Skip to main content
Log in

Implementation and evolution of a regional chronic disease self-management program

  • Public Health Intervention
  • Published:
Canadian Journal of Public Health Aims and scope Submit manuscript

Abstract

OBJECTIVE: To establish a comprehensive, community-based program to improve and sustain self-management support for individuals with chronic diseases and complement office-based strategies to support behaviour change.

PARTICIPANTS: Health service delivery organizations.

SETTING: The Champlain Local Health Integration Network (LHIN), a health district in Eastern Ontario.

INTERVENTION: We created Living Healthy Champlain (LHC), a regional organization providing peer leader training and coordination for the group Stanford Chronic Disease Self-Management Program (CDSMP); skills training and mentorship in behaviour change approaches for health care providers; and support to organizations to integrate self-management support into routine practice. We used the RE-AIM framework to evaluate the overall program’s impact by exploring its reach, effectiveness, adoption, implementation and maintenance.

OUTCOME: A total of 232 Stanford CDSMP sessions (63 during the pilot project and 169 post-pilot) have been held at 127 locations in 24 cities across the Champlain LHIN, reaching approximately 4,000 patients. The effectiveness of the service was established through ongoing evidence reviews, a focus group and a pre-post utilization study of the pilot. LHC trained over 300 peer volunteers to provide the Stanford CDSMP sessions, 98 of whom continue to actively host workshops. An additional 1,327 providers have been trained in other models of self-management support, such as Health Coaching and Motivational Interviewing. Over the study period, LHC grew from a small pilot project to a regional initiative with sustainable provincial funding and was adopted by the province as a model for similar service delivery across Ontario.

CONCLUSION: A community-based self-management program working in partnership with primary care can be effectively and broadly implemented in support of patients living with chronic conditions.

Résumé

OBJECTIF: Établir un programme communautaire global pour améliorer et soutenir l’appui à l’auto-prise en charge des personnes atteintes de maladies chroniques, en complément des stratégies d’appui à la modification du comportement élaborées dans les unités de santé.

PARTICIPANTS: Des organismes de prestation de services de santé.

LIEU: Le réseau local d’intégration des services de santé (RLISS) de Champlain, un district de santé de l’Est de l’Ontario.

INTERVENTION: Nous avons créé Vivre en santé Champlain (VSC), un organisme régional qui: assure la formation et la coordination de pairs animateurs selon le programme d’auto-prise en charge des maladies chroniques (programme CDSMP) de l’Université Stanford; offre aux dispensateurs de soins de santé de la formation axée sur les compétences et du mentorat sur les approches de modification du comportement; et aide les organismes à intégrer l’appui à l’auto-prise en charge dans leurs pratiques courantes. Nous nous sommes servis du cadre RE-AIM pour évaluer l’impact global du programme en explorant sa portée, son efficacité, son adoption, sa mise en œuvre et le maintien de ses effets.

RÉSULTATS: En tout, 232 séances CDSMP de Stanford (63 pendant et 169 après le projet pilote) ont été tenues dans 127 établissements situés dans 24 villes du RLISS de Champlain, soit un bassin d’environ 4 000 patients. Nous avons évalué l’efficacité du service au moyen d’examens continus des données probantes, d’un groupe de discussion et d’une étude d’utilisation avant et après le projet pilote. VSC a formé plus de 300 pairs bénévoles à offrir les séances CDSMP de Stanford; 98 de ces bénévoles offrent encore activement des ateliers. En outre, 1 327 dispensateurs ont été formés selon d’autres modèles d’appui à l’auto-prise en charge, comme le coaching santé et la technique d’entrevue motivationnelle. Au cours de la période de l’étude, VSC est passé d’un petit projet pilote à une initiative régionale bénéficiant d’un financement provincial durable, et la province en a fait un modèle pour la prestation de services semblables ailleurs en Ontario.

CONCLUSION: Un programme communautaire d’auto-prise en charge mené en partenariat avec les soins primaires peut être mis en œuvre efficacement et à grande échelle pour appuyer les patients vivant avec des maladies chroniques.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  1. Kitts J. Self-Management Support for Canadians with Chronic Health Conditions: A Focus for Primary Health Care. Toronto, ON: Health Council of Canada, 2012. Available at: http://cameroninstitute.com/attachments/063_HCC_SelfManagementReport_FA.pdf (Accessed July 8, 2014).

