The Ethics of Biomedical Big Data

  • Brent Daniel  Mittelstadt
  • Luciano Floridi

Part of the Law, Governance and Technology Series book series (LGTS, volume 29)

Table of contents

  1. Front Matter
    Pages i-xvi
  2. Brent Daniel Mittelstadt, Luciano Floridi
    Pages 1-13
  3. Balancing Individual and Collective Interests

  4. Privacy and Data Protection

  5. Consent

    1. Front Matter
      Pages 169-169
    2. Markus Christen, Josep Domingo-Ferrer, Bogdan Draganski, Tade Spranger, Henrik Walter
      Pages 199-218
  6. Ethical Governance

  7. Professionalism and Ethical Duties

  8. Foresight

About this book


This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.


Big Governance Biological Samples Ethico-sociological landscapes Ethics of Biomedical Big Data Information Carriers Intensified Data Sourcing Mental health research Use of electronic health records

Editors and affiliations

  • Brent Daniel  Mittelstadt
    • 1
  • Luciano Floridi
    • 2
  1. 1.Oxford Internet InstituteUniversity of OxfordOxfordUnited Kingdom
  2. 2.Oxford Internet InstituteUniversity of OxfordOxfordUnited Kingdom

Bibliographic information