, N. (2014). Improving the spiritual dimension of whole person care: Reaching national and international consensus. Journal of Palliative Medicine, 17(6), 642–656.

    Article  PubMed  PubMed Central  Google Scholar 

  • Rinaldi, R. C., Steindler, E. M., Wilford, B. B., & Goodwin, D. (1988). Clarification and standardization of substance abuse terminology. Journal of the American Medical Association, 259, 555–557.

    Article  PubMed  Google Scholar 

  • Ripamonti, C. I., Bossi, P., Santini, D., et al. (2014). Pain related to cancer treatments and diagnostic procedures: A no man’s land? Annals of Oncology, 25(6), 1097–1106.

    Article  PubMed  Google Scholar 

  • Savage, S., Covington, E. C., Ehit, H. A., et al. (2001). Definitions related to the use of opioids for the treatment of pain. A consensus document from the American Academy of pain medicine, the American pain society. Glenview: American Society of Addiction Medicine.

    Google Scholar 

  • Schmidt, B. L., Hamamoto, D. T., Simone, D. A., & Wilcox, G. L. (2010). Mechanism of cancer pain. Molecular Interventions, 10(3):164–178. https://doi.org/10.1124/mi.10.3.7

    Article  PubMed  PubMed Central  Google Scholar 

  • Smith, T. J., & Saiki, C. B. (2015). Cancer pain management. Mayo Clinic Proceedings, 90(10), 1428–1439. https://doi.org/10.1016/j.mayocp.2015.08.009.

    Article  PubMed  Google Scholar 

  • Siden, H. B., Carleton, B. C., & Oberlander, T. F. (2013). Physician variability in treating pain and irritability of unknown origin in children with severe neurological impairment. Pain Research & Management : The Journal of the Canadian Pain Society, 18(5), 243–248.

    Article  Google Scholar 

  • Solodiuk, J., & Curley, M. A. (2003). Pain assessment in nonverbal children with severe cognitive impairments: The individualized numeric rating scale (INRS). Journal of Pediatric Nursing, 18(4), 295–299.

    Article  PubMed  Google Scholar 

  • Solodiuk, J C., Scott-Sutherland, J., Meyers, M., Myette, B., Shusterman, C., Karian, V. E., . . Curley, M. A. (2010). Validation of the individualized numeric rating scale (INRS): A pain assessment tool for nonverbal children with intellectual disability. Pain, 150(2), 231–236. doi:https://doi.org/10.1016/j.pain.2010.03.016.

    Article  PubMed  Google Scholar 

  • Solodiuk, J. C. (2018). International journal of nursing studies parent described pain responses in nonverbal children with intellectual disability. International Journal of Nursing Studies, 50(8), 1033–1044. https://doi.org/10.1016/j.ijnurstu.2012.11.015

    Article  PubMed  Google Scholar 

  • Stevens, B., & Johnston, C. C. (1993). Pain in the infant: Theoretical and conceptual issues. Maternal-Child Nursing Journal, 21(1), 3–14.

    PubMed  Google Scholar 

  • Stevens, B. J., Johnston, C. C., & Horton, L. (1993). Multidimensional pain assessment in premature neonates: A pilot study. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 22(6), 531–541.

    Article  PubMed  Google Scholar 

  • Stevens, B., Johnston, C., Petryshen, P., & Taddio, A. (1996). Premature infant pain profile: Development and initial validation. The Clinical Journal of Pain, 12(1), 13–22.

    Article  PubMed  Google Scholar 

  • Stinson, J. N., Kavanagh, T., Yamada, J., Gill, N., & Stevens, B. (2006). Systematic review of the psychometric properties, interpretability and feasibility of self-report pain intensity measures for use in clinical trials in children and adolescents. Pain, 125(1–2), 143–157.

    Article  PubMed  Google Scholar 

  • Svendsen, K. B., Andersen, S., Arnason, S., Arnér, S., Breivik, H., Heiskanen, T., Kalso, E., Kongsgaard, U. E., Sjogren, P., Strang, P., Bach, F. W., & Jensen, T. (2005). Breakthrough pain in malignant and non-malignant diseases: A review of prevalence, characteristics and mechanisms. European Journal of Pain, 9(2), 195–206.

    Article  PubMed  Google Scholar 

  • Taddio, A., Goldbach, M., Ipp, M., Stevens, B., & Koren, G. (1995). Effect of neonatal circumcision on pain responses during vaccination in boys. Lancet, 345(8945), 291–292.

    Article  PubMed  Google Scholar 

  • van den Beuken-van Everdingen, M. H., de Rijke, J. M., Kessels, A. G., Schouten, H. C., van Kleef, M., & Patijn, J. (2007). Prevalence of pain in patients with cancer: A systematic review of the past 40 years. Annals of Oncology, 18, 1437–1449.

