Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research

  • Kadri Simm
Open Access
Article

Abstract

The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts.

Keywords

Genetic Research Global Public Good Genetic Database Nuffield Council Human Genetic Research 

Notes

Copyright information

© ESRC Genomics Network 2005

Authors and Affiliations

  • Kadri Simm

There are no affiliations available

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