Table of contents

  1. Front Matter
    Pages i-xiv
  2. Susan Dodds, Rachel A. Ankeny
    Pages 1-8
  3. Seeing the Big Picture: Democratically Defensible Policy Development in Liberal Democracies

  4. Regulation of Embryo Research

    1. Front Matter
      Pages 71-71
    2. Françoise Baylis, Matthew Herder
      Pages 73-105
  5. Human Research Ethics Guidelines

    1. Front Matter
      Pages 131-131
    2. Colin Thomson, Kerry J. Breen, Donald Chalmers
      Pages 165-190
  6. Deliberating About Emerging Health Policy

    1. Front Matter
      Pages 225-225
    2. Jackie M. Street, Helen Marshall, Annette J. Braunack-Mayer, Wendy A. Rogers, Philip Ryan, FluViews Team
      Pages 245-261
    3. Michael M. Burgess, Holly Longstaff, Kieran O’Doherty
      Pages 263-278

About this book


This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only about appropriate outcomes, but even what values are at stake? What constitutes justified, democratic policy in such conflicted domains? Case studies from Canada and Australia demonstrate that two countries sharing historical and institutional characteristics can reach different policy responses.

This book is of interest to policymakers, bioethicists, and philosophers, and will deepen our understanding of the interactions between large-scale socio-political forces and detailed policy problems in bioethics.


policy development in liberal democracies consience votes legislating bioethics democratic theory regulation of embryo research embryo research in Canada human research ethics guidelines consultation and deliberation emerging health policies clinical practice guidelines chronic fatigue syndrome deliberative processes biobanks deliberation and representation

Editors and affiliations

  • Susan Dodds
    • 1
  • Rachel A. Ankeny
    • 2
  1. 1.Faculty of Arts and Social Sciences, School of HumanitiesUNSW Australia, University of TasmaniaHobartAustralia
  2. 2.School of HumanitiesUniversity of AdelaideAdelaideAustralia

Bibliographic information

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