Handbook of Long Term Care of The Childhood Cancer Survivor

  • Grace A. Mucci
  • Lilibeth R. Torno

Part of the Specialty Topics in Pediatric Neuropsychology book series (STPN)

Table of contents

  1. Front Matter
    Pages i-xxiii
  2. Surveillance of the Survivor

    1. Front Matter
      Pages 1-1
    2. Cynthia A. Gerhardt, Marrit Annika Tuinman, Kathryn Vannatta
      Pages 17-24
    3. Roderick Skinner, Riccardo Haupt, Lars Hjorth, Leontien Kremer, Renée L. Mulder
      Pages 25-35
  3. Surveillance of Medical Late Effects

    1. Front Matter
      Pages 37-37
    2. Lilibeth R. Torno, Janet Hager
      Pages 39-51
    3. Wei-Ping Violet Shen
      Pages 53-74
    4. Wassim Chemaitilly
      Pages 75-92
    5. Nita Doshi, Vivian I. Franco, Anthony C. Chang, Steven E. Lipshultz
      Pages 93-110
    6. Tara O. Henderson
      Pages 111-119
    7. William Sohn, F. Elena Marshall, Krishnansu S. Tewari, Antoine Khoury
      Pages 121-144
    8. Jacqueline Casillas, Amy Jacobson
      Pages 145-154
    9. Tao Ji, James B. Hayden, Bang H. Hoang
      Pages 155-170
    10. Jacqueline Casillas, Amy Jacobson
      Pages 171-178
    11. Paul Nathan, Adam Gassas, Jonathan Wasserman
      Pages 179-208
    12. Smita Bhatia
      Pages 209-220
  4. Neuropsychological Late Effects

    1. Front Matter
      Pages 221-221
  5. Psychosocial Factors and Quality of Life

    1. Front Matter
      Pages 263-263
    2. Christina M. Zebrowski, Mairim Vega, Antolin M. Llorente
      Pages 299-313
    3. Gay Walker
      Pages 315-322
  6. Re-Entry After Treatment

    1. Front Matter
      Pages 323-323
    2. Vida L. Tyc, James L. Klosky
      Pages 325-346
    3. Michael E. Jewell
      Pages 367-372
    4. Sujin Ann-Yi, Martha A. Askins
      Pages 373-384
    5. Lauren S. Krivitzky, Megan M. Blaufuss, Sara VanDenHeuvel
      Pages 385-395
    6. Jinsoon Lee, Grace A. Mucci, Lonnie K. Zeltzer, Nicole Vincent
      Pages 419-466
    7. (Michael) Jacob Adams, Katie A. Devine, Amina P. Alio
      Pages 467-485
    8. Lilibeth R. Torno, Jenee Areeckal, Claudia E. Begino, Christy Campo, Marcos Di Pinto, Mary English et al.
      Pages 487-505
  7. Appendix

    1. Front Matter
      Pages 507-507
    2. Beth Earhart
      Pages 509-525
  8. Back Matter
    Pages 527-542

About this book


This authoritative reference examines in depth the myriad challenges facing pediatric cancer survivors and proposes a robust framework for structured follow-up of these patients through adulthood. Approaches to long-term follow-up include both established models of care and targeted models of lifelong surveillance of late effects by bodily systems and neurological outcomes. Sections devoted to quality of life and re-entry after treatment focus on key concerns such as health risk behaviors, school and career issues, psychological challenges, and care disparities. And a robust resources section adds extra usefulness to the expert coverage.

Among the Handbook's topics:

• Developmental considerations in the transition from child and adolescent to adult survivorship.
• Long-term follow-up roadmaps by disease and treatment.
• Neuropsychological effects of pediatric brain tumors and associated treatment.
• Building resiliency in childhood cancer survivors: a clinician’s perspective.
• School issues and educational strategies for survivors of childhood cancer.
• Educating and preparing the childhood cancer survivor for long-term care: a curriculum model for cancer centers.

A work of rare scope, scholarship, and clinical acumen, the Handbook of Long-Term Care of the Childhood Cancer Survivor is a rewarding, practice-building resource essential to a wide range of healing professionals, including primary care physicians, pediatricians, oncologists, nurses, psychologists, neuropsychologists, child psychologists, and licensed therapists.                


Acute lymphocytic leukemia Astrocytoma Brain tumor Brainstem glioma Cancer Survivorship Chemobrain Childhood Cancer Craniopharyngioma Ependymoma Fatigue in cancer survivors Late effects of cancer Limb salvage Lymphoma Medulloblastoma Neuroblastoma Pain in cancer survivors Phantom limb pain Quality of life Sensory loss Stem cell transplant

Editors and affiliations

  • Grace A. Mucci
    • 1
  • Lilibeth R. Torno
    • 2
  1. 1.Department of Pediatric PsychologyCHOC Children’s Hospital, Neuropsychology ServicesOrange, Newport BeachUSA
  2. 2.Division of Oncology, CHOC After Cancer Treatment Survivorship ProgramCHOC Children’s Hospital, University of California, IrvineIrvine, OrangeUSA

Bibliographic information

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