Abstract
In 1999, Susan Wolf diagnosed what was missing in bioethics: “an analysis that places race, ethnicity, and gender at the center.” Since then, not enough progress has been made in “decentering” whiteness in bioethics. The use of assisted reproductive technologies (ART) in the United States, and the bioethical discussion surrounding it, provides a window into the problem. Recent surveys of ART usage show racial disparities in access to ART and treatment outcomes. A personal testimony about egg freezing suggests a perceptual blindness when white experience is taken to be the norm. Nevertheless, bioethics, including feminist bioethics, has largely framed ART within the parameters of “normative whiteness.” This paper will argue that feminist bioethics needs to put race at the center of analysis and will suggest pathways for doing so. Decentering whiteness requires a consideration of epistemic limits and privilege, a reevaluation of the goals of feminism, and an embrace of empathy in service of a more responsive and flexible worldview.
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Notes
- 1.
Russell is citing the work of Thomas LaVeist. 2005. Minority Populations and Health: An Introduction to Health Disparities in the United States. San Francisco: Jossey-Bass.
- 2.
Mills worries, for example, that his work, especially The Racial Contract (1997), has had no impact on mainstream (white) political philosophy. He has tried to bridge abstract discussions of justice and rights with a concrete political discussion of racism, which, he argues, is itself a political system.
References
Allen R. Is egg freezing only for white women? The New York Times, 21 May; 2016. http://www.nytimes.com/2016/05/22/opinion/is-egg-freezing-only-for-white-women.html?smid=pl-share&_r=0.
Collins PH. Defining black feminist thought. In: Black feminist thought: knowledge, consciousness, and the politics of empowerment. New York: Routledge; 1990. p. 1–20.
Crenshaw K. Mapping the margins: intersectionality, identity politics, and violence against women of color. Stanford Law Rev. 1991;43(6):1241–99.
de Beauvoir S. The second sex. Trans. Constance Borde and Sheila Malovaney-Chevallier. New York: Vintage Press; 2011.
DiAngelo R. Keynote address for spring symposium “policy and advocacy: intersectionality of poverty, race, and gender.” Department of Social Work. North Carolina State University, 30 Mar; 2017.
Feinberg E, Larsen F, Catherino W, Zhang J, Armstrong A. Comparison of assisted reproductive technology utilization and outcomes between Caucasian and African American patients in an equal-access-to-care setting. Fertil Steril. 2006;85(4):888–94.
Goold I, Savulescu J. In favour of freezing eggs for non-medical reasons. Bioethics. 2009;23(1):47–58.
Hammarberg K, Kirkman M, Pritchard N, Hickey M, Peate M, McBain J, Agresta F, Bayly C, Fisher J. Reproductive experiences of women who cryopreserved oocytes for non-medical reasons. Hum Reprod. 2017;32(3):575–81.
Harding S. Introduction: standpoint theory as a site of political, philosophic, and scientific debate. In: Harding S, editor. The feminist standpoint reader: intellectual and political controversies. New York: Routledge; 2004. p. 1–15.
Harwood K. Egg freezing: a breakthrough for reproductive autonomy? Bioethics. 2009;23(1):39–46.
Hill M, Donald Royster G, Taneja M, Healy MW, Zarek S, Christy A, DeCherney A, Widra E, Devine K. Does elevated progesterone on day of oocyte maturation play a role in the racial disparities in IVF outcomes? Reprod Biomed Online. 2017;34:154–61.
Hoberman J. Why bioethics has a race problem. Hast Cent Rep. 2016;46(2):12–8.
Hooks B. Feminist theory: from margin to center. Cambridge, MA: South End Press; 1984.
Hull G, Scott PB, Smith B. All the women are white, all the blacks are men, but some of us are brave. Old Westbury: The Feminist Press; 1982.
Lasha. The colorblind sisterhood fantasy: black women voted for white women—and white women voted for themselves. Salon.com, 26 Nov; 2016. http://www.salon.com/2016/11/26/the-colorblind-sisterhood-fantasy-black-women-voted-for-white-women-and-white-women-voted-for-themselves/.
LaVeist T. Minority populations and health: an introduction to health disparities in the United States. San Francisco: Jossey-Bass; 2005.
Mills C. Philosophy raced, philosophy erased. In: Yancy G, editor. Reframing the practice of philosophy: bodies of color, bodies of knowledge. Albany: State University of New York; 2012. p. 45–70.
Myser C. Differences from somewhere: the normativity of whiteness in bioethics in the United States. Am J Bioeth. 2013;3(2):1–11.
Quinn M, Fujimoto V. Racial and ethnic disparities in assisted reproductive technology access and outcomes. Fertil Steril. 2016;105(5):1119–23.
Roberts D. Debating the case of health disparities: implications for bioethics and racial equality. Camb Q Healthc Ethics. 2012;21:332–41.
Roberts D. Complicating the triangle of race, class and state: the insights of black feminists. Ethnic Racial Stud. 2014;37(10):1776–82.
Rogers K. White women helped elect Donald Trump. The New York Times, 9 Nov; 2016. https://www.nytimes.com/2016/12/01/us/politics/white-women-helped-elect-donald-trump.html
Ross L, Solinger R. Reproductive justice: an introduction. Oakland: University of California Press; 2017.
Roth A. What does queer family equality have to do with reproductive ethics? Int J Fem Approaches Bioeth. 2016;9(1):27–67.
Russell CA. Questions of race in bioethics: deceit, disregard, disparity, and the work of decentering. Philos Compass. 2016;11(1):43–55.
Sandberg S. Lean in: women, work, and the will to lead. New York: Alfred A. Knopf; 2013.
Seifer D, Frazier L, Grainger D. Disparity in assisted reproductive technologies outcomes in black women compared with white women. Fertil Steril. 2008;90(5):1701–10.
Wellons M, Fujimoto V, Baker V, Barrington D, Broomfield D, Catherino W, Richard-Davis G, Ryan M, Thornton K, Armstrong A. Race matters: a systematic review of racial/ethnic disparity in Society of Assisted Reproductive Technology reported outcomes. Fertil Steril. 2012;98(2):406–9.
Wolf SM. Erasing difference: race, ethnicity, and gender in bioethics. In: Donchin A, Purdy LM, editors. Embodying bioethics: recent feminist advances. Lanham: Rowman & Littlefield Publishers; 1999. p. 65–81.
Wylie A. Why standpoint matters. In: Figueroa R, Harding S, editors. Science and other cultures: issues in philosophies of science and technology. New York: Routledge; 2003. p. 26–48.
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Harwood, K.A. (2018). Decentering Whiteness in Feminist Bioethics: Assisted Reproductive Technologies (ART) as an Illustrative Case. In: Campo-Engelstein, L., Burcher, P. (eds) Reproductive Ethics II. Springer, Cham. https://doi.org/10.1007/978-3-319-89429-4_8
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