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Epileptic Disorders

, Volume 15, Issue 2, pp 216–225 | Cite as

Stand Up For Epilepsy San Diego photo-shoot: a personal odyssey (with photos)

  • Kenneth R. Kaufman
  • Nathaniel D. Kaufman
Special report

Abstract

Stigma towards epilepsy results in barriers to social integration, education, employment, and marriage, with increased divorce rates. There is a societal need to realise that many persons with epilepsy (PWE) lead normal lives and can be highly educated with effective employment. Integration of PWE into sports is therapeutic both for PWE (decreased seizure frequency, decreased comorbid conditions, and increased psychosocial skills) and society. Stand Up For Epilepsy (SUFE), overseen by the ILAE Task Force on Sports and Epilepsy, is an international project in which action photographs with PWE were taken as a means to destigmatise epilepsy. This autobiographical narrative describes how SUFE initiated effective athlete-PWE interactions with positive PWE, athlete, and parent responses. Expansion of SUFE is recommended to further destigmatise epilepsy. Participation in SUFE can serve as a personal odyssey for PWE.

Key words

epilepsy stigma sport social integration education employment marriage divorce cultural competence Olympic athlete 

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Copyright information

© John Libbey Eurotext and Springer-Verlag France 2013

Authors and Affiliations

  1. 1.Department of PsychiatryUMDNJ-Robert Wood Johnson Medical SchoolNew BrunswickUSA
  2. 2.Department of NeurologyUMDNJ-Robert Wood Johnson Medical SchoolNew BrunswickUSA
  3. 3.Department of AnesthesiologyUMDNJ-Robert Wood Johnson Medical SchoolNew BrunswickUSA
  4. 4.West Windsor-Plainsboro High School SouthWest WindsorUSA
  5. 5.Departments of Psychiatry, Neurology, and AnesthesiologyUMDNJ-Robert Wood Johnson Medical SchoolNew BrunswickUSA

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