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Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia

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Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions

Abstract

Young adults with long-term health conditions (LTHCs) are increasing due to improvements in care, therapy regimens and medical technology. In the UK, transition to adult services occurs at a stage when they are also learning self-management skills. For some, transfer from paediatric to adult care providers may result in a loss of psychosocial support. Higher mortality rates and lower access to healthcare are common in young adults aged between 18 and 25 years of age compared to adolescents (10–17 years) and those who are in the 26 to 30 year age group. Failure to provide attention to the complex balancing act between medication demands, hospital appointments, work and social activities, nutrition and key tasks of development (Walker-Harding et al. 2017) means young adults face significant challenges in the move to independent living.

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Author information

Authors and Affiliations

  1. Haemophilia Centre and Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Trust, London, UK

    Kate Khair

  2. Haemnet, London, UK

    Kate Khair & Luke Pembroke

  3. Department of Child and Adolescent Psychological Services, University College London Hospitals NHS Trust, London, UK

    Deborah Christie

Authors
  1. Kate Khair
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  2. Luke Pembroke
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  3. Deborah Christie
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Corresponding author

Correspondence to Kate Khair .

Editor information

Editors and Affiliations

  1. Keck School of Medicine, Department of Pediatrics, University of Southern California, Los Angeles, CA, USA

    Cecily L. Betz

  2. School of Nursing and Midwifery, Faculty of Health Sciences, Trinity College, Dublin, Ireland

    Imelda T. Coyne

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Khair, K., Pembroke, L., Christie, D. (2020). Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia. In: Betz, C., Coyne, I. (eds) Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions. Springer, Cham. https://doi.org/10.1007/978-3-030-23384-6_11

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  • DOI: https://doi.org/10.1007/978-3-030-23384-6_11

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-23386-0

  • Online ISBN: 978-3-030-23384-6

  • eBook Packages: MedicineMedicine (R0)

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