Abstract
The IOM’s call for patients to be the source of control in their care has been represented differently at different times. The patient as the source of control has evolved from the clinician’s taking the patient’s preferences and values into account in designing care to a partnership between the clinician and the patient in making the choices necessary to plan care. This is a particularly challenging standard because both health professionals and many of their patients have been socialized to the model of the doctor leading care. Their difference in knowledge and in their perspective on the patient’s illness makes partnership difficult. This makes partnership challenging, even if the difference in levels of knowledge about the patient’s illness is reduced. Motivational interviewing, shared decision-making, minimally disruptive medicine, addressing health literacy, relationship-centered care, and coaching patients to be more assertive in relating to their physician, each of these approaches can be an important contribution, and each one demands extra attention and time to be effectively implemented. For some patients with particularly complex health situations, additional expertise on the part of the healthcare team is necessary to impact their health outcomes.
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsNotes
- 1.
The Social Determinants of Health as listed by Healthy People 2020 [55] are economic stability, the neighborhood and built environment, access to healthcare, social and community context, and education.
References
Frampton S, Guastello S, Hoy L, Naylor M, Sheridan S, Johnston-Fleece M. Harnessing evidence and experience to change culture: a guiding framework for patient and family engaged care. National Institute of Medicine. 2017. https://nam.edu/harnessing-evidence-and-experience-to-change-culture-a-guiding-framework-for-patient-and-family-engaged-care/
Kuzel AJ, Woolf SH, Gilchrist VJ, Engel JD, LaVeist TA, Vincent C, Frankel RM. Patient reports of preventable problems and harms in primary health care. Ann Fam Med. 2004;2(4):333–40.
Elder NC, Imhoff R, Chubinski J, et al. Congruence of patient self-rating of health with family physician ratings. JABFM. 2017;30:196–204.
Kruse RL, Olsberg JE, Shigaki CL, Oliver D, Vetter-Smith M, Day T, LeMaster J. Communication during patient-provider encounters regarding diabetes self-management. Fam Med. 2013;45:475–83.
Parker RM. Health literacy: a challenge for American patients and their healthcare providers. Health Promot Int. 2000;15:277–91.
Hayes MV, Ross IE, Gashner M, Gutstgein D. Telling stories: news media, health literacy and public policy in Canada. Soc Sci Med. 2007;64:1842–52.
Institute of Medicine. Health literacy: a prescription to end confusion. Washington, DC: National Academies Press; 2004.
Nutbeam D. The evolving concept of health literacy. Soc Sci Med. 2008;67:2072–6.
Paasche-Orlow MK, Wolf MS. The causal pathway lining healthy literacy to health outcomes. Am J Health Behav. 2007;31:S19–26.
Miller WR, Rollnick S. Motivational Interviewing, Helping People Change. 3rd ed. New York: Guilford Press; 2012.
Prochaska JO, DiClemente CC. The Transtheoretical approach: towards a systematic eclectic framework. Homewood: Dow Jones Irwin; 1984.
Miller WR, Rollnick S. Motivational Interviewing: Preparing People to Change Addictive Behavior. New York: Guilford Press; 1991.
Rauch J. How not to die. The Atlantic. May, 2013: 65–69.
Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288:2469–75.
Guadagnoli E, Ward P. Patient participation in decision-making. Soc Sci Med. 1998;47:329–39.
Devine EC, Cook TD. A meta-analytic analysis of effects of psychoeducational interventions on length of postsurgical hospital stay. Nurs Res. 1983;32:267-274.
Stiggelbout AM, Van der Weijden T, De Wit MPT, et al. Shared decision making: really putting patients at the centre of healthcare. BMJ. 2012;344:1–6.
Onel E, Hamond C, Wasson JH, et al. Assessment of the feasibility and impact of shared decision making in prostate cancer. Urology. 1998;51:63–6.
Elwyn G, Dehlendorf C, Epstein RM, Marrin K, White J, Frosch DL. Shared decision making and motivational interviewing: achieving patient-centered care across the spectrum of health care problems. Ann Fam Med. 2014;12:270–5.
O’Connor AM, Legare F, Stacey D. Risk communication in practice: the contribution of decision aids. BMJ. 2003;327:736–40. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC200814/
Cvengros JA, Christensen AJ, Hillis SL, Rosenthal GE. Patient and physician attitudes in the health care context: attitudinal symmetry predicts patient satisfaction and adherence. Ann Behav Med. 2007;33:262–5.
