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Reframing Disability and Quality of Life

A Global Perspective

  • Narelle Warren
  • Lenore Manderson

Part of the Social Indicators Research Series book series (SINS, volume 52)

Table of contents

  1. Front Matter
    Pages i-xv
  2. Narelle Warren, Lenore Manderson
    Pages 1-16
  3. Elisha P. Renne
    Pages 39-59
  4. Helle Ploug Hansen, Tine Tjørnhøj-Thomsen
    Pages 79-93
  5. Athena Demertzi, Olivia Gosseries, Didier Ledoux, Steven Laureys, Marie-Aurélie Bruno
    Pages 95-110
  6. Carolyn Smith-Morris, Gilberto Lopez, Lisa Ottomanelli, Lance Goetz
    Pages 145-162
  7. Victoria Team, Milica Markovic
    Pages 195-210
  8. Back Matter
    Pages 233-243

About this book

Introduction

Chronic conditions and physical impairments can take a psychological, social and economic toll, and are assumed to diminish a person’s quality of life. But ‘quality of life’ is an ambiguous phrase. Some use the term as an indicator for successful and high quality health services, including good access to medical attention and surgery; others use the term to argue against medical interventions that are seen to prolong life for its own sake. The meaning of ‘quality of life’ varies from person to person, and so is contextually fluid: it may be shaped by health status, presence or absence of pain, happiness and acceptance, or fluctuations in social and economic status. The authors in this book offer a unique and timely collection of papers that address many of these issues, in the context of the lived experience and subjective wellbeing of people with a range of medical conditions from very different cultural and economic environments.  In doing so, they address the limits of psychometric measurement and the challenges in generating information about quality of life and wellbeing at both individual and population levels.  Authors confront the obstacles of interpreting health outcomes among people of different cultures, ages, genders and health statuses, so supplementing quantitative data with rich ethnographic discussion and illustrating the value of mixed methods research. This book is fundamental to the emerging debates related to individual health outcomes. In striving to understand the broader contextual factors of chronic illness and disability, this volume will contribute to our knowledge of the services, support systems and infrastructure that provide a higher quality of life to people, regardless of their physical health, capability and functioning.

Keywords

Amputation Anthropology Aphasia Argentina Australia Belgium Cancer Survival Caring Childhood Leukemia Chronic Conditions Cyprus Denmark Dialysis Disability End of Life Global Perspective Grief Identity Injury Kidney Transplantation Locked in Syndrome Medical Mobility Nigeria Physical Impairments Polio Quality of Life Recalcitrance Resilience South Africa Spinal Cord Stroke Traumatic Injury USA United Kingdom Veterans

Editors and affiliations

  • Narelle Warren
    • 1
  • Lenore Manderson
    • 2
  1. 1., Social Science and Health research UnitMonash UniversityCaulfield EastAustralia
  2. 2., Social Science and Health Research unit,Monash UniversityCaulfield EastAustralia

Bibliographic information

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