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Headache, Functional Impact and Environment

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Book cover Societal Impact of Headache

Part of the book series: Headache ((HEAD))

Abstract

Recent improvements in the methodology of population-based studies have led not only to better estimates of prevalence but also to better, more inclusive descriptions of headache-attributed burden. Yet it is still not certain that existing methods even recognize, let alone adequately describe, all the consequences of living with headache.

The International Classification of Functioning, Disability and Health (ICF), a framework created for this purpose, provides comprehensive descriptions not only of disease-imposed difficulties in functioning but also of relevant environmental factors that may have impact—either as facilitators or barriers—upon these difficulties.

The methodology, however, is complex and resource-consuming, not to be undertaken without good reason. Yet people with headache may be well served if headache disorders can be brought into this framework, and this chapter considers how this might be done.

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Notes

  1. 1.

    Personal factors that potentially affect functioning include gender, race, ethnicity, age, social and educational background, past and current experiences and life events, character styles, behaviour patterns and psychological assets; they are not yet classified in ICF because of the large social and cultural variances associated with them, but may be annotated as free text.

  2. 2.

    Usually provided at the ICF Research Branch of the WHO Collaborating Centre of the Family of International Classifications.

References

  1. Stovner LJ, Hagen K, Jensen R, Katsarava Z, Lipton R, Scher A, Steiner TJ, Zwart JA. The global burden of headache: a documentation of headache prevalence and disability worldwide. Cephalalgia. 2007;27:193–210.

    Article  Google Scholar 

  2. World Health Organization and Lifting The Burden. Atlas of headache disorders and resources in the world 2011. Geneva: WHO; 2011.

    Google Scholar 

  3. Linde M, Gustavsson A, Stovner LJ, Steiner TJ, Barré J, Katsarava Z, Lainez JM, Lampl C, Lantéri-Minet M, Rastenyte D, Ruiz de la Torre E, Tassorelli C, Andrée C. The cost of headache disorders in Europe: the Eurolight project. Eur J Neurol. 2012;19:703–11.

    Article  CAS  Google Scholar 

  4. Vos T, Abajobir AA, Abate KH, Abbafati C, Abbas KM, Abd-Allah F, Abdulkader RS, Abdulle AM, Abebo TA, Abera SF, Aboyans V, Abu-Raddad LJ, Ackerman IN, Adamu AA, Adetokunboh O, Afarideh M, Afshin A, Agarwal SK, Aggarwal R, Agrawal A, Agrawal S, Ahmadieh H, Ahmed MB, Aichour MTE, Aichour AN, Aichour I, Aiyar S, Akinyemi RO, Akseer N, Al Lami FH, Alahdab F, Al-Aly Z, Alam K, Alam N, Alam T, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet. 2017;390:1211–59.

    Article  Google Scholar 

  5. Steiner TJ, Stovner LJ, Vos T, Jensen R, Katsarava Z. Migraine is first cause of disability in under 50s: will health politicians now take notice? J Headache Pain. 2018;19:17.

    Article  Google Scholar 

  6. Ayzenberg I, Katsarava Z, Sborowski A, Chernysh M, Osipova V, Tabeeva G, Yakhno N, Steiner TJ. The prevalence of primary headache disorders in Russia: a countrywide survey. Cephalalgia. 2012;32:373–81.

    Article  CAS  Google Scholar 

  7. Yu S, Liu R, Zhao G, Yang X, Qiao X, Feng J, Fang Y, Cao X, He M, Steiner T. The prevalence and burden of primary headaches in China: a population-based door-to-door survey. Headache. 2012;52:582–91.

    Article  Google Scholar 

  8. Kulkarni GB, Rao GN, Gururaj G, Stovner LJ, Steiner TJ. Headache disorders and public ill-health in India: prevalence estimates in Karnataka state. J Headache Pain. 2015;16:67.

    Article  Google Scholar 

  9. Rao GN, Kulkarni GB, Gururaj G, Stovner LJ, Steiner TJ. The burden attributable to headache disorders in India: estimates from a community-based study in Karnataka state. J Headache Pain. 2015;16:94.

    Article  Google Scholar 

  10. Herekar AA, Ahmad A, Uqaili UL, Ahmed B, Effendi J, Alvi SZ, Shahab MA, Javed U, Herekar AD, Khanani R, Steiner TJ. Primary headache disorders in the adult general population of Pakistan—a cross sectional nationwide prevalence survey. J Headache Pain. 2017;18:28.

