Skip to main content

Challenges with Behavioral Health Services Research Data

  • Chapter
  • First Online:
Foundations of Behavioral Health

Abstract

This chapter examines the complexity of data being generated by a multitude of individuals and organizations within the various areas of behavioral health (alcohol, drug abuse, and mental health) services research. It will also examine the role of technology in services research and in accessing research databases. In addition, this chapter will identify some of the major databases in behavioral health services research and illustrate the complexity of collecting, organizing, and accessing information from a vast array of data collection sources.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 89.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 119.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    Health disparities include but are not limited to language; culture; socioeconomic status; gender; age; mental health; cognitive, sensory, or physical disability; sexual orientation or gender identity; geographic location (e.g., rural vs. urban); or other characteristics historically linked to discrimination or exclusion, such as race or ethnicity.

References

  • Aarons, G. A., Glisson, C., Green, P. D., Hoagwood, K., Kelleher, K. J., Landsverk, J. A., … Schoenwald, S. (2012). The organizational social context of mental health services and clinician attitudes toward evidence-based practice: a United States national study. Implementation Science, 7, 56. https://doi.org/10.1186/1748-5908-7-56

    Article  Google Scholar 

  • Abresch, J., Hanson, A., & Reehling, P. J. (2008). Collection management issues with geospatial information. In J. Abresch, A. Hanson, S. J. Heron, & P. J. Reehling (Eds.), Integrating geographic information systems into library services: A guide for academic libraries (pp. 202–238). Hershey, PA: Information Science Publishing.

    Chapter  Google Scholar 

  • Allen, J. D., Shelton, R. C., Emmons, K. M., & Linnan, L. A. (2018). Fidelity and its relationship to implementation, effectiveness, adaptation, and dissemination. In R. C. Brownson, G. A. Colditz, & E. K. Proctor (Eds.), Dissemination and implementation research in health: Translating science to practice (2nd ed., pp. 267–284). New York, NY: Oxford University Press.

    Google Scholar 

  • American Psychiatric Association. (1952). Diagnostic and statistical manual: Mental disorders: DSM-I. Washington, DC, US: American Psychiatric Association, Mental Hospital Service.

    Google Scholar 

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. Arlington, VA: Author.

    Book  Google Scholar 

  • Andrade, L. H., Alonso, J., Mneimneh, Z., Wells, J. E., Al-Hamzawi, A., Borges, G., … Kessler, R. C. (2014). Barriers to mental health treatment: Results from the WHO World Mental Health surveys. Psychological Medicine, 44(6), 1303–1317. https://doi.org/10.1017/s0033291713001943

    Article  Google Scholar 

  • Atkinson, J. A., Page, A., Wells, R., Milat, A., & Wilson, A. (2015). A modelling tool for policy analysis to support the design of efficient and effective policy responses for complex public health problems. Implementation Science, 10, 26. https://doi.org/10.1186/s13012-015-0221-5

    Article  Google Scholar 

  • Bahorik, A. L., Satre, D. D., Kline-Simon, A. H., Weisner, C. M., & Campbell, C. I. (2017). Serious mental illness and medical comorbidities: Findings from an integrated health care system. Journal of Psychosomatic Research, 100, 35–45. https://doi.org/10.1016/j.jpsychores.2017.07.004

    Article  Google Scholar 

  • Berry, N., Lobban, F., Emsley, R., & Bucci, S. (2016). Acceptability of interventions delivered online and through mobile phones for people who experience severe mental health problems: A systematic review. Journal of Medical Internet Research, 18(5), e121. https://doi.org/10.2196/jmir.5250

    Article  Google Scholar 

  • Boerma, T., Eozenou, P., Evans, D., Evans, T., Kieny, M. P., & Wagstaff, A. (2014). Monitoring progress towards universal health coverage at country and global levels. PLoS Medicine, 11(9), e1001731. https://doi.org/10.1371/journal.pmed.1001731

