© 2017

Patient Involvement in Health Technology Assessment

  • Karen M. Facey
  • Helle Ploug Hansen
  • Ann N.V. Single
  • The first book about patient involvement in relation to HTA

  • Engages a wide range of international experts to write chapters to give academic, policy, HTA practice and patient organisation perspectives that are focussed on HTA

  • Arranged in 3 distinct sections - policy foundation, case studies of current experience and methods to obtain patients' perspectives - allowing readers to delve into what is of interest


Table of contents

  1. Front Matter
    Pages i-xxvi
  2. Conceptualisation

    1. Front Matter
      Pages 1-1
    2. Karen M. Facey
      Pages 3-16
    3. Lars Sandman, Kenneth Bond, Björn Hofmann
      Pages 17-29
    4. Helle Ploug Hansen, Jackie Street
      Pages 31-42
    5. Sophie Staniszewska, Sophie Werkö
      Pages 43-50
    6. Karen M. Facey, Ann N. V. Single
      Pages 67-79
    7. Vikki A. Entwistle, Stacy M. Carter
      Pages 81-86
  3. Methodologies

    1. Front Matter
      Pages 87-87
    2. Kirstie L Haywood, Maarten de Wit, Sophie Staniszewska, Thomas Morel, Sam Salek
      Pages 103-120
    3. Antje Tockhorn-Heidenreich, Mandy Ryan, Rodolfo Hernández
      Pages 121-133
    4. Marion Danner, Andreas Gerber-Grote
      Pages 135-147
    5. Tine Tjørnhøj-Thomsen, Helle Ploug Hansen
      Pages 149-163
    6. Jackie M. Street, Edilene Lopes
      Pages 165-173
    7. Jackie Street, Lucy Farrell
      Pages 175-185
    8. Andrew Booth
      Pages 187-199
    9. Marie-Pierre Gagnon, Mylène Tantchou Dipankui, Deirdre DeJean
      Pages 201-213

About this book


‘If you’re not involving patients, you're not doing HTA!’ - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA

This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences.

Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach.

With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.


Health policy Patient experience Patient participation Patient perspectives Pharmacoeconomics Qualitative research

Editors and affiliations

  • Karen M. Facey
    • 1
  • Helle Ploug Hansen
    • 2
  • Ann N.V. Single
    • 3
  1. 1.No. 9 BioquarterUsher Institute of Population Health Sciences and Informatics, University of EdinburghEdinburghUnited Kingdom
  2. 2.Department of Public HealthResearch Unit of General Practice, University of Southern Denmark, Institute of Public HealthOdenseDenmark
  3. 3.Patient and Citizen Involvement InterestHTAiAshgroveAustralia

About the editors

Karen Facey PhD is an Honorary Research Fellow at the University of Edinburgh, Chartered Statistician, Honorary Member of the Faculty of Public Health and Fellow of the Royal Society of Medicine. She has worked as a statistician for pharmaceutical companies and the UK medicines regulatory agency. In 2000 she setup the first national health technology assessment (HTA) Agency in Scotland and since 2003 has been an independent consultant. She has been active in HTA International (HTAi) for the past decade, chairing its Policy Forum and was founding Chairperson of the HTAi Interest Group for Patient and Citizen Involvement in HTA. She is on the editorial board of several journals including The Patient and Research Involvement and Engagement. She has research interests in HTA policy, patient involvement and rare diseases. In 2014 she was named as one of the top 100 practising scientists in the UK for her work on HTA and patient wellbeing.

Helle Ploug Hansen, PhD, MA is professor in humanistic rehabilitation research, the University of Southern Denmark, Department of Public Health, Denmark. She holds a Ph.D. degree and an extended master degree in Anthropology from the University of Copenhagen. She has been active within the field of HTA since 2001, and among other things been the author of several chapters in the Danish Handbook of HTA. Furthermore Hansen has edited a special issue in the International Journal of Technology Assessment in Health Care together with Karen Facey. She has conducted several ethnographic fieldwork studies in Denmark addressing psycho-social and rehabilitative aspects related to men and women with cancer. She has published several books and many peer-reviewed articles. She is visiting professor in nursing at a rehabilitation hospital in Oslo, Norway.

Ann Single, B.Bus (Journalism) MA (Writing), specialises in patient involvement and communication. She has been an active member of the HTAi Interest Group for Patient and Citizen Involvement in HTA for the past decade and a lay reviewer for several journals. She has previously worked as the director of communication and patient involvement at the Health Technology Board for Scotland, managed science engagement programmes in Australia, and served as secretary for a patient group. She has contributed to a variety of papers on patient involvement and tools for patient participation including compiling a glossary of HTA terms for patients. She is interested in storytelling, especially what can be learnt from the stories of patients and care-givers.

Bibliographic information

  • Book Title Patient Involvement in Health Technology Assessment
  • Editors Karen M. Facey
    Helle Ploug Hansen
    Ann N.V. Single
  • DOI
  • Copyright Information Springer Nature Singapore Pte Ltd. 2017
  • Publisher Name Adis, Singapore
  • eBook Packages Medicine Medicine (R0)
  • Hardcover ISBN 978-981-10-4067-2
  • Softcover ISBN 978-981-13-5039-9
  • eBook ISBN 978-981-10-4068-9
  • Edition Number 1
  • Number of Pages XXVI, 434
  • Number of Illustrations 5 b/w illustrations, 15 illustrations in colour
  • Topics Pharmacoeconomics and Health Outcomes
    Public Policy
  • Buy this book on publisher's site
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