    Article  CAS  Google Scholar 

  11. Mbewe E, Zairemthiama P, Yeh H-H, Paul R, Birbeck GL, Steiner TJ. The epidemiology of primary headache disorders in Zambia: a population-based door-to-door survey. J Headache Pain. 2015;16:30.

    Article  Google Scholar 

  12. Mbewe E, Zairemthiama P, Paul R, Birbeck GL, Steiner TJ. The burden of primary headache disorders in Zambia: national estimates from a population-based door-to-door survey. J Headache Pain. 2015;16:36.

    Article  Google Scholar 

  13. Zebenigus M, Tekle-Haimanot R, Worku DK, Thomas H, Steiner TJ. The prevalence of primary headache disorders in Ethiopia. J Headache Pain. 2016;17:110.

    Article  Google Scholar 

  14. Zebenigus M, Tekle-Haimanot R, Worku DK, Thomas H, Steiner TJ. The burden of headache disorders in Ethiopia: national estimates from a population-based door-to-door survey. J Headache Pain. 2017;18:58.

    Article  Google Scholar 

  15. Manandhar K, Risal A, Steiner TJ, Holen A, Linde M. The prevalence of primary headache disorders in Nepal: a nationwide population-based study. J Headache Pain. 2015;16:95.

    Article  Google Scholar 

  16. Manandhar K, Risal A, Linde M, Steiner TJ. The burden of headache disorders in Nepal: estimates from a population-based survey. J Headache Pain. 2016;17:3.

    Article  Google Scholar 

  17. Stovner LJ, Al Jumah M, Birbeck GL, Gururaj G, Jensen R, Katsarava Z, Queiroz LP, Scher AI, Tekle-Haimanot R, Wang SJ, Steiner TJ. The methodology of population surveys of headache prevalence, burden and cost: principles and recommendations from the Global Campaign against Headache. J Headache Pain. 2014;15:5.

    Article  Google Scholar 

  18. Steiner TJ, Gururaj G, Andrée C, Katsarava Z, Ayzenberg I, Yu SY, Al Jumah M, Tekle-Haimanot R, Birbeck GL, Herekar A, Linde M, Mbewe E, Manandhar K, Risal A, Jensen R, Queiroz LP, Scher AI, Wang SJ, Stovner LJ. Diagnosis, prevalence estimation and burden measurement in population surveys of headache: presenting the HARDSHIP questionnaire. J Headache Pain. 2014;15:3.

    Article  Google Scholar 

  19. Buse DC, Sollars CM, Steiner TJ, Jensen RH, Al Jumah MA, Lipton RB. Why HURT? A review of clinical instruments for headache management. Curr Pain Headache Rep. 2012;16:237–54.

    Article  Google Scholar 

  20. World Health Organization. International Classification of Functioning, Disability and Health ICF. Geneva: WHO; 2001.

    Google Scholar 

  21. World Health Organization. How to use the ICF: a practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. Geneva: WHO; 2013.

    Google Scholar 

  22. Cieza A, Stucki G. The international classification of functioning disability and health: its development process and content validity. Eur J Phys Rehabil Med. 2008;44:303–13.

    CAS  PubMed  Google Scholar 

  23. Stucki G, Kostanjsek N, Ustün B, Cieza A. ICF-based classification and measurement of functioning. Eur J Phys Rehabil Med. 2008;44:315–28.

    CAS  PubMed  Google Scholar 

  24. Leonardi M, Steiner TJ, Scher AI, Lipton RB. The global burden of migraine: measuring disability in headache disorders with WHO’s classification of functioning, disability and health (ICF). J Headache Pain. 2005;6:429–40.

    Article  Google Scholar 

  25. ICF Research Branch. ICF Core Sets projects. At: https://www.icf-research-branch.org/icf-core-sets-projects2.

  26. Üstün B, Chatterji S, Konstansjek N. Comments from WHO for the journal of rehabilitation medicine special supplement on ICF Core sets. J Rehabil Med. 2004;36(Suppl 44):7–8.

