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© 2020

Neonatal Palliative Care for Nurses

  • Alexandra Mancini
  • Jayne Price
  • Tara Kerr-Elliott
Textbook

Table of contents

  1. Front Matter
    Pages i-xxiii
  2. Achieving Quality Nursing Practice in Neonatal Palliative Care

    1. Front Matter
      Pages 1-1
    2. Neil Marlow, Katie Gallagher
      Pages 3-7
    3. Rachel Black, Arlene Honeyman
      Pages 21-38
    4. Paula Abramson, Alexandra Mancini
      Pages 39-57
    5. Revd Dorothy Moore-Brooks, Tara Kerr-Elliott
      Pages 59-75
    6. Vicki Xafis, Karen Brombley
      Pages 77-97
    7. Rebecca Fitzpatrick, Ben Troke
      Pages 99-113
    8. Sam Collinge, Elizabeth Bailey, Alexandra Mancini
      Pages 131-153
    9. Nicholas D. Embleton, Sarah Stephenson
      Pages 171-175
    10. Katie Gallagher, Lisa Leppard
      Pages 177-187
    11. Jonathan Downie, Tara Kerr-Elliott, Finella Craig
      Pages 189-203
    12. Jayne Price, Rosa Menizabal-Espinosa
      Pages 255-269
    13. Patricia McNeilly, Jacqueline Johnstone, Frances Gilmore
      Pages 271-285

About this book

Introduction

This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident.

This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important  strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter.

There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. 
As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context. 

Keywords

Parents Infants Support Professionals Family centred Complex care Bereavement Hospice Resilience

Editors and affiliations

  • Alexandra Mancini
    • 1
  • Jayne Price
    • 2
  • Tara Kerr-Elliott
    • 3
  1. 1.Pan London Lead Nurse, Neonatal Palliative CareThe True Colours Trust CW+ and Chelsea and Westminster Foundation TrustLondonUK
  2. 2.Faculty of Health, Social Care and EducationKingston University and St. George’s University LondonLondonUK
  3. 3.WellChild Nurse SpecialistLouis Dundas Centre for Children’s Palliative Care, Great Ormond Street HospitalLondonUK

About the editors

Alexandra Mancini (Smith) is a neonatal nurse with over 25 years experience and is the Pan London Lead Nurse for Neonatal Palliative Care, the first regional post of its kind. This is a unique post focusing on developing the training and education of staff across the London region and the development of a neonatal palliative care service. Prior to this, Alex was the Neonatal Matron at Chelsea and Westminster Hospital including providing practical and emotional support for families and staff, and has been instrumental in developing local and national guidelines, including robust complex and palliative care pathways.  
Alex is lead author for the UK national document ‘Practical guidance for the management of palliative care on neonatal units’ published in 2014. Alex has published widely, including co-authoring book chapters and presents frequently both nationally and internationally. She has held posts as an invited expert member of the Riverside Research Ethics Committee, Clinical Ethics & Advisory Group of a Central London Hospital and sits on the ICPCN’s (International Children’s Palliative Care Network) Expert Advisory Group on Perinatal and Neonatal Palliative Care. Alex is a guest reviewer for British Medical Journal (BMJ) and the Journal of Neonatal Nursing (JNN).
For the last ten years, Alex has developed the National Neonatal Palliative and End of Life Care conference in collaboration with Child Bereavement UK (CBUK) and she is a facilitator for CBUK’s national educational workshops. In 2016, Alex led the development of an online learning module ‘Perinatal Palliative Care’ designed for the Royal College of Midwives, this online module is also available on the ICPCN e learning website.  
Building on her educational work over previous years, Alex is passionate about raising awareness on neonatal palliative care, by educating professionals across the UK and internationally, in a variety of settings, including conferences and is currently strengthening working relationships with local children’s hospices. 
Alex is an invited guest lecturer at several London universities, including Kings College London, Kingston and London South Bank, teaching Neonatal Palliative and End of Life Care on pre and postgraduate courses. Alex gained a MSc in Complex and Palliative Care for Neonates.