    Google Scholar 

  2. Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA 2002;288(19):2469–75. PMID: 12435261. doi: 10.1001/jama.288.19.2469.

    Article  Google Scholar 

  3. Bodenheimer T, MacGregor K, Sharifi C. Helping Patients Manage Their Chronic Condition. Oakland, CA: The California Healthcare Foundation, 2005. Available at: http://www.chcf.org/publications/2005/06/helping-patients-manage-their-chronic-conditions (Accessed May 6, 2015).

    Google Scholar 

  4. Kaner EFS, Dickinson HO, Beyer F, Pienaar E, Schlesinger C, Campbell F, et al. The effectiveness of brief alcohol interventions in primary care settings: A systematic review. Drug Alcohol Rev 2009;28(3):301–23. PMID: 19489992. doi: 10.1111/j.1465-3362.2009.00071.x.

    Article  Google Scholar 

  5. Bodenheimer T. Coordinating care–A perilous journey through the health care system. N Eng J Med 2008;358(10):1064–71. PMID: 18322289. doi: 10. 1056/NEJMhpr0706165.

    Article  CAS  Google Scholar 

  6. Johnston S, Liddy C, Mill K, Irving H. Building the evidence base for chronic disease self-management support interventions across Canada. Can J Public Health 2012;103(6):e462–67. PMID: 23618029.

    Article  Google Scholar 

  7. Ory MG, Ahn S, Jiang L, Smith ML, Ritter PL, Whitelaw N, et al. Successes of a national study of the Chronic Disease Self-Management Program: Meeting the triple aim of health care reform. Med Care 2013;51(11):992–98. PMID: 24113813. doi: 10.1097/MLR.0b013e3182a95dd1.

    Article  Google Scholar 

  8. Jaglal SB, Guilcher SJ, Hawker G, Lou W, Salbach NM, Manno M, et al. Impact of a Chronic Disease Self-Management Program on health care utilization in rural communities: A retrospective cohort study using linked administrative data. BMC Health Serv Res 2014;14(1):198. PMID: 24885135. doi: 10.1186/1472-6963-14-198.

    Article  Google Scholar 

  9. Liddy C, Blazkho V, Mill K. Challenges of self-management when living with multiple chronic conditions: Systematic review of the qualitative literature. Can Fam Physician 2014;60(12):1123–33. PMID: 25642490.

    PubMed  PubMed Central  Google Scholar 

  10. Living Well South-East Ontario. Self-Management Ontario. Kingston, ON: Self-Management Program of Southeastern Ontario, 2015. Available at: http://www.livingwellseontario.ca/about/self-management-ontario/ (Accessed March 25, 2015).

    Google Scholar 

  11. Welcome to Self-Management BC. Victoria, BC: Self-Management British Columbia, 2015. Available at: http://www.selfmanagementbc.ca/ (Accessed March 25, 2015).

  12. Morgan M, Zamora N, Hindmarsh M. An inconvenient truth: A sustainable healthcare system requires chronic disease prevention and management transformation. Healthc Pap 2007;7(4):6–23. PMID: 17595546. doi: 10.12927/hcpap.

    Article  Google Scholar 

  13. Health Council of Canada. Helping Patients Help Themselves: Are Canadians with Chronic Conditions Getting the Support They Need to Manage Their Health? Ottawa, ON: Canadian Health Care Matters, 2010.

    Google Scholar 

  14. Living Healthy Champlain (LHC) About Us. Ottawa, ON: LHC, 2014. Available at: http://www.livinghealthychamplain.ca/aboutUs/index.aspx (Accessed May 6, 2015).

  15. Glasgow RE, Vogt TM, Boles SM. Evaluating the public health impact of health promotion interventions: The RE-AIM framework. Am J Public Health 1999;89(9):1322–27. PMID: 10474547. doi: 10.2105/AJPH.89.9.1322.

