Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research

  • Kadri Simm
Open Access


The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts.


Genetic Research Global Public Good Genetic Database Nuffield Council Human Genetic Research 


Copyright information

© ESRC Genomics Network 2005

Authors and Affiliations

  • Kadri Simm

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