Overview
Provides a revealing explanation of and argument for the importance of benefit sharing in genetic research
Presents a condensed summary of the specific concerns faced by indigenous peoples in genetic research, including recommendations
Features guidelines for dealing with ethical concerns such as undue inducement, which are essential to developing world genetic research
Includes supplementary material: sn.pub/extras
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Table of contents (9 chapters)
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Front Matter
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Back Matter
Keywords
About this book
The main question explored by the book is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed in such a way as to achieve equity for vulnerable populations in developing countries? The book situates the field of genomic and genetic research within global health and research frameworks, describing the concerns that have been raised about the potential unfairness in exchanges during recent decades. Access to and sharing in the benefits of human biological resources are aspects not regulated by any international legal framework such as the Convention on Biological Diversity, which applies only to the exchange of plants, animals and microorganisms, as well as to associated traditional knowledge. Examples of genetic research perceived as exploitative are provided in order to illustrate the legal vacuum concerning the global governance of human genetic resources. The main conclusions drawn from the legal and ethical analysis are:
• Benefit sharing is crucial in order to avoid the exploitation of developing countries in human genetic research.
• With functioning research ethics committees, undue inducement is less of a concern in genetic research than in other areas of medical research (e.g. clinical trials).
• Concerns remain over research involving indigenous populations; accordingly, recommendations are provided.
In drawing these conclusions, the book addresses in detail a highly pressing topic in global bioethics and international law. In this regard, it combines bioethical arguments with jurisprudence, in particular with reference to the law of equity and the legal concepts of duress (coercion), unconscionable dealing, and undue inducement.
Authors and Affiliations
Bibliographic Information
Book Title: Equitable Access to Human Biological Resources in Developing Countries
Book Subtitle: Benefit Sharing Without Undue Inducement
Authors: Roger Scarlin Chennells
DOI: https://doi.org/10.1007/978-3-319-19725-8
Publisher: Springer Cham
eBook Packages: Medicine, Medicine (R0)
Copyright Information: Springer International Publishing Switzerland 2016
Hardcover ISBN: 978-3-319-19724-1Published: 27 July 2015
Softcover ISBN: 978-3-319-36974-7Published: 15 October 2016
eBook ISBN: 978-3-319-19725-8Published: 17 July 2015
Edition Number: 1
Number of Pages: XIX, 197
Topics: Theory of Medicine/Bioethics, Theories of Law, Philosophy of Law, Legal History, Social Structure, Social Inequality, Medical Law