    Article  CAS  Google Scholar 

  16. Bains N. Population Health Profile: Champlain LHIN. Toronto, ON: Ministry of Health and Long-Term Care. Available at: http://www.health.gov.on.ca/transformation/providers/information/resources/profiles/profile_champlain.pdf (Accessed July 15, 2014).

    Google Scholar 

  17. Champlain Local Health Integration Network (LHIN). Working Together for Healthy Communities: Champlain LHIN Annual Report 2006–2007. Ottawa, ON: Champlain LHIN, 2008. Available at: www.champlainlhin.on.ca/WorkArea/showcontent.aspx?id=1074 (Accessed May 6, 2015).

    Google Scholar 

  18. Liddy C, Johnston S, Irving H, Nash K. The Community Connection Model: Implementation of best evidence into practice for self-management of chronic diseases. Public Health 2013;127(6):538–45. PMID: 23701813. doi: 10.1016/j.puhe.2013.02.005.

    Article  CAS  Google Scholar 

  19. Johnston SE, Liddy CE, Ives SM. Self-management support: A new approach still anchored in an old model of health care. Can J Public Health 2011;102(1):68–72. PMID: 21485969.

    Article  Google Scholar 

  20. Johnston S, Liddy C, Ives S, Soto E. Literature Review on Chronic Disease Self-Management. Ottawa, ON: Champlain Local Health Integration Network, 2008. Available at: http://www.livinghealthychamplain.ca/documents/pages/ReviewChronicDisease.pdf (Accessed May 6, 2015).

    Google Scholar 

  21. Stanford University School of Medicine. Stanford Chronic Disease Self-Management Program. Stanford, CA: Stanford University School of Medicine, 2014. Available at: patienteducation.stanford.edu/programs/cdsmp.html (Accessed May 6, 2015).

    Google Scholar 

  22. Johnston S, Irving H, Mill K, Rowan MS, Liddy C. The patient’s voice: An exploratory study of the impact of a group self-management support program. BMC Fam Pract 2012;13:65. PMID: 22748018. doi: 10.1186/1471-2296-13-65.

    Article  Google Scholar 

  23. Liddy C, Johnston S, Guilcher S, Irving H, Hogel M, Jaglal S. Impact of a chronic disease self-management program on healthcare utilization in eastern Ontario, Canada. Prev Med Rep 2015;2:586–90. PMID: 26844122. doi: 10. 1016/j.pmedr.2015.07.001.

    Article  Google Scholar 

  24. American Physical Therapy Association. Motivational Interviewing Techniques Can Improve Patient Self-Management. Alexandria, VA: APTA, 2015. Available at: http://www.apta.org/next/news/2014/6/14/motivationalinterviewing/ (Accessed October 29, 2015).

    Google Scholar 

  25. Miller W, Rollnick S. Motivational Interviewing: Preparing People for Change, 2nd ed. New York, NY: The Guilford Press, 2002.

    Google Scholar 

  26. Miller WR, Rollnick S. Ten things that motivational interviewing is not. Behav Cogn Psychother 2009;37(2):129–40. PMID: 19364414. doi: 10.1017/S1352465809005128.

    Article  Google Scholar 

  27. Living Well Self-Management Program of Southeastern Ontario. Choices and Changes. Kingston, ON: Self-Management Program of Southeastern Ontario, 2013. Available at: http://www.livingwellseontario.ca/health-care-providers/choices-and-changes/ (Accessed October 29, 2015).

    Google Scholar 

  28. Starr J. The Coaching Manual: The Definitive Guide to the Process, Principles and Skills of Personal Coaching. New York, NY: Pearson Education, 2007.

    Google Scholar 

  29. Vadiee M. The UK Expert Patient Program and self-care in chronic disease management: An analysis. Eur Geriatr Med 2012;3(3):201–5. doi: 10.1016/j.eurger.2012.02.003.

    Article  Google Scholar 

  30. McGowan P. Chronic Disease Self-Management Program in Vancouver and Richmond: Program Evaluation. Victoria, BC: British Columbia Ministry of Health, 2003. Available at: http://www.health.gov.bc.ca/library/publications/year/2003/cdm/cdsmpeval2003.pdf (Accessed May 6, 2015).

