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© 2016

Congenital Heart Disease and Adolescence

  • Markus Schwerzmann
  • Corina Thomet
  • Philip Moons
  • Provides detailed information on aspects of adolescence of importance in the setting of congenital heart disease (CHD)

  • Explains how to organize care so that the needs of adolescents with CHD are fully met

  • Written for a broad audience bearing in mind that care is an interdisciplinary task

Book

Part of the Congenital Heart Disease in Adolescents and Adults book series (CHDAA)

Table of contents

  1. Front Matter
    Pages i-xiv
  2. Epidemiology

    1. Front Matter
      Pages 1-1
    2. Efrat Mazor Dray, Ariane J. Marelli
      Pages 3-14
    3. Werner Budts, Alexandra Frogoudaki
      Pages 15-26
  3. Anatomy and Physiology

    1. Front Matter
      Pages 27-27
    2. Julie De Backer, Daniel De Wolf
      Pages 29-42
    3. Jan Müller, Alfred Hager
      Pages 43-57
  4. Adolescence

    1. Front Matter
      Pages 59-59
    2. Marijke Miatton, Iemke Sarrechia
      Pages 61-82
    3. Jamie L. Jackson, Karolijn Dulfer, Elisabeth M. W. J. Utens
      Pages 83-93
    4. Christoph Rutishauser
      Pages 95-112
  5. Organization of Care for Adolescents

    1. Front Matter
      Pages 113-113
    2. Eva Goossens, Mark D. Norris
      Pages 115-127
    3. Eva Goossens, Lynda Davies Shaughnessy
      Pages 129-144
    4. Keila N. Lopez, Andrew S. Mackie
      Pages 145-161
    5. Arpad von Moers
      Pages 163-180
    6. Edward Callus, Emilia Quadri, Jamie L. Jackson, Elisabeth M. W. J. Utens, Karolijn Dulfer
      Pages 181-190
    7. Adrienne H. Kovacs, Geraldine Cullen-Dean, Luke J. Burchill, Arwa Saidi
      Pages 191-203
  6. Research in Adolescents

    1. Front Matter
      Pages 205-205
    2. Janet E. McDonagh, Gail Dovey-Pearce
      Pages 207-221

About this book

Introduction

This book provides medical care givers with detailed information on those aspects of adolescence that are of significance in the setting of congenital heart disease (CHD), from anatomic and physiologic changes to behavioral issues. In addition, it explains how care should be organized in order to ensure that the needs of adolescents with CHD are fully met. Both theoretical and practical aspects of the switch from a pediatric to an adult health perspective in CHD patients are outlined in detail, drawing attention to the importance of a structured transition plan and other best practices. As the survival of children with complex CHD improves further, the number of adolescents with CHD will continue to grow. Awareness of the challenges that these patients face is essential if they are to be appropriately prepared to assume adult roles and functioning. Readers will find Congenital Heart Disease and Adolescence to be an excellent source of relevant knowledge and guidance. It has been written for a broad audience, bearing in mind that care in adolescents is an interdisciplinary task involving close collaboration among physicians, specialists, nurses, patients, and relatives.

Keywords

Adolescent medicine Behavioral issues Cardiac physiology Complex CHD Exercise physiology Physical changes in adolescence Transition plan Transition program

Editors and affiliations

  • Markus Schwerzmann
    • 1
  • Corina Thomet
    • 2
  • Philip Moons
    • 3
  1. 1.Center for Congenital Heart DiseaseUniversity Hospital InselspitalBernSwitzerland
  2. 2.Center for Congenital Heart DiseaseUniversity Hospital InselspitalBernSwitzerland
  3. 3.Department of Public Health and Primary CareKU Leuven – University of Leuven, Leuven, Belgium and Institute of Health and Care Sciences, University of GothenburgGothenburgSweden

About the editors

Markus Schwerzmann, MD, trained in Adult Congenital Heart Disease in Toronto. He is currently head of the Center for Congenital Heart Disease at the University Hospital Inselspital in Bern, Switzerland. In Bern, children and adults with congenital heart disease are jointly followed in the same center by pediatric and adult congenital cardiologists. His research interests are transition and clinical outcome in adult congenital heart disease.

Corina Thomet, RN, MScN is responsible for the transition program for youth and young adults followed at the Center for Congenital Heart Disease, University Hospital Inselspital, in Bern, Switzerland. Her main interests in clinical work and research are how to foster patient education, improve patient participation and strengthen self-management competencies.

Dr. Philip Moons is Professor of Healthcare and Nursing Sciences at the KU Leuven - University of Leuven, Belgium, and Visiting Professor at the University of Gothenburg, Sweden. Dr. Moons is mainly involved in outcome and quality of life research in congenital heart disease, and developed and implemented the role of advanced practice nurse in the Adult Congenital Heart Disease Program of the University Hospitals of Leuven. The spearhead of his research is ‘Transition and Care’.

Bibliographic information

  • Book Title Congenital Heart Disease and Adolescence
  • Editors Markus Schwerzmann
    Corina Thomet
    Philip Moons
  • Series Title Congenital Heart Disease in Adolescents and Adults
  • Series Abbreviated Title Congenital Heart Disease in Adolescents and Adults
  • DOI https://doi.org/10.1007/978-3-319-31139-5
  • Copyright Information Springer International Publishing Switzerland 2016
  • Publisher Name Springer, Cham
  • eBook Packages Medicine Medicine (R0)
  • Hardcover ISBN 978-3-319-31137-1
  • Softcover ISBN 978-3-319-80973-1
  • eBook ISBN 978-3-319-31139-5
  • Series ISSN 2364-6659
  • Series E-ISSN 2364-6667
  • Edition Number 1
  • Number of Pages XIV, 231
  • Number of Illustrations 4 b/w illustrations, 25 illustrations in colour
  • Topics Cardiology
    Cardiac Surgery
    Developmental Psychology
    Nursing
    Rehabilitation Medicine
    Psychotherapy and Counseling
  • Buy this book on publisher's site
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