    Article  PubMed  Google Scholar 

  • Valkenburg, A. J., van der Kreeft, S. M., de Leeuw, T. G., Stolker, R. J., Tibboel, D., & van Dijk, M. (2012). Pain management in intellectually disabled children: A survey of perceptions and current practices among Dutch anesthesiologists. Paediatric Anaesthesia, 22(7), 682–689.

    Article  PubMed  Google Scholar 

  • van Middendorp, H., Lumley, M. A., Jacobs, J. W., Bijlsma, J. W., & Geenen, R. (2010). The effects of anger and sadness on clinical pain reports and experimentally-induced pain thresholds in women with and without fibromyalgia. Arthritis Care and Research, 62(10), 1370–1376.

    Article  PubMed  Google Scholar 

  • Varni, J. W., Thompson, K. L., & Hanson, V. (1987). The Varni/Thompson pediatric pain questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28(1), 27–38.

    Article  PubMed  Google Scholar 

  • Veteran’s Administration. (2000, October). Pain: The 5th vital sign toolkit. https://www.va.gov/PAINMANAGEMENT/docs/Pain_As_the_5th_Vital_Sign_Toolkit.pdf. Last accessed 21 Jan 2018.

  • Villemure, C., & Schweinhardt, P. (2010). Supraspinal pain processing: Distinct roles of emotion and attention. The Neuroscientist, 16(3), 276–284.

    Article  PubMed  Google Scholar 

  • Voepel-Lewis, T., Malviya, S., & Tait, A. R. (2005). Validity of parent ratings as proxy measures of pain in children with cognitive impairment. Pain Management Nursing, 6(4), 168–174.

    Article  PubMed  Google Scholar 

  • Volkow, N. D., & McLellan, A. T. (2016). Opioid abuse in chronic pain – misconceptions and mitigation strategies. The New England Journal of Medicine, 374, 1253–1263.

    Article  PubMed  Google Scholar 

  • Walco, G. A., Cassidy, R. C., & Schechter, N. L. (1994). Pain, hurt, and harm. The ethics of pain control in infants and children. The New England Journal of Medicine, 331(8), 541–544.

    Article  PubMed  Google Scholar 

  • Warden, V., Hurley, A. C., & Volicer, L. (2003). Development of psychometric evaluation of the pain assessment in advanced dementia (PAINAD) scale. Journal of the American Medical Directors Association, 4(1), 9–15.

    Article  PubMed  Google Scholar 

  • Willis, M. H., Merkel, S. I., Voepel-Lewis, T., & Malviya, S. (2003). FLACC behavioral pain assessment scale: A comparison with the child’s self-report. Pediatric Nursing, 29(3), 195–198.

    PubMed  Google Scholar 

  • Webber, K., Davies, A., Zeppetella, N., & Cowie, M. R. (2014). Development and validation of the breakthrough pain assessment tool (BAT) in cancer patients. Journal of Pain and Symptom Management, 48(4), 619–631.

    Article  PubMed  Google Scholar 

  • Webster, L. R., & Webster, R. M. (2005). Predicting aberrant behaviors in opioid-treated patients: preliminary validation of the Opioid Risk Tool. Pain Medicine, 6(6), 432–442.

    Article  PubMed  Google Scholar 

  • Weissman, D. E., & Haddox, J. D. (1989). Opioid pseudoaddiction-an iatrogenic syndrome. Pain, 36, 363–366.

    Article  PubMed  Google Scholar 

  • Wong, D. L., & Baker, C. M. (1988). Pain in children: Comparison of assessment scales. The Oklahoma Nurse, 33(1), 8.

    PubMed  Google Scholar 

  • Wong, C. S., Hui, G. K., Chung, E. K., & Wong, S. H. (2014). Diagnosis and management of neuropathic pain. Pain Management, 4(3), 221–231.

    Article  PubMed  Google Scholar 

  • Woo, A. (2010). Depression and Anxiety in Pain. Reviews in Pain, 4(1), 8–12.

    Article  PubMed  PubMed Central  Google Scholar 

  • Zwakhalen, S. M., van der Steen, J. T., & Najim, M. D. (2012). Which score most likely represents pain on the observational PAINAD pain scale for patients with dementia? Journal of the American Medical Directors Association, 13(4), 384–389.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Hunter Groninger MD .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2018 Springer International Publishing AG, part of Springer Nature

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Khan, M., Mahmood, L., Fisher, D., Thompson, S., Stewart, D., Groninger, H. (2018). Assessment of Pain: Tools, Challenges, and Special Populations. In: Moore, R. (eds) Handbook of Pain and Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-319-95369-4_6

Download citation

Publish with us

Policies and ethics