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Justice and public participation in universal health coverage: when is tiered coverage unfair and who should decide?

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Abstract

Universal health coverage is often implemented within countries through several national insurance schemes that collectively cover their populations. Yet the extent of services and benefits available can vary substantially between different schemes. This paper argues that these variations in coverage comprise tiering and then reviews different accounts of health and social justice that consider whether and when a tiered health system is fair. Using these accounts, it shows that the fairness of tiering can be determined by assessing whether differences in coverage mean enrolees under some national insurance schemes do not achieve sufficient health or normal functioning and/or feel inferior relative to those belonging to other national insurance schemes. The paper further contends that these determinations of fairness should involve the people covered by different insurance schemes. Key universal health coverage questions to involve the public in answering are: Do the sum of differences between the schemes in your country generate feelings of unequal moral worth and/or mean enrolees struggle to achieve sufficient health or normal functioning? Which specific differences between health insurance schemes generate the greatest feelings of unequal moral worth in individuals? Which specific differences generate the greatest barriers to individuals achieving sufficient health or normal functioning? Rather than identifying which services to extend coverage to first, answering these questions will identify which disparities in services and benefits are the most morally urgent to address. Finally, some initial thoughts are offered on who from the public should be involved in making these decisions and how they might be involved as a matter of justice.

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Notes

  1. The paper does not evaluate whether the Thai and Chinese health systems’ tiered coverage is fair or whether existing forms of public participation in UHC decision-making in Thailand and China meet the demands of justice, i.e. in terms of who is involved and how they are involved.

  2. Young (1990) and Richardson (2002) characterise deliberative decision-making as a process of discussing problems or claims of need through dialogue with others who test and challenge these proposals. The deliberative public rejects or refines proposals and collectively agrees on those proposals that are supported by the best reasons.

  3. Such factors could include institutional practices (formal rules and procedures) and norms. Where people’s identities consist of characteristics associated with lower status, it often results in their being listened to less in health decision-making (Shayo et al. 2012). Where local spaces are used for deliberations, they can carry traces of norms that disempower individuals with certain characteristics (Gaventa 2002). In LMICs, village-level decision-making structures may be fora in which minorities are simply informed and generally do not have a say. Thus, citizen consultations that use them will be characterised by members of minorities being present but rarely speaking (Mompati and Prinsen 2011). Certain accents, word choices, and ways of speaking may also diminish individuals’ chances of being heard because they are given less value in particular societies (Cornwall 2004; Young 2000).

References

  • Abelson, Julia, Mita Giacomini, Pascale Lehoux, and Francois-Pierre Gauvin. 2007. Bringing ‘the public’ into health technology assessment and coverage policy decisions: From principles to practice. Health Policy 82: 37–50.

    Article  Google Scholar 

  • Alvarez, Allen Andrew A. 2007. Threshold considerations in fair allocation of health resources: Justice beyond scarcity. Bioethics 21: 426–438.

    Article  Google Scholar 

  • Anderson, Elizabeth. 1999. What is the point of equality? Ethics 109 (2): 287–337.

    Article  Google Scholar 

  • Beauchamp, Tom L., and James F. Childress. 1994. Principles of biomedical ethics. Oxford: Oxford University Press.

    Google Scholar 

  • Cornwall, Andrea. 2004. Spaces for transformation: Reflections on issues of power and difference in participation in development. In Participation from tyranny to transformation, ed. Samuel Hickey and Giles Mohan, 75–91. London: Zed Books.

    Google Scholar 

  • Cornwall, Andrea. 2011. Whose voices? Whose choices? Reflections on gender and participatory development. In The participation reader. Andrea Cornwall, 203–223. New York, NY: Zed Books.

    Google Scholar 

  • Crocker, David A. 2008. Ethics of global development: Agency, capability, and deliberative democracy. Cambridge: Cambridge University Press.

    Book  Google Scholar 

  • Daniels, Norman. 1998. Rationing medical care: A philosopher’s perspective on outcomes and process. Economics and Philosophy 14: 27–50.

    Article  Google Scholar 

  • Daniels, Norman. 2001. Justice, health, and healthcare. American Journal of Bioethics 1: 2–16.

    Article  Google Scholar 

  • Daniels, Norman. 2008. Just health: Meeting health needs fairly. Cambridge: Cambridge University Press.

    Google Scholar 

  • Daniels, Norman, J. Bryant, R.A. Castano, O.G. Dantes, Kausar S. Khan, and S. Pannarunothai. 2000. Benchmarks of fairness for health care reform: A policy tool for developing countries. Bulletin of the World Health Organization 78 (6): 740–750.

    Google Scholar 

  • Degeling, Chris, Stacy Carter, and Lucie Rychetnik. 2015. Which public and why deliberate? A scoping review of public deliberation in public health and health policy research. Social Science & Medicine 131: 114–121.

    Article  Google Scholar 

  • Degeling, Chris, Lucie Rychetnik, Jackie Street, Rae Thomas, and Stacy M. Carter. 2017. Influencing health policy through public deliberation: Lessons learned from two decades of citizens’/community juries. Social Science & Medicine 179: 166–171.

    Article  Google Scholar 

  • Deng, Chung-Yeh, and Chia-Ling Wu. 2010. An innovative participatory method for newly democratic societies: The “civic groups forum” on national health insurance reform in Taiwan. Social Science & Medicine 70: 896–903.

    Article  Google Scholar 

  • Fattore, Giovanni, and Fabrizio Tedioso. 2013. The importance of values in shaping how health systems governance and management can support universal health coverage. Value in Health 16 (1)Supplement): S19–S23.

    Article  Google Scholar 

  • Fourie, Carina. 2017. Sufficiency of capabilities, social equality, and two-tiered health care systems. In What is enough? Sufficiency, justice and health, ed. Carina Fourie and Annette Rid, 185–204. Oxford: Oxford University Press.

    Google Scholar 

  • Frenz, Patricia, and Jeanette Vega. 2010. Universal health coverage with equity: what we know, don’t know and need to know. http://www.healthsystemsresearch.org/hsr2010/images/stories/9coverage_with_equity.pdf. Accessed 21 May 2018.

  • Gaventa, John. 2002. Exploring citizenship, participation and accountability. IDS Bulletin 33 (2): 1–11.

    Article  Google Scholar 

  • Gibson, Jennifer L., Douglas K. Martin, and Peter A. Singer. 2005. Priority setting in hospitals: Fairness, inclusiveness, and the problem of institutional power differences. Social Science and Medicine 61: 2355–2362.

    Article  Google Scholar 

  • Ginsburg, Marjorie, Susan D. Goold, and Marion Danis. 2006. (De)constructing ‘basic’ benefits: Citizens define the limits of coverage. Health Affairs 25: 1648–1655.

    Article  Google Scholar 

  • Goold, Susan D., Andrea K. Biddle, Glenn Klipp, Charles Hall, and Marion Danis. 2005. Choosing healthplans all together: A deliberative exercise for allocating limited health care resources. Journal of Health Politics, Policy and Law 30 (4): 563–601.

    Article  Google Scholar 

  • Goulