© 2020

Perinatal Palliative Care

A Clinical Guide

  • Erin M. Denney-Koelsch
  • Denise Côté-Arsenault


  • Designed for a wide and multi-disciplinary audience, this book provides a complete and practical guide to perinatal palliative care, from the theoretical to the clinical

  • Guides readers through varying intersecting aspects of perinatal palliative care: from issues of obstetrical management, to genetic counseling, neonatal pain and symptom management, spiritual care, and perinatal bereavement care

  • Written by experts in the field, each chapter includes clinical cases as additional teaching tools for readers working with serious fetal and neonatal conditions


Table of contents

  1. Front Matter
    Pages i-xviii
  2. Foundations of Perinatal Palliative Care

    1. Front Matter
      Pages 1-1
    2. Erin M. Denney-Koelsch, Denise Côté-Arsenault
      Pages 3-11
    3. John W. Wax, Carl T. D’Angio, Marianne C. Chiafery
      Pages 33-55
    4. Amy Kuebelbeck, Erin M. Denney-Koelsch
      Pages 57-76
  3. Clinical Care for Families Facing Life-Limiting Fetal Conditions

    1. Front Matter
      Pages 77-77
    2. Stefanie J. Hollenbach, Elizabeth A. Westen, Loralei L. Thornburg
      Pages 79-106
    3. Rebecca Carter, Blair Stevens
      Pages 107-127
    4. Stephanie K. Kukora, Steven R. Leuthner
      Pages 129-154
    5. Jeffrey M. Meyers, Andrew S. Decker, Chris Tryon
      Pages 155-178
    6. Patrick Hopkins, Jonna Marret, Rhonda Rusinko, Andrew S. Decker, Rita Dadiz
      Pages 179-217
    7. Rachel E. Diamond, Barbra L. Murante, David N. Korones
      Pages 219-231
    8. Maurice Hopkins
      Pages 233-245
    9. Ashley Pinkeney
      Pages 247-275
  4. Models of Perinatal Palliative Care

    1. Front Matter
      Pages 277-277
    2. Barbara A. Dean, Melanie Chichester, Laurie Hewlett-Miller, Vanita D. Jain, Erin M. Denney-Koelsch, Michael L. Spear
      Pages 279-304
    3. Alyssa W. Gupton, Lauren M. Zwetsch, David N. Korones
      Pages 305-332
  5. Special Considerations for the Field of Perinatal Palliative Care

    1. Front Matter
      Pages 357-357

About this book


This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader.

Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care.

Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.


Perinatal Palliative Care Perinatal Pediatric Palliative Care Congenital Anomalies Comfort Care Perinatal Hospice

Editors and affiliations

  • Erin M. Denney-Koelsch
    • 1
  • Denise Côté-Arsenault
    • 2
  1. 1.Strong Memorial HospitalUniversity of RochesterRochesterUSA
  2. 2.School of NursingSaint Louis UniversitySaint LouisUSA

About the editors

Erin M. Denney-Koelsch, MD, FAAHPM              

Associate Professor of Medicine and Pediatrics

University of Rochester Medical Center

Strong Memorial Hospital

Department of Medicine

Division of Palliative Care                     

Rochester, NY 14642 USA


Denise Côté-Arsenault, PhD, RN, CPLC, FAAN

Hemak Endowed Professor of Maternal Child Nursing                                           

St. Louis University

School of Nursing

St. Louis, MO 63104 USA

Bibliographic information

Industry Sectors
Oncology & Hematology