Abstract
Inflammatory bowel disease is a lifelong, chronic condition consisting of two main subtypes: ulcerative colitis (UC) and Crohn’s disease (CD). It is often characterized by an unpredictable disease course with fluctuating periods of quiescence and flares despite optimal therapy. As a result, the clinical management of patients with IBD requires flexibility. The majority of patients are managed in an outpatient setting. An outpatient clinic schedule aims to accommodate prompt access appointments for those patients who are experiencing exacerbation of their disease and for those who are experiencing side effects to medical therapy.
Nurses play a key role within the multidisciplinary team by providing clinical support and education and serving as a patient advocate. In a traditional clinic setting where face-to-face follow-up appointments are scheduled at the time of the clinic visit, there is a shortage of available clinic time for urgent, frequent, or prompt medical appointments. As a result, many specialist IBD nurses are filling in the required gap by setting up nurse-led follow-up clinics for prompt access or frequent follow-up appointments within the chronic disease model of care for IBD patients.
The onset of IBD is usually during teen years or young adult life, requiring frequent follow-up clinic visits which can disrupt family members’ daily life to facilitate the scheduled clinic appointment. As a consequence, creative ways of conducting follow-up appointment are being considered through virtual clinic follow-up visits, telephone follow-up visits, or distance self-management. This chapter will cover face-to-face and virtual clinic appointment; however, telephone review and distance management will be discussed more in the e-health (44) and advice line (47) chapters.
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsReferences
Alarhayem A, Achebe E, Logue AJ (2015) Psychosocial support of the inflammatory bowel disease patient. Surg Clin North Am 95(6):1281–1293
Baldassano R, Ferry G, Griffiths A, Mack D, Markowitz J, Winter H (2002) Transition of the patient with inflammatory bowel disease from pediatric to adult care: recommendations of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. J Pediatr Gastroenterol Nutr 34(3):245–248
Balzola F, Cullen G, Ho GT, Hoentjen F, Russell RK (2013) Decreasing colectomy rates for ulcerative colitis: a population-based time trend study. Inflamm Bowel Dis 13(3):122
Bennebroek Evertsz’ F, Thijssens NAM, Stokkers PCF, Grootenhuis MA, Bockting CLH, Nieuwkerk PT et al (2012) Do inflammatory bowel disease patients with anxiety and depressive symptoms receive the care they need? J Crohns Colitis 6(1):68–76
Bollegala N, Nguyen GC (2015) Transitioning the adolescent with IBD from pediatric to adult care: a review of the literature. Gastroenterol Res Pract 2015:7
Brooks AJ, Rowse G, Ryder A, Peach EJ, Corfe BM, Lobo AJ (2016) Systematic review: psychological morbidity in young people with inflammatory bowel disease - risk factors and impacts. Aliment Pharmacol Ther 44(1):3–15
Cheung WY, Dove J, Lervy B, Russell IT, Williams JG (2002) Shared care in gastroenterology: GPs’ views of open access to out-patient follow-up for patients with inflammatory bowel disease. Fam Pract 19(1):4–6
de Lima A, Zelinkova Z, Mulders AGMGJ, van der Woude CJ (2016) Preconception care reduces relapse of inflammatory bowel disease during pregnancy. Clin Gastroenterol Hepatol 14(9):1285–1292.e1
Farraye FA, Melmed GY, Lichtenstein GR, Kane SV (2017) ACG clinical guideline: preventive care in inflammatory bowel disease. Am J Gastroenterol 112(2):241–258
Frolkis AD, Dykeman J, Negrón ME, Debruyn J, Jette N, Fiest KM et al (2013) Risk of surgery for inflammatory bowel diseases has decreased over time: A systematic review and meta-analysis of population-based studies. Gastroenterology 145(5):996–1006
Goodhand J, Hedin CR, Croft NM, Lindsay JO (2011) Adolescents with IBD: the importance of structured transition care. J Crohns Colitis 5(6):509–519
Graff LA, Walker JR, Bernstein CN (2009) Depression and anxiety in inflammatory bowel disease: a review of comorbidity and management. Inflamm Bowel Dis 15(7):1105–1118
Halmos EP, Gibson PR (2015) Dietary management of IBD--insights and advice. Nat Rev Gastroenterol Hepatol 12(3):133–146
Hamlin PJ, Warren L, Everett SM (2011) Establishing a biologics service for patients with inflammatory bowel disease. Frontline Gastroenterol 2(3):133–139
Häuser W, Moser G, Klose P, Mikocka-walus AA (2014) Psychosocial issues in evidence-based guidelines on inflammatory bowel diseases: a review. World J Gastroenterol 20(13):3666–3671
Hendy P, Chadwick G, Hart A (2015) IBD: reproductive health, pregnancy and lactation. Frontline Gastroenterol 6:38–43