    Article  Google Scholar 

  • Charlson, F. J., Baxter, A. J., Dua, T., Degenhardt, L., Whiteford, H. A., & Vos, T. (2016). Excess mortality from mental, neurological, and substance use disorders in the Global Burden of Disease Study. In V. Patel, D. Chisholm, T. Dua, R. Laxminarayan, & M. E. Medina-Mora (Eds.), Mental, neurological, and substance use disorders: Disease control priorities (Vol. 4, 3rd ed., p. 2010). Washington, DC: The International Bank for Reconstruction and Development; The World Bank. https://www.ncbi.nlm.nih.gov/books/NBK361935/

    Google Scholar 

  • Chaudoir, S. R., Dugan, A. G., & Barr, C. H. (2013). Measuring factors affecting implementation of health innovations: A systematic review of structural, organizational, provider, patient, and innovation level measures. Implementation Science, 8, 22. https://doi.org/10.1186/1748-5908-8-22

    Article  Google Scholar 

  • Clark, L. A., Cuthbert, B., Lewis-Fernandez, R., Narrow, W. E., & Reed, G. M. (2017). Three approaches to understanding and classifying mental disorder: ICD-11, DSM-5, and the National Institute of Mental Health’s Research Domain Criteria (RDoC). Psychological Science in the Public Interest, 18(2), 72–145. https://doi.org/10.1177/1529100617727266

    Article  Google Scholar 

  • Escorpizo, R., Kostanjsek, N., Kennedy, C., Nicol, M. M., Stucki, G., & Ustun, T. B. (2013). Harmonizing WHO’s International Classification of Diseases (ICD) and International Classification of Functioning, Disability and Health (ICF): Importance and methods to link disease and functioning. BMC Public Health, 13, 742. https://doi.org/10.1186/1471-2458-13-742

    Article  Google Scholar 

  • Gologorsky, Y., Knightly, J. J., Lu, Y., Chi, J. H., & Groff, M. W. (2014). Improving discharge data fidelity for use in large administrative databases. Neurosurgical Focus, 36(6), E2. https://doi.org/10.3171/2014.3.Focus1459

    Article  Google Scholar 

  • Goodell, S., Druss, B. G., Walker, E. R., & Mat, M. (2011). Mental disorders and medical comorbidity. The synthesis project. (Policy Brief No. 21). Princeton, NJ: Robert Wood Johnson Foundation.

    Google Scholar 

  • Gotham, H. J. (2004). Diffusion of mental health and substance abuse treatments: Development, dissemination, and implementation. Clinical Psychology: Science and Practice, 11(2), 160–176. https://doi.org/10.1093/clipsy/bph067

    Article  Google Scholar 

  • Hanson, A. (2014). Illuminating the invisible voices in mental health policymaking. Journal of Medicine and the Person, 12(1), 13–18. https://doi.org/10.1007/s12682-014-0170-9

    Article  Google Scholar 

  • Hanson, A., & Levin, B. L. (2013). Mental health informatics. New York, NY: Oxford University Press.

    Google Scholar 

  • Health information technology standards, implementation specifications, and certification criteria and certification programs for health information technology, 45 CFR 170 Cong. Rec. (2011).

    Google Scholar 

  • Hoffman, S. J., Røttingen, J.-A., Bennett, S., Lavis, J. N., Edge, J. S., & Frenk, J. (2012, February 29). Background paper on conceptual issues related to health systems research to inform a WHO Global Strategy on Health Systems Research: A working paper in progress. Geneva, CH: World Health Organization. https://www.who.int/alliance-hpsr/alliancehpsr_hsrstrategy_conceptualpaper.pdf

  • Hosseini Shokouh, S. M., Arab, M., Emamgholipour, S., Rashidian, A., Montazeri, A., & Zaboli, R. (2017). Conceptual models of social determinants of health: A narrative review. Iranian Journal of Public Health, 46(4), 435–446.

