Abstract
Nursing adolescents and young adults (AYAs) with cancer is an emerging specialty and has been in development for about the last 25 years. AYAs have specific needs, with a different biology of disease as compared with adults and children, and they require specific services in order to help to improve their experience and survival chance. Nurses have been at the forefront of these developments, leading change at first locally and in more recent years across regions and countries.
This chapter will describe the history of these nursing developments, the drivers for change and the initiatives taken to embed AYA care into practice. It will also incorporate the views of young people and the challenges observed by those at the heart of this innovation.
It is vital to ensure that AYA cancer care is ultimately seen as a mainstream specialty alongside paediatric and adult services, growing our teams and expertise and supporting those teams who are less able to develop. Sharing practice and disseminating experiences should be central to the AYA nursing community.
Keywords
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Teenage Cancer Trust nursing strategy. In-house document. 2012.
Morgan S, Soanes L. Nursing young people with cancer: what is “different” about it? Bull Cancer. 2016;103(12):999–1010.
Birch JM, Alston RD, Kelsey AM, Quinn MJ, Babb P, McNally RJ. Classification and incidence of cancers in adolescents and young adults in England 1979–1997. Br J Cancer. 2002;87(11):1267–74.
Fern LA, Taylor RM, Whelan J, Pearce S, Grew T, Brooman K, Starkey C, Millington H, Ashton J, Gibson F. The art of age-appropriate care: reflecting on a conceptual model of the cancer experience for teenagers and young adults. Cancer Nurs. 2013;36(5):E27–38.
Taylor RM, Fern L, Whelan J, Pearce S, Grew T, Millington H, Ashton J, Brooman K, Starkey C, Gibson F. “Your place or mine?” Priorities for a specialist teenage and young adult (TYA) cancer unit: disparity between TYA and professional perceptions. J Adolesc Young Adult Oncol. 2011;1(3):145–51.
Bleyer A, Barr R, Hayes-Lattin B, Thomas D, Ellis C, Anderson B. The distinctive biology of cancer in adolescents and young adults. Nat Rev Cancer. 2008;8(4):288–98.
Smith S, Mooney S, Cable M, Taylor R. The blueprint of care: for teenagers and young adults with cancer. 2nd ed. London: Teenage Cancer Trust; 2016.
Arnett JJ. Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol. 2000;55(5):469.
Platt H. Report on the Welfare of Children in Hospital. London: HMSO; 1959.
Department of Health. Calman-Hine report. A policy framework for commissioning cancer services. A report by the expert advisory group on cancer to the chief medical officers of England and Wales. London: Department of Health; 1995.
NICE. Guidance on cancer services. Improving outcomes for children and young people with cancer. 2005. www.nice.org.uk/nicemedia/pdf/C&YPManual.pdf.
Teenage Cancer Trust. https://www.teenagecancertrust.org/get-help/how-we-can-help/our-units. Accessed 12 Apr 2017.
United Kingdom Children’s Cancer Study Group. http://www.le.ac.uk/ebulletin-archive/ebulletin/people/honours-and-awards/2000-2009/2005/11/nparticle-5sw-78q-pgd.html. Accessed 12 Apr 2017.
Stiller CA, Draper GJ (1998) The epidemiology of cancer in children. In: Voûte PA, Kalifa C, Barrett A, editors. Cancer in children: clinical management. 4th edn. Oxford University Press: Oxford.
Bleyer WA. Cancer in older adolescents and young adults: epidemiology, diagnosis, treatment, survival, and importance of clinical trials. Pediatr Blood Cancer 2002;38(1):1–0.
Birch JM, Pang D, Alston RD, Rowan S, Geraci M, Moran A, Eden TO. Survival from cancer in teenagers and young adults in England, 1979–2003. Br J Cancer. 2008;99(5):830–5.
Collette L, Sylvester RJ, Stenning SP, Fossa SD, Mead GM, de Wit R, de Mulder PH, Neymark N, Lallemand E, Kaye SB. Impact of the treating institution on survival of patients with “poor-prognosis” metastatic nonseminoma. J Natl Cancer Inst. 1999;91(10):839–46.
CLIC Sargent. http://www.clicsargent.org.uk. Accessed Apr 2017.
Teenage Cancer Trust. https://www.teenagecancertrust.org. Accessed Apr 2017.
Ritchie MA. Sources of emotional support for adolescents with cancer. J Pediatr Oncol Nurs. 2001;18(3):105–10.
Michaud PA, Suris JC, Viner R. The adolescent with a chronic condition. Part II: healthcare provision. Arch Dis Child. 2004;89(10):943–9.
Teenagers and Young Adults with Cancer (TYAC). www.tyac.org. Accessed Apr 2017.
Olsen PR, Harder I. Keeping their world together-meanings and actions created through network-focused nursing in teenager and young adult cancer care. Cancer Nurs. 2009;32(6):493–502.
Coventry University. Centre for children and families applied research. Teenage Cancer Trust Nursing and Support Pilot Evaluation. Coventry: Coventry University; 2015.
Phipps ST, Prieto LC. The influence of personality factors on transformational leadership: Exploring the moderating role of political skill. Int J Leadersh Stud. 2011;6(3):430–47.
Find your sense of tumour. https://www.teenagecancertrust.org/get-help/how-we-can-help/support-programmes/find-your-sense-tumour. Accessed Apr 2017.
Critical mass. https://www.teencanceramerica.org/critical-mass-mission-control/. Accessed Apr 2017.
Fallon S, Smith J, Morgan S, Stoner M, Austin C. ‘Pizza, patients and points of view’: involving young people in the design of a post registration module entitled the adolescent with cancer. Nurse Educ Pract. 2008;8(2):140–7.
Taylor RM, Feltbower RG, Aslam N, Raine R, Whelan JS, Gibson F. Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer. BMJ Open. 2016;6(5):e011361.
Jones LJ, Pini SA, Morgan SJ, Birk GK, Stark DP. How do teenagers and young adults with cancer experience their care? A European survey. J Adolesc Young Adult Oncol. 2017;6(1):102–10.
Teenage Cancer Trust. Greater reach, greater impact; our ambitions for young people with cancer. London: Teenage Cancer Trust; 2016.
Personal email communication from colleagues, Feb 2017.
Teenage Cancer Trust. Competencies: caring for teenagers and young adults with cancer: a competence and career framework for nursing. London: Teenage Cancer Trust; 2014.
Global congress. http://www.cvent.com/events/2nd-annual-global-aya-cancer-congress/event-summary-5ad1d66414da4d09afbe448ded27c693.aspx. Accessed 12 Apr 2017.
Coventry University. http://www.coventry.ac.uk/study-at-coventry/faculties-and-schools/health-and-life-sciences/nursing-midwifery-and-health/teenager-young-adults-cancer-care/. Accessed 12 Apr 2017.
Stark D, Bielack S, Brugieres L, et al. Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project. Eur J Cancer Care. 2015;25(3):419–27.
BRIGHTLIGHT. http://www.brightlightstudy.com/. Accessed 12 Apr 2017.
Acknowledgements
My thanks to those professionals who gave me their views via email for this chapter and to all those who have been a part of this journey.
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Morgan, S. (2018). The Development of Adolescent and Young Adult Cancer Nursing: The UK Experience. In: Olsen, P., Smith, S. (eds) Nursing Adolescents and Young Adults with Cancer. Springer, Cham. https://doi.org/10.1007/978-3-319-73555-9_2
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