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Diagnostic Scores, Questionnaires and Quality-of-Life Measures in Paediatric Continence

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Part of the book series: Urodynamics, Neurourology and Pelvic Floor Dysfunctions ((UNPFD))

Abstract

The process of providing clinical care to a child or adolescent with continence issues is essentially about targeting the patient’s concerns whilst balancing scholarship. In the case of children, it is equally about impacting what matters to the family. Aspects of lower urinary tract dysfunction (LUTD) that bother the child do not necessarily correlate with the severity of incontinence and commonly differ from issues of concern to the patient or caregiver. Engaging the child or young person in identifying their needs at the outset of treatment is associated with improved quality of interactions and higher levels of satisfaction [1] that in turn predict better treatment compliance [2–4]. Patient goal-setting has been well described; the process identifies patient expectations and treatment outcomes that are most significant to each individual [5]. Some authors describe the patient and family’s view of care provided as an indicator of quality and health system performance [6–8].

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References

  1. Jackson JL, Chamberlin J, Kroenke K. Predictors of patient satisfaction. Soc Sci Med. 2001;52(4):609–20.

    Article  PubMed  CAS  Google Scholar 

  2. Fitzpatrick R. Surveys of patients satisfaction: I–important general considerations. BMJ. 1991;302(6781):887–9.

    Article  PubMed  PubMed Central  CAS  Google Scholar 

  3. Linn LS, Greenfield S. Patient suffering and patient satisfaction among the chronically ill. Med Care. 1982;20(4):425–31.

    Article  PubMed  CAS  Google Scholar 

  4. Weisman CS, Nathanson CA. Professional satisfaction and client outcomes. A comparative organizational analysis. Med Care. 1985;23(10):1179–92.

    Article  PubMed  CAS  Google Scholar 

  5. Williams KS, Perry S, Brittain KR, The Leicestershire MRC Incontinence Study Team. Patient goal setting in continence care: a useful assessment tool? Clin Eff Nurs. 2001;5:10–7.

    Article  Google Scholar 

  6. Hall JA, Dornan MC. What patients like about their medical care and how often they are asked: a meta-analysis of the satisfaction literature. Soc Sci Med. 1988;27(9):935–9.

    Article  PubMed  CAS  Google Scholar 

  7. Lochman JE. Factors related to patients’ satisfaction with their medical care. J Community Health. 1983;9(2):91–109.

    Article  PubMed  CAS  Google Scholar 

  8. Pascoe GC. Patient satisfaction in primary health care: a literature review and analysis. Eval Program Plann. 1983;6(3-4):185–210.

    Article  PubMed  CAS  Google Scholar 

  9. Wallis MC, Khoury AE. Symptom score for lower urinary tract dysfunction in pediatric urology. Curr Urol Rep. 2006;7(2):136–42.

    Article  PubMed  Google Scholar 

  10. Hooman N, Hallaji F, Mostafavi SH, Mohsenifar S, Otukesh H, Moradi-Lakeh M. Correlation between lower urinary tract scoring system, behavior check list, and bladder Sonography in children with lower urinary tract symptoms. Korean J Urol. 2011;52(3):210–5.

    Article  PubMed  PubMed Central  Google Scholar 

  11. Farhat W, Bägli DJ, Capolicchio G, O'Reilly S, Merguerian PA, Khoury A, McLorie GA. The dysfunctional voiding scoring system: quantitative standardization of dysfunctional voiding symptoms in children. J Urol. 2000;164(3 Pt 2):1011–5.

    Article  PubMed  CAS  Google Scholar 

  12. Akbal C, Genc Y, Burgu B, Ozden E, Tekgul S. Dysfunctional voiding and incontinence scoring system: quantitative evaluation of incontinence symptoms in pediatric population. J Urol. 2005;173(3):969–73.

    Article  PubMed  Google Scholar 

  13. Lee HE, Farhat W, Park K. Translation and linguistic validation of the Korean version of the dysfunctional voiding symptom score. J Korean Med Sci. 2014;29(3):400–4.

    Article  PubMed  PubMed Central  Google Scholar 

  14. Chang SJ, Chen TH, Su CC, Yang SS. Exploratory factory analysis and predicted probabilities of a Chinese version of dysfunctional voiding symptom score (DVSS) questionnaire. Neurourol Urodyn. 2012;31(8):1247–51.

    Article  PubMed  Google Scholar 

  15. Imamura M, Usui T, Johnin K, Yoshimura K, Farhat W, Kanematsu A, Ogawa O. Cross-cultural validated adaptation of dysfunctional voiding symptom score (DVSS) to Japanese language and cognitive linguistics in questionnaire for pediatric patients. Nihon Hinyokika Gakkai Zasshi. 2014;105(3):112–21.

    PubMed  Google Scholar 

  16. Calado AA, Araujo EM, Barroso U Jr, Netto JM, Filho MZ, Macedo A Jr, Bagli D, Farhat W. Cross-cultural adaptation of the dysfunctional voiding score symptom (DVSS) questionnaire for Brazilian children. Int Braz J Urol. 2010;36(4):458–63.

