Abstract
In the United Kingdom (UK), 160,000 people with dementia die every year [1], and 40% of these will die in hospital [2]. Given the increase in prevalence of dementia in the UK, it is clear that patients with dementia who have palliative care needs will be seen with increasing frequency in emergency departments. Caring for this group at the end of life can be complex and is often poorly managed (see Death and Dying: Barriers to Care (2014), ‘The death and dying phase of dementia remains the forgotten aspect of what has been referred to as a silent epidemic’) [3].
This is a preview of subscription content, log in via an institution.
References
Alzheimer’s Society (2012) My life until the end: dying well with dementia. Alzheimer’s Society, London
Sleeman KE, Ho YK, Verne J, Gao W, Higginson IJ (2014) Reversal of English trend towards hospital death in dementia: a population-based study of place of death and associated individual and regional factors, 2001–2010. BMC Neurol 14:59. http://tiny.cc/dementia67
Alzheimer’s Society, Marie Curie Cancer Care (2014) Living and dying with dementia in England: barriers to care. Marie Curie Cancer Care, London
Harris D (2007) Forget-me-not: palliative care for people with dementia. Postgrad Med J 83(980):362–366. http://tiny.cc/dementia53
Parliamentary and Health Service Ombudsman (2011) Care and compassion? Report of the Health Service Ombudsman on ten investigations into NHS care of older people. The Stationary Office, London
Alzheimer’s Disease International (2010) World report. Alzheimer’s Disease International, London
Sachs GA, Shega JW, Cox-Hayley D (2004) Barriers to excellent end-of-life care for patients with dementia. J Gen Int Med 19(10):1057–1063
National Gold Standards Framework Centre for End of Life Care (2011) Prognostic indicator guidance (PIG). www.goldstandardsframework.org.uk
Mental Capacity Act 2005 Code of Practice (2007) Department for Constitutional Affairs. The Stationary Office, London
British Medical Association (2008) Mental capacity act toolkit. British Medical Association, London. www.bma.org.uk
Lord K, White N, Scott S, Sampson EL (2013) The behaviour and pain (bepaid) study: dementia patients who die in the Acute Hospital. http://tiny.cc/dementia87
Candy B, Jones L, Sampson EL (2009) Enteral tube feeding for older people with advanced dementia. Cochrane Database Syst Rev 15:CD007209. http://tiny.cc/dementia89
Evers MM, Purohit D, Perl D, Khan K, Marin DB (2002) Palliative and aggressive end-of-life care for patients with dementia. Psychiatr Serv 53(5):609–613
Dening KH, Jones L, Sampson EL (2013) Preferences for end-of-life care: a nominal group study of people with dementia and their family carers. Palliat Med 27:409–417
Mangset M, Erling Dahl T, Forde R, Bruun Wyller T (2008) We’re just sick people, nothing else: factors contribution to elderly stroke patients’ satisfaction with rehabilitation. Clin Rehabil 22:825–835
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2018 Springer International Publishing Switzerland
About this chapter
Cite this chapter
James, J. (2018). Palliative and End of Life Care for Dementia Patients in the Emergency Department. In: Nickel, C., Bellou, A., Conroy, S. (eds) Geriatric Emergency Medicine. Springer, Cham. https://doi.org/10.1007/978-3-319-19318-2_25
Download citation
DOI: https://doi.org/10.1007/978-3-319-19318-2_25
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-19317-5
Online ISBN: 978-3-319-19318-2
eBook Packages: MedicineMedicine (R0)