Biobanks and Tissue Research

The Public, the Patient and the Regulation

  • Christian Lenk
  • Judit Sándor
  • Bert Gordijn

Part of the The International Library of Ethics, Law and Technology book series (ELTE, volume 8)

Table of contents

  1. Front Matter
    Pages i-viii
  2. Biobanks, Tissue Research and the Public

  3. The Rights of Donors and Patients

    1. Front Matter
      Pages 79-79
    2. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Serepkaite
      Pages 95-110
    3. Emma Bullock, Heather Widdows
      Pages 111-125
    4. Claudio Tamburrini
      Pages 127-140
  4. Regulation of Tissue Research

    1. Front Matter
      Pages 141-141
    2. Renzo Pegoraro, Alessandra Bernardi, Fabrizio Turoldo
      Pages 185-200
    3. Judit Sándor, Petra Bárd
      Pages 213-230
  5. Back Matter
    Pages 231-238

About this book


The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.



Biobank Ethics Law Patient Rights Tissue Research

Editors and affiliations

  • Christian Lenk
    • 1
  • Judit Sándor
    • 2
  • Bert Gordijn
    • 3
  1. 1.GöttingenGermany
  2. 2.Central European UniversityBudapestHungary
  3. 3.Dublin City UniversityDublin 9Ireland

Bibliographic information

  • DOI
  • Copyright Information Springer Science+Business Media B.V. 2011
  • Publisher Name Springer, Dordrecht
  • eBook Packages Medicine Medicine (R0)
  • Print ISBN 978-94-007-1672-8
  • Online ISBN 978-94-007-1673-5
  • Series Print ISSN 1875-0044
  • Series Online ISSN 1875-0036
  • Buy this book on publisher's site
Industry Sectors
Health & Hospitals
Surgery & Anesthesiology