Hunter J, Claridge A, James S, Chan D, Stacey B, Stroud M et al (2012) Improving outpatient services: the Southampton IBD virtual clinic. Postgrad Med J 88(1042):487–491
IBD Standards (2013) Standards for the healthcare of people who have Inflammatory Bowel Disease (IBD) IBD Standards, pp 1–32
Kahn SA (2014) Transition of care in inflammatory bowel disease. Gastroenterol Hepatol 10(10):633–640
Kemp K, Campbell S, Kemp K, Griffiths J, Campbell S, Lovell K (2013) An exploration of the follow-up needs of patients with inflammatory bowel disease an exploration of the follow-up up needs of patients with inflammatory bowel disease. J Crohn’s Colitis 7(9):e386–e395. European Crohn’s and Colitis Organisation
Lomer MCE (2011) Dietary and nutritional considerations for inflammatory bowel disease. Proc Nutr Soc 70(3):329–335
Louis E, Dotan I, Ghosh S, Mlynarsky L, Reenaers C, Schreiber S (2015) Optimising the inflammatory bowel disease unit to improve quality of care: expert recommendations. J Crohns Colitis 9(8):685–691
Mikocka-walus AA, Andrews JM, Ka R, Von Moser G (2013) What are the implications of changing treatment delivery models for patients with inflammatory bowel disease: a discussion paper. Eur J Gastroenterol Hepatol 25(4):393–398
Mikocka-Walus A, Andrews JM, Rampton D, Goodhand J, van der Woude J, Bernstein CN (2014) How can we improve models of care in inflammatory bowel disease? An international survey of IBD health professionals. J Crohns Colitis 8(12):1668–1674
Molodecky NA, Soon IS, Rabi DM, Ghali WA, Ferris M, Chernoff G et al (2012) Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology 142(1):46–54.e42
Morar P, Read J, Arora S, Hart A, Warusavitarne J, Green J et al (2015) Defining the optimal design of the inflammatory bowel disease multidisciplinary team: results from a multicentre qualitative expert-based study. Frontline Gastroenterol 6:290–297
Nguyen GC, Seow CH, Maxwell C, Huang V, Leung Y, Jones J et al (2016) The Toronto Consensus statements for the management of inflammatory bowel disease in pregnancy. Gastroenterology 150(3):734–757e1
O’Connor M, Bager P, Duncan J, Gaarenstroom J, Younge L, Détré P et al (2013) N-ECCO Consensus statements on the European nursing roles in caring for patients with Crohn’s disease or ulcerative colitis. J Crohns Colitis 7(9):744–764
Panés J, O’Connor M, Peyrin-Biroulet L, Irving P, Petersson J, Colombel JF (2014) Improving quality of care in inflammatory bowel disease: What changes can be made today? J Crohn’s Colitis 8(9):919–926
Paterson WG, Depew WT, Paré P, Petrunia D, Switzer C, Veldhuyzen van Zanten SJ et al (2006) Canadian consensus on medically acceptable wait times for digestive health care. Can J Gastroenterol 20(6):411–423
Richman E, Rhodes JM (2013) Review article: evidence-based dietary advice for patients with inflammatory bowel disease. Aliment Pharmacol Ther 38(10):1156–1171
Robinson A, Thompson DG, Wilkin D, Roberts C (2001) Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial. Lancet 358(9286):976–981
Sack C, Phan VA, Grafton R, Holtmann G (2012) A chronic care model significantly decreases costs and healthcare utilisation in patients with inflammatory bowel disease. J Crohns Colitis 6(3):302–310
Stelton S, Zulkowski K, Ayello EA (2015) Practice implications for peristomal skin assessment and care from the 2014 world council of enterostomal therapists international ostomy guideline. Adv Skin Wound Care 28(6):275–284
Van Dullemen HM, Kleibeuker JH (2016) Novel approaches in the outpatient care of patients with chronic inflammatory bowel disease. 5521(December)
Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A (2001) Improving chronic illness care: translating evidence into action. Health Aff 20(6): 64–78
Ward M (2016) Research topic: managing compassionate therapy — the role of the virtual clinic. J Gastroenterol Hepatol 31:44–45
Whear R, Abdul-Rahman A-K, Thompson-Coon J, Boddy K, Perry MG, Stein K (2013a) Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction. BMC Health Serv Res 13(1):501
Whear R, Boddy K, Thompson-coon J, Perry M, Stein K (2013b) The clinical effectiveness of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. PLoS One 8(10):e74774
Zhang CK, Hewett J, Hemming J, Grant T, Zhao H, Abraham C et al (2013) The influence of depression on quality of life in patients with inflammatory bowel disease. Inflamm Bowel Dis 19(8):1732–1739
Zigmond AS, Snaith RP (1983) The hospital anxiety and depression scale. Acta Psychiatr Scand 67(6):361–370
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Chauhan, U. (2019). Clinics. In: Sturm, A., White, L. (eds) Inflammatory Bowel Disease Nursing Manual. Springer, Cham. https://doi.org/10.1007/978-3-319-75022-4_48
Download citation
DOI: https://doi.org/10.1007/978-3-319-75022-4_48
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-75021-7
Online ISBN: 978-3-319-75022-4
eBook Packages: MedicineMedicine (R0)