    Article  PubMed  Google Scholar 

  17. Upadhyay J, Bolduc S, Bagli DJ, McLorie GA, Khoury AE, Farhat W. Use of the dysfunctional voiding symptom score to predict resolution of vesicoureteral reflux in children with voiding dysfunction. J Urol. 2003;169(5):1842–6.

    Article  PubMed  Google Scholar 

  18. Farhat W, McLorie GA, O'Reilly S, Khoury A, Bägli DJ. Reliability of the pediatric dysfunctional voiding symptom score in monitoring response to behavioral modification. Can J Urol. 2001;8(6):1401–5.

    PubMed  CAS  Google Scholar 

  19. Achenbach TM, Ruffle TM. The child behavior checklist and related forms for assessing behavioral/emotional problems and competencies. Pediatric Review. 2000;21(8):265–71.

    Article  CAS  Google Scholar 

  20. Van Hoecke E, Baeyens D, Vanden Bossche H, Hoebeke P, Vande Walle J. Early detection of psychological problems in a population of children with enuresis: construction and validation of the short screening instrument for psychological problems in enuresis. J Urol. 2007;178(6):2611–5.

    Article  PubMed  Google Scholar 

  21. Bower WF, Moore KH, Adams RD. A novel clinical evaluation of childhood incontinence and urinary. J Urol. 2001;166(6):2411–5.

    Article  PubMed  CAS  Google Scholar 

  22. Bower WF, Kwok B, Yeung CK. Variability in normative urine flow rates. J Urol. 2004;171(6 Pt 2):2657–9.

    Article  PubMed  CAS  Google Scholar 

  23. Bower WF, Sit FK, Bluyssen N, Wong EM, Yeung CK. PinQ: a valid, reliable and reproducible quality-of-life measure in children with bladder dysfunction. J Pediatr Urol. 2006;2(3):185–9.

    Article  PubMed  CAS  Google Scholar 

  24. Landgraf JM. Precision and sensitivity of the short-form pediatric enuresis module to assess quality of life (PEMQOL). J Pediatr Urol. 2007;3(2):109–17.

    Article  PubMed  Google Scholar 

  25. Bachmann C, Ackmann C, Janhsen E, Steuber C, Bachmann H, Lehr D. Clinical evaluation of the short-form pediatric enuresis module to assess quality of life. Neurourol Urodyn. 2010;29(8):1397–402.

    Article  PubMed  Google Scholar 

  26. Lewis SJ, Keaton KW. Stool form scale as a useful guide to intestinal transit time. Scand J Gastroenterology. 1997;32(9):920–4.

    Article  CAS  Google Scholar 

  27. Joensson IM, Siggaard C, Rittig S, Hagstroem S, Djurhuus JC. Transabdominal ultrasound of rectum as a diagnostic tool in childhood constipation. J Urol. 2008;179(5):1997–2002.

    Article  PubMed  Google Scholar 

  28. Bai Y, Yuan Z, Wang W, Zhao Y, Wang H, Wang W. Quality of life for children with faecal incontinence after surgically corrected anorectal malformation. J Paed Surg. 2000;35(3):462–4.

    Article  CAS  Google Scholar 

  29. Bower WF. Self-reported effect of childhood incontinence on quality of life. J Wound Ostomy Continence Nurs. 2008;35(6):617–21.

    Article  PubMed  Google Scholar 

  30. Rockwood TH, Church JM, Fleshman JW, Kane RL, Mavrantonis C, Thorson AG, Wexner SD, Bliss D, Lowry AC. Fecal incontinence quality of life scale: quality of life instrument for patients with fecal incontinence. Dis Colon Rectum. 2000;43(1):9–16.

    Article  PubMed  CAS  Google Scholar 

  31. Cox DJ, Ritterband LM, Quillian W, Kovatchev B, Morris JB, Sutphen JL, Borrowitz SM. Assessment of behavioural mechanisms maintaining faecal incontinence: Virginia Faecal incontinence-constipation apperception test. J Pediatr Psychol. 2003;28:375–82.

    Article  PubMed  Google Scholar 

  32. Austin PF, Bauer SB, Bower W, Chase J, Franco I, Hoebeke P, Rittig S, Vande Walle J, von Gontard A, Wright A, Yang SS, Nevéus T. The standardization of terminology of lower urinary tract function in children and adolescents: update report from the standardization Committee of the International Children's continence society. J Urol. 2014;191(6):1863–5.

    Article  PubMed  Google Scholar 

  33. Filho HS, Mastroti RA, Klug WA. Quality-of-life assessment in children with fecal incontinence. Dis Colon Rectum. 2015;58(4):463–8.

    Article  PubMed  Google Scholar 

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Bower, W.F. (2018). Diagnostic Scores, Questionnaires and Quality-of-Life Measures in Paediatric Continence. In: Mosiello, G., Del Popolo, G., Wen, J., De Gennaro, M. (eds) Clinical Urodynamics in Childhood and Adolescence. Urodynamics, Neurourology and Pelvic Floor Dysfunctions. Springer, Cham. https://doi.org/10.1007/978-3-319-42193-3_3

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  • DOI: https://doi.org/10.1007/978-3-319-42193-3_3

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-42191-9

  • Online ISBN: 978-3-319-42193-3

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