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Impact of Childhood Glaucoma and Glaucoma Surgery on Quality of Life

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Surgical Management of Childhood Glaucoma

Abstract

There has been a fundamental shift in pediatric medicine toward patient- and family-centered care to develop collaborative partnership between patients, families, and their health-care providers. Literature, albeit limited, shows that childhood glaucoma has a significant negative effect on quality of life (QoL) of affected children. As the affected children are usually younger and require intensive long-term medical care with frequent interventions and follow-up, this may lead to significant stress in the personnel responsible for primary caregiving to these young individuals (parents or caregivers). Surgical intervention for childhood glaucoma has been found to improve the QoL of affected children and their caregivers. However, there is an unmet need to develop glaucoma-specific child-reported outcome questionnaires and to develop large studies with robust methodology which include QoL measures to help identify and further understand this pertinent aspect for holistic management of this sight-threatening condition. In the management of childhood glaucoma, ophthalmologists need to incorporate QoL tools to investigate and better understand the psychological effects in both the affected population and their caregivers. There is also a need to adapt and offer various psychological therapeutic measures to the affected population to help them cope with an important but relatively overlooked facet of this vision-threatening illness.

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Authors and Affiliations

  1. Department of Ophthalmology, The Ottawa Hospital, University of Ottawa, Ottawa, ON, Canada

    Shveta Bali

  2. Glaucoma Services, Department of Ophthalmology, Dr. Rajendra Prasad Centre for Ophthalmic Sciences, All India Institute of Medical Sciences, New Delhi, India

    Tanuj Dada

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  1. Shveta Bali
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  2. Tanuj Dada
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Editors and Affiliations

  1. Samuel & Ethel Balkan International Pediatric Glaucoma Center, Bascom Palmer Eye Institute University of Miami Miller School of Medicine, Miami, FL, USA

    Alana L. Grajewski

  2. Department of Ophthalmology, Mayo Clinic, Rochester, MN, USA

    Elena Bitrian

  3. Glaucoma Service Moorfields Eye Hospital, London, UK

    Maria Papadopoulos

  4. Department of Ophthalmology, Duke University Medical Center, Durham, NC, USA

    Sharon F. Freedman

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Bali, S., Dada, T. (2018). Impact of Childhood Glaucoma and Glaucoma Surgery on Quality of Life. In: Grajewski, A., Bitrian, E., Papadopoulos, M., Freedman, S. (eds) Surgical Management of Childhood Glaucoma. Springer, Cham. https://doi.org/10.1007/978-3-319-54003-0_12

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  • DOI: https://doi.org/10.1007/978-3-319-54003-0_12

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