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© 2018

Health Care Transition

Building a Program for Adolescents and Young Adults with Chronic Illness and Disability

  • Albert C. Hergenroeder
  • Constance M. Wiemann
Book

Table of contents

  1. Front Matter
    Pages i-xvii
  2. Introduction

  3. The Adolescent and Young Adult: A Developmental Perspective

  4. Personal and Professional Perspectives on Healthcare Transition

    1. Front Matter
      Pages 31-31
    2. Isabel Yuriko Stenzel Byrnes
      Pages 33-42
    3. Nathan Samras, Janet Ma, Stacey Weinstein, Alice A. Kuo
      Pages 65-74
    4. Beth Sufian, James Passamano, Amy Sopchak
      Pages 75-83
  5. Developing a Healthcare Transition Program

    1. Front Matter
      Pages 85-85
    2. Kathy Sanabria, James Harisiades, Rebecca Boudos, Parag Shah
      Pages 99-105
    3. Roberta G. Williams, Ellen F. Iverson
      Pages 107-112
    4. Lisa A. Schwartz, Alexandra M. Psihogios, Emily M. Fredericks
      Pages 119-128
    5. Constance M. Wiemann, Albert C. Hergenroeder
      Pages 129-138
    6. Megumi J. Okumura, Ian S. Harris, Mary Ellen Kleinhenz
      Pages 139-148

About this book

Introduction

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives.

Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study.

Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.


Keywords

Adolescent Chronic Illness Disability young adults systems of care health care transition

Editors and affiliations

  • Albert C. Hergenroeder
    • 1
  • Constance M. Wiemann
    • 2
  1. 1.Associate Professor, Director of Research, Section of Adolescent Medicine and Sports Medicine, Department of PediatricsBaylor College of Medicine, Texas Children’s HospitalHoustonUSA
  2. 2.Professor, Chief of Adolescent Medicine, Section of Adolescent Medicine and Sports Medicine, Department of PediatricsBaylor College of Medicine, Texas Children’s HospitalHoustonUSA

About the editors

Constance M. Wiemann, PhD

Associate Professor, Director of Research

Section of Adolescent Medicine and Sports Medicine

Department of Pediatrics

Baylor College of Medicine

Texas Children’s Hospital

Houston, Texas

 

Albert C. Hergenroeder, MD

Professor, Chief of Adolescent Medicine

Section of Adolescent Medicine and Sports Medicine

Department of Pediatrics

Baylor College of Medicine

Texas Children’s Hospital

Houston,  Texas 


Bibliographic information