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Pediatric Rheumatology

, 9:P106 | Cite as

Comparative characteristic of quality of life with patients suffering from juvenile idiopathic arthritis (JIA), attending school and taught at home

  • TA Shelepina
  • NY Stepanenko
  • ES Fedorov
Open Access
Poster presentation
  • 487 Downloads

Keywords

Public Health Arthritis Visual Analogue Scale Analogue Scale Social Activity 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Objective

To compare the quality of life with patients suffering from JIA, attending school and taught at home.

Material

Basing on data of 99 patients 14-17 old with JIA boys/girls - 27%/73%, 1- group of children attending school 62 (63%), 2 – 37 patients taught at home; among whom - 20 (group 2A) on medical indications; 17 (group 2B) at will of the patient and parents. 1st group (syst. variant-14%, poly-50%, oligo-20% , SA-16%), 2nd group - (syst-27%, poly-49%, oligo-11%., SA-13%), 2-A (syst-40%, poly-50%, oligo-5%, CA-5%), 2B- (syst-11%, poly-47%, oligo-18%. SA-24%).

Methods

Questionnaire: SF-36, EQ-5D, HAQ, CHAQ; Kettel, author's method of social activity, Spielberger-Khanin scale; Visual analogue scale (VAS) – assessment of pain, VAS – global evaluation of health, Well-Being Index (WHO-5)

Results

VAS of pain ( 23*, 35, 34, 40* mm; p=0,000).

SF-36.PF 1st group-77, 2nd group-54, 2A-55, 2B-56; RP- 1gr -62, 2 - 48, 2A - 50, 2B - 50); BP: 70, 47, 57, 37; p=0.07), GH: (57*,43, 52, 37*; p=0.018; VT: 64, 51, 60,42 p=0.014; SF: 76*, 59, 65, 55*; p=0.004; RE: 77*, 70, 22*, 61; p=0.015; MH: 69*, 61, 62, 40*; p=0.035 . * - the difference is statistically reliable.

EQ-5D: 1.5; 1.6; 1.5; 1.3; VAS – global evaluation of health (76 , 57, 52, 64 mm).

HAQ, CHAQ: 0.3* ; 0.9; 1.12*: 0.6.p=0.02

WHO-5 (Norm >13): (15.4; 13.5; 14.2; 13).

Regular communication with equals in age: 1st group -82%; 2nd group - 43%; 2A group - 40%; 2B group 45%

Attendance of cultural events at least once a month in the 1st group - 50%, in the 2nd group, 30%, 2A group - 20%, 2B group -36%.

Communication disorders: 1st group - 68%; 2nd group - 80%, 2A-77%, 2B-72%; fears: 26%, 43%, 46%, 54%. Family stress: 71%, 40%, 38%, 36%.

Conclusion

The quality of life was higher with children attending school and considerably lower with children groundlessly taught at home.

Copyright information

© Shelepina et al; licensee BioMed Central Ltd. 2011

This article is published under license to BioMed Central Ltd. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Authors and Affiliations

  • TA Shelepina
    • 1
  • NY Stepanenko
    • 1
  • ES Fedorov
    • 1
  1. 1.Rheumatology Research Institute of the Russian Academy of Medical SciencesMoscowRussia

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