Barry MJ, Edgman-Levitan S. Shared decision making – the pinnacle of patient-centered care. N Engl J Med. 2012;366:780–1.
Lagare F, Stacey D, Turcotte S, et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2014. http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD006732.pub3/full
Couët N, Desroches S, Robitaille H, Vaillancourt H, Leblanc A, Turcotte S, et al. Assessments of the extent to which health-care providers involve patients in decision making: a systematic review of studies using the OPTION instrument. Health Expectations. 2015;18:542–61.
Leppin AL, Montori VM, Gionfriddo MR. Minimally disruptive medicine: a pragmatically comprehensive model for delivering care to patients with multiple chronic conditions. Healthcare. 2015;3:50–63.
Jowsey T, Yen L, Mathews WP. Time spent on health-related activities associated with chronic illness: a scoping literature review. BMC Public Health. 2012;12:1044.
Shippee ND, Shah ND, May CR, Mair FS, Montori VM. Cumulative complexity: a functional, patient-centered model for patient complexity can improve research and practice. J Clin Epidemiol. 2012;65:1041–51.
Leppin AL, Gionfriddo MR, Kessler M, et al. Preventing 30-day hospital readmissions: a systematic review and meta-analysis of randomized trials. JAMA Intern Med. 2014;174:1095–107.
Kiecolt-Glaser JK, Fisher LD, Grocki P, Stout J, Speicher C, Glaser R. Marital quality, marital disruption, and immune function. Psychosom Med. 1987;49:13–34.
Uchino BN, Cacioppo JT, Kiecolt-Glaser JK. The relationship between social support and physiological processes: a review with emphasis on underlying mechanisms and implications for health. Psychol Bull. 1996;119:488–531.
Rakel DP, Hoeft TJ, Barrett BP, et al. Practitioner empathy and the duration of the common cold. Fam Med. 2009;41:494–501.
Rossland A, Heisler M, Piette JD. The impact of family behaviors and communication patterns on chronic illness outcomes: a systematic review. J Behav Med. 2012;35:221–39.
Kaplan SH, Greenfield S, Ware JE. Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Med Care. 1989;27:S110–27.
Haug MR, Lavin B. Public challenge of physician authority. Med Care. 1979;17:429.
Vertinsky JB, Thompson WA, Uyeno D. Measuring consumer desire for participation in clinical decision-making. Health Serv Res. 1974;15:121.
Woolley FR, Kane RI, Hughes CC, et al. The effects of doctor-patient communication on satisfaction and outcome of care. Soc Sci Med. 1978;12:123.
Patrick DL, Scrivens E, Charlton J. Disability and patient satisfaction with medical care. Med Care. 1983;21:1062.
Belkora J, Edlow B, Aviv C, Sepucha K, Esserman L. Training community resource center and clinic personnel to prompt patients in listing questions for doctors: follow-up interviews about barriers and facilitators to the implementation of consultation planning. Implement Sci. 2008;3:6.
Adelman AM, Graybill M. Integrating a health coach into primary care: reflections from the Penn State ambulatory research network. Ann Fam Med. 2005;3:S33–5.
Tresolini CP. Pew-Fetzer task force on advancing psychosocial health education. Health Professions Education and Relationship-Centered Care. 1994. Pew Health Professions Commission, GoogleBooks.com: San Francisco.
Beach MC, Inui T, The Relationship-Centered Research Network. Relationship-centered care: a constructive reframing. J Gen Intern Med. 2006;21:S3–8.
Soklareidis S, Ravitz P, Nevo GA, Lieff S. Relationship-centered care in health: a 20-year scoping review. Patient Exp J. 2016;3:130–45.
Suchman AL, Sluyter DJ, Williamson PR, editors. Leading change in healthcare. London: Radcliffe Publishing; 2011.
Watzlawick P, Bavelas JB, Jackson DD. Pragmatics of human communication. New York: W. W. Norton; 1967.
Miller WR. Living as if. Philadelphia: Westminster Press; 1985.
Carney DR, Cuddy AJC, Yap AJ. Brief nonverbal displays affect neuroendocrine levels and risk tolerance. Psychol Sci. 2010;21:1363–8.
Ryan P, Sawin KJ. The individual and family self-management theory: background and perspectives on context, process, and outcomes. Nurs Outlook. 2009;57:217–25.
Weihs K, Fisher L, Baird M. Families, health, and behavior. Fam Syst Health. 2002;20:7–46.