    Google Scholar 

  27. Cieza A, Ewert T, Üstün B, Chatterji S, Konstansjek N, Stucki G. Development of ICF core sets for patients with chronic conditions. J Rehabil Med. 2004;36(Suppl 44):9–11.

    Google Scholar 

  28. Grill E, Stucki G. Criteria for validating the comprehensive ICF Core sets and developing brief ICF Core set versions. J Rehabil Med. 2011;43:87–91.

    Article  Google Scholar 

  29. Selb M, Escorpizo R, Kostanjsek N, Stucki G, Üstün TB, Cieza A. A guide on how to develop an international classification of functioning, disability and health core set. Eur J Phys Rehabil Med. 2014;51:105–17.

    PubMed  Google Scholar 

  30. Avellanet M, Selb M, Stucki G, Cieza A. Utility of using the ICF Core sets in clinical practice. Rehabilitación. 2015;49:197–201.

    Article  Google Scholar 

  31. Headache Classification Committee of the International Headache Society. Classification and diagnostic criteria for headache disorders, cranial neuralgia and facial pain. Cephalalgia. 1988;8:1–96.

    Article  Google Scholar 

  32. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37:1–8.

    Article  Google Scholar 

  33. Fayed N, Cieza A, Bickenbach JE. Linking health and health-related information to the ICF: a systematic review of the literature from 2001 to 2008. Disabil Rehabil. 2011;33:1941–51.

    Article  Google Scholar 

  34. Cieza A, Fayed N, Bickenbach J, Prodinger B. Refinements of the ICF linking rules to strengthen their potential for establishing comparability of health information. Disabil Rehabil. 2016;41(5):574–83. https://doi.org/10.3109/09638288.2016.1145258.

    Article  PubMed  Google Scholar 

  35. Linstone HA, Turoff M. The Delphi method: techniques and applications. Reading: Addison-Wesley; 1975.

    Google Scholar 

  36. Weigl M, Cieza A, Andersen C, Kollerits B, Amann E, Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med. 2004;36(Suppl 44):12–21.

    Article  Google Scholar 

  37. Clarke A. Focus group interviews in health-care research. Prof Nurse. 1999;14:395–7.

    CAS  PubMed  Google Scholar 

  38. Parsons M, Greenwood J. A guide to the use of focus groups in health care research: part 1. Contemp Nurse. 2000;9:169–80.

    Article  CAS  Google Scholar 

  39. Karlsson G. Psychological qualitative research from a phenomenological perspective. Stockholm: Almquist and Wirksell International; 1993.

    Google Scholar 

  40. Selb M, Kohler F, Robinson Nicol MM, Riberto M, Stucki G, Kennedy C, Üstün B. ICD-11: a comprehensive picture of health, an update on the ICD–ICF joint use initiative. J Rehabil Med. 2015;47:2–8.

    Article  Google Scholar 

  41. World Health Organization. The 11th revision of the International Classification of Diseases (ICD-11) is due by 2018! 2018. http://www.who.int/classifications/icd/revision/en/.

  42. Cieza A, Hilfiker R, Chatterji S, Kostanjsek N, Ustun BT, Stucki G. The international classification of functioning, disability, and health could be used to measure functioning. J Clin Epidemiol. 2009;62:899–911.

    Article  Google Scholar 

  43. Kostansjek N, Rubinelli S, Escorpizo R, Cieza A, Kennedy C, Selb M, Stucki G, Üstün B. Assessing the impact of health conditions using the ICF. Disabil Rehabil. 2011;33:1475–82.

    Article  Google Scholar 

  44. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun BT, Stucki G. Identification of candidate categories of the international classification of functioning disability and health (ICF) for a generic ICF core set based on regression modelling. BMC Med Res Methodol. 2006;6:36.

    Article  Google Scholar 

  45. Cieza A, Oberhauser C, Bickenbach J, Chatterji S, Stucki G. Towards a minimal generic set of domains of functioning and health. BMC Public Health. 2014;14:218.

    Article  Google Scholar 

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Correspondence to Timothy J. Steiner .

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Steiner, T.J., Stovner, L.J. (2019). Headache, Functional Impact and Environment. In: Steiner, T., Stovner, L. (eds) Societal Impact of Headache. Headache. Springer, Cham. https://doi.org/10.1007/978-3-030-24728-7_11

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  • DOI: https://doi.org/10.1007/978-3-030-24728-7_11

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