    Google Scholar 

  31. Turner AP, Anderson JK, Wallace LM, Kennedy-Williams P. Evaluation of a self-management programme for patients with chronic obstructive pulmonary disease. Chron Respir Dis 2014;11(3):163–72. PMID: 24980127. doi: 10.1177/1479972314539979.

    Article  Google Scholar 

  32. Morrin L, Britten J, Davachi S, Knight H. Alberta Healthy Living Program–A model for successful integration of chronic disease management services. Can J Diabetes 2013;37(4):254–59. PMID: 24070890. doi: 10.1016/j.jcjd.2013.04.001.

    Article  Google Scholar 

  33. Harden SM, Gaglio B, Shoup JA, Kinney KA, Johnson SB, Brito F, et al. Fidelity to and comparative results across behavioral interventions evaluated through the RE-AIM framework: A systematic review. Syst Rev 2015;4(1):1–13. PMID: 26547687. doi: 10.1186/s13643-015-0141-0.

    Article  Google Scholar 

  34. O’Brien J, Finch CF. The implementation of musculoskeletal injury-prevention exercise programmes in team ball sports: A systematic review employing the RE-AIM framework. Sports Med 2014;44(9):1305–18. PMID: 24986117. doi: 10.1007/s40279-014-0208-4.

    Article  Google Scholar 

  35. Kirby SE, Dennis SM, Bazeley P, Harris MF. What distinguishes clinicians who better support patients for chronic disease self-management? Aust J Prim Health 2012;18(3):220–27. PMID: 23069365. doi: 10.1071/PY11029.

    Article  Google Scholar 

  36. Packer TL, Boldy D, Ghahari S, Melling L, Parsons R, Osborne RH. Self-management programs conducted within a practice setting: Who participates, who benefits and what can be learned? Patient Educ Couns 2012;87(1):93–100. PMID: 21992799. doi: 10.1016/j.pec.2011.09.007.

    Article  Google Scholar 

  37. Glasgow RE, Dickinson P, Fisher L, Christiansen S, Toobert DJ, Bender BG, et al. Use of RE-AIM to develop a multi-media facilitation tool for the patient-centered medical home. Implement Sci 2011;6(10):118. PMID: 22017791. doi: 10.1186/1748-5908-6-118.

    Article  Google Scholar 

  38. Ory MG, Altpeter M, Belza B, Helduser J, Zhang C, Smith ML. Perceived utility of the RE-AIM framework for health promotion/disease prevention initiatives for older adults: A case study from the U.S. evidence-based disease prevention initiative. Front Public Health 2015;2:143. PMID: 25964897. doi: 10.3389/fpubh.2014.00143.

    PubMed  PubMed Central  Google Scholar 

  39. Jauregui E, Pacheco AM, Soltero EG, O’Connor TM, Castro CM, Estabrooks PA, et al. Using the RE-AIM framework to evaluate physical activity public health programs in Mexico. BMC Public Health 2015;15(1):162. PMID: 25881249. doi: 10.1186/S12889-015-1474-2.

    Article  Google Scholar 

  40. Deakin TA, McShane CE, Cade JE, Williams R. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev 2005;18(2):CD003417. PMID: 15846663.

    Google Scholar 

  41. Norris SL, Engelgau MM, Narayan KV. Effectiveness of self-management training in type 2 diabetes: A systematic review of randomized controlled trials. Diabetes Care 2001;24(3):561–87. PMID: 11289485. doi: 10.2337/diacare.24.3.561.

    Article  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Clare Liddy MD, MSc.

Additional information

Acknowledgements: The authors extend their thanks to Karen Patzer from the Champlain Local Health Integration Network in Ottawa and Debbie McGregor, Executive Director, Bruyère Academic Family Health Team, Ottawa. We also thank Justin Joschko for his assistance in preparing the manuscript for resubmission.

Conflict of Interest: None to declare.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Liddy, C., Johnston, S., Nash, K. et al. Implementation and evolution of a regional chronic disease self-management program. Can J Public Health 107, e194–e201 (2016). https://doi.org/10.17269/cjph.107.5126

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.17269/cjph.107.5126

Key words

Mots clés

Navigation