Professor Jayne Price is a children’s nurse whose clinical background is in children's oncology nursing. She was a clinical nurse specialist in children's palliative care, working with children who had advanced cancer and their families. More recently, her experience has encompassed improving care for children with palliative needs (both cancer and non-malignant conditions) and their families, through education and research. Jayne has been instrumental in developing continuing education opportunities for professionals working within the field of children's palliative care, and also in ensuring palliative care is embedded within the undergraduate nursing programme. She has received a number of awards for both education and research in recognition of her work within children's palliative care.
With a specific interest in the psychosocial needs of parents living through the loss of a child, Jayne's doctoral study focused on parents' perspectives of caring for an infant/child with a life-limiting condition. It was during that study that she became interested in perinatal/neonatal palliative care and has carried out some post doctoral research and scholarly work focusing on this aspect of palliative care. Having presented and published widely within the field of children's nursing, nurse education and palliative care, Jayne and her colleague Patricia McNeilly edited a book in 2009, titled 'Palliative care for children and families: An interdisciplinary approach', which has recorded sales worldwide. Her most recent editorial work was with Sage in 2018 where she was lead editor in a textbook for children’s nursing.
Jayne has also been involved in a number of international projects establishing educational initiatives with students to ensure a more global focus for their learning within children’s palliative care. More recently has facilitated an innovative interprofessional learning day with 3rd year midwifery students and children’s nursing students examining collaborative working within the area of perinatal/neonatal palliative care.. She is a Trustee of Shooting Star Children’s Hospices Surrey and is currently Professor of Children’s Nursing and Professional Lead for Children’s Nursing at Kingston University and St George’s University London. 


Tara Kerr-Elliott is a children's Nurse with extensive experience working within the field of Children's Palliative Care within the community, children's hospice and hospital settings. 
She is also a Well Child Nurse Specialist and Practice Educator within the Louis Dundas Centre for Palliative Care at Great Ormond Street Hospital, London where her role enables her to focus equally on clinical work as well as on teaching and education. More recently, she also became actively involved in research and is committed to driving forward both education and research within Children's Palliative Care.
Tara has a particular interest in the psychosocial aspect of Children's Palliative Care, particularly at the end of life. Her specialist area of knowledge and an area she is passionate about furthering research in, is the care of children and the needs of parents and nursing staff after a death. 
Tara is also passionate about palliative care education and the use of simulation based education to support this. She delivers teaching and presentations locally and nationally. She is also the Nurse Advisor to the "Medicine for Children" advisory group.

Bibliographic information

  • Book Title Neonatal Palliative Care for Nurses
  • Editors Alexandra Mancini
    Jayne Price
    Tara Kerr-Elliott
  • DOI https://doi.org/10.1007/978-3-030-31877-2
  • Copyright Information Springer Nature Switzerland AG 2020
  • Publisher Name Springer, Cham
  • eBook Packages Medicine Medicine (R0)
  • Hardcover ISBN 978-3-030-31876-5
  • Softcover ISBN 978-3-030-31879-6
  • eBook ISBN 978-3-030-31877-2
  • Edition Number 1
  • Number of Pages XXIII, 413
  • Number of Illustrations 2 b/w illustrations, 201 illustrations in colour
  • Additional Information -
  • Topics Nursing
    Pediatrics
    Palliative Medicine
    Intensive / Critical Care Medicine
  • Buy this book on publisher's site
Industry Sectors
Biotechnology
Health & Hospitals
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Reviews

“The book is written for professionals involved with perinatal and neonatal clients. This includes physicians, nurses, nurse midwives, nurse practitioners, and respiratory therapists. … This is an outstanding book. It is recommended for all neonatal nursing staff, ancillary professionals who work on neonatal case management teams, and perinatal nurses in any level of care (antepartum through labor and delivery).” (Ellyn Cavanagh, Doody’s Book Reviews, July 24, 2020)

 “The textbook is the first of its kind to offer guidance to healthcare professionals on caring for babies with life limiting conditions. … Currently, no other textbook exists offering such guidance specifically for nurses and allied healthcare professionals.” (ehospice.com, February 19, 2020)