    Google Scholar 

  • Hutter, M. F., Rodriguez-Ibeas, R., & Antonanzas, F. (2014). Methodological reviews of economic evaluations in health care: What do they target? The European Journal of Health Economics, 15(8), 829–840. https://doi.org/10.1007/s10198-013-0527-7

    Article  Google Scholar 

  • International Statistical Institute. (1893). International list of causes of death. Vienna, Austria: Author.

    Google Scholar 

  • International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders. (2011). A conceptual framework for the revision of the ICD-10 classification of mental and behavioural disorders. World Psychiatry, 10(2), 86–92.

    Article  Google Scholar 

  • Keeley, J. W., Reed, G. M., Roberts, M. C., Evans, S. C., Medina-Mora, M. E., Robles, R., … Saxena, S. (2016). Developing a science of clinical utility in diagnostic classification systems field study strategies for ICD-11 mental and behavioral disorders. American Psychologist, 71(1), 3–16. https://doi.org/10.1037/a0039972

    Article  Google Scholar 

  • Lutterman, T. C., Phelan, B. E., Berhane, A., Shaw, R., & Rana, V. (2008). Characteristics of state mental health agency data systems (DHHS Pub. No.(SMA) 08–4361). Rockville, MD: U.S. Department of Health & Human Services, Center for Mental Health Services. http://purl.fdlp.gov/GPO/gpo60094

  • Monto, S., Penttila, R., Karri, T., Puolakka, K., Valpas, A., & Talonpoika, A. M. (2016). Improving data collection processes for routine evaluation of treatment cost-effectiveness. Health Information Management, 45(1), 45–52. https://doi.org/10.1177/1833358316639451

    Article  Google Scholar 

  • Murray, C. J. L., Vos, T., Lozano, R., Naghavi, M., Flaxman, A. D., Michaud, C., … Memish, Z. A. (2012). Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990-2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet, 380(9859), 2197–2223. https://doi.org/10.1016/s0140-6736(12)61689-4

    Article  Google Scholar 

  • National Institutes of Health. (2003, February 26). Final NIH statement on sharing research data. NIH Guide for Grants and Contracts, NOT-OD-03-032, [HTML]. https://grants.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html

  • Nesvag, R., Jonsson, E. G., Bakken, I. J., Knudsen, G. P., Bjella, T. D., Reichborn-Kjennerud, T., … Andreassen, O. A. (2017). The quality of severe mental disorder diagnoses in a national health registry as compared to research diagnoses based on structured interview. BMC Psychiatry, 17(1), 93. https://doi.org/10.1186/s12888-017-1256-8

    Article  Google Scholar 

  • Obama, B. (2009). Memorandum of January 21, 2009: Transparency and open government: Memorandum for the heads of executive departments and agencies. Federal Register, 74(15), 4685–4686. https://www.govinfo.gov/content/pkg/FR-2009-01-26/pdf/E9-1777.pdf

    Google Scholar 

  • President’s New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America: Final report (DHHS publication no.). Rockville, MD: U. S. Department of Health and Human Services. http://www.eric.ed.gov/PDFS/ED479836.pdf

  • Prince, M., Patel, V., Saxena, S., Maj, M., Maselko, J., Phillips, M. R., & Rahman, A. (2007). No health without mental health. Lancet, 370(9590), 859–877. https://doi.org/10.1016/s0140-6736(07)61238-0

    Article  Google Scholar 

  • Rhodes, S. D., Bowie, D. A., & Hergenrather, K. C. (2003). Collecting behavioural data using the world wide web: Considerations for researchers. Journal of Epidemiology and Community Health, 57(1), 68–73.

    Article  Google Scholar 

  • Rosen, L. D., & Weil, M. M. (1997). The mental health technology bible. New York, NY: Wiley.

    Google Scholar 

  • Sujansky, W. V. (1998). The benefits and challenges of an electronic medical record: Much more than a “word-processed” patient chart. Western Journal of Medicine, 169(3), 176–183.