Lewis N, Gray SW, Freres DR, Hornik RC. Examining cross-source engagement with cancer-related information and its impact on doctor-patient relations. Health Commun. 2009;24:723–34.
Kleinman A, Eisenberg L, Good B. Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Ann Intern Med. 1978;88:251–8.
Siminoff LA. Incorporating patient and family preferences into evidence-based medicine. BMC Med Inform Decis Mak. 2013;13:S6.
Arpin K, Fitch M, Browne GB, Corey P. Prevalence and correlates of family dysfunction to chronic illness in specialty clinics. J Clin Epidemiol. 1990;3:373–83.
Medalie JH, Goldbourt U. Angina pectoris among 10,000: psychosocial and other risk factors as evidenced by a multivariate analysis of a five-year incidence study. Am J Med. 1976;60:910–21.
Morisky DE, DeMuth NM, Field-Fass M, Green LW, Levine DM. Evaluation of family health education to build social support for long-term control of high blood pressure. Health Educ Q. 1985;12:35–50.
Mittleman MS, Ferris SH, Mackell JA, Ambinder A, Cohen J. An intervention that delays institutionalization of Alzheimer’s disease patients: treatment of spouse caregiver. The Gerontologist. 1993;35:792–802.
Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academies Press; 2001.
Healthy People 2020. www.HealthyPeople.gov
Resources
Patients Advocating for Patient Participation
Health Literacy Resources
From the Office of Disease Prevention and Health Promotion: https://health.gov/communication/literacy/quickguide/healthinfo.htm
Chronic pain tools for patients with low reading levels. http://pmt.ua.edu/publications.html
Agency for Healthcare Research and Quality health literacy toolkit for health systems. https://www.ahrq.gov/professionals/quality-patient-safety/quality-resources/tools/literacy-toolkit/index.html
Videos on Culture and Health Literacy: https://www.thinkculturalhealth.hhs.gov/resources/videos
Agency for Healthcare Quality and Research offers a guide for improving patient-provider communication https://www.ahrq.gov/professionals/systems/hospital/engagingfamilies/strategy2/index.html.
Motivational Interviewing Resources
Motivational Interviewing Network of Trainers website with links to a great many resources: http://motivationalinterviewing.org/motivational-interviewing-resources
The Ineffective Physician and The Effective Physician: https://video.search.yahoo.com/search/video?fr=tightropetb&p=the+ineffective+physician#id=1&vid=1278e1c1e056216608ff888a44b71dba&action=click; https://video.search.yahoo.com/search/video?fr=tightropetb&p=videos+of+motivational+interviewing#id=5&vid=670307f45b4db2c085ab9411dd4a0b0b&action=click
“Stages of Change Model” in medical settings. Outline: http://www.currentnursing.com/nursing_theory/transtheoretical_model.html
Shared Decision-Making Resources
For Professionals
AHRQ. The SHARE approach. 2017. https://www.ahrq.gov/professionals/education/curriculum-tools/shareddecisionmaking/index.html
Tools from Massachusetts General Hospital. http://www.massgeneral.org/decisionsciences/research/Choice_Report.aspx
Ottawa Hospital Patient Decision Aides and the Healthwise Knowledgebase. https://decisionaid.ohri.ca/azinvent.php. The Healthwise Knowledgebase is intended for professional evaluation and not intended for distribution directly to patients or consumers.
PCORI database of articles on the benefits of patient engagement: https://www.pcori.org/literature/engagement-literature?f%5B0%5D=field_article_phases%3A470&f%5B1%5D=field_article_phases%3A473#search-results
Decisional Aids for Patients
https://shareddecisions.mayoclinic.org/. Mayo Clinic Shared Decision-Making National Resource Center. 1/27/18 offers tool kits for 8 conditions.
Best access to multiple medical decision aids websites: http://www.dartmouth-hitchcock.org/supportive-services/patient-resources.html
Minimally Disruptive Medicine
Blog and connecting point for those interested—www.minimallydisruptivemedicine.org
Author information
Authors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Blount, A. (2019). Getting from “Delivering Care to Patients” to “Partnership with Patients”. In: Patient-Centered Primary Care. Springer, Cham. https://doi.org/10.1007/978-3-030-17645-7_4
Download citation
DOI: https://doi.org/10.1007/978-3-030-17645-7_4
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-17644-0
Online ISBN: 978-3-030-17645-7
eBook Packages: MedicineMedicine (R0)