    Google Scholar 

  • Thomsen, S., Ng, N., Biao, X., Bondjers, G., Kusnanto, H., Liem, N. T., … Diwan, V. (2013). Bringing evidence to policy to achieve health-related MDGs for all: Justification and design of the EPI-4 project in China, India, Indonesia, and Vietnam. Global Health Action, 6, 19650. https://doi.org/10.3402/gha.v6i0.19650

    Article  Google Scholar 

  • Vest, J. R., Grannis, S. J., Haut, D. P., Halverson, P. K., & Menachemi, N. (2017). Using structured and unstructured data to identify patients’ need for services that address the social determinants of health. International Journal of Medical Informatics, 107, 101–106. https://doi.org/10.1016/j.ijmedinf.2017.09.008

    Article  Google Scholar 

  • Vos, T., Flaxman, A. D., Naghavi, M., Lozano, R., Michaud, C., Ezzati, M., … Memish, Z. A. (2012). Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990-2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet, 380(9859), 2163–2196. https://doi.org/10.1016/s0140-6736(12)61729-2

    Article  Google Scholar 

  • Whiteford, H., Ferrari, A., & Degenhardt, L. (2016). Global Burden of Disease studies: Implications for mental and substance use disorders. Health Affairs, 35(6), 1114–1120. https://doi.org/10.1377/hlthaff.2016.0082

    Article  Google Scholar 

  • Whiteford, H. A., Degenhardt, L., Rehm, J., Baxter, A. J., Ferrari, A. J., Erskine, H. E., … Vos, T. (2013). Global burden of disease attributable to mental and substance use disorders: Findings from the Global Burden of Disease Study 2010. Lancet, 382(9904), 1575–1586. https://doi.org/10.1016/s0140-6736(13)61611-6

    Article  Google Scholar 

  • Williams, N. J., Ehrhart, M. G., Aarons, G. A., Marcus, S. C., & Beidas, R. S. (2018). Linking molar organizational climate and strategic implementation climate to clinicians’ use of evidence-based psychotherapy techniques: Cross-sectional and lagged analyses from a 2-year observational study. Implementation Science, 13(1), 85. https://doi.org/10.1186/s13012-018-0781-2

    Article  Google Scholar 

  • World Health Organization. (2001a). The world health report 2001: Mental health: New understanding, new hope. https://www.who.int/whr/2001/en/whr01_en.pdf?ua=1

  • World Health Organization. (2001b). ICF: International classification of functioning, disability and health. Geneva, CH: Author.

    Google Scholar 

  • World Health Organization. (2010). Monitoring the building blocks of health systems: A handbook of indicators and their measurement strategies. Geneva, CH: Author. https://www.who.int/healthinfo/systems/WHO_MBHSS_2010_full_web.pdf

    Google Scholar 

  • World Health Organization. (2016). Global monitoring of action on the social determinants of health: A proposed framework and basket of core indicators [consultation paper]. Geneva, CH: Author. https://www.who.int/social_determinants/consultation-paper-SDH-Action-Monitoring.pdf?ua=1

  • World Health Organization. (2017). International classification of functioning, disability and health. [Interactive Online Web Site]. Geneva, CH: Author. http://apps.who.int/classifications/icfbrowser/Default.aspx

  • World Health Organization. (2018a). ICD-11 reference guide. [Interactive Online Book]. Geneva, CH: Author. https://icd.who.int/browse11/content/refguide.ICD11_en/html/index.html#1.1.0Part1purposeandmultipleusesofICD|part-1-what-is-icd-11|c1

    Google Scholar 

  • World Health Organization. (2018b). International classification of diseases and related health problems. 11th. [Interactive Online Web Site]. Geneva, CH: Author. https://icd.who.int/

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Ardis Hanson .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2020 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Hanson, A., Levin, B.L. (2020). Challenges with Behavioral Health Services Research Data. In: Levin, B.L., Hanson, A. (eds) Foundations of Behavioral Health. Springer, Cham. https://doi.org/10.1007/978-3-030-18435-3_6

Download citation

Publish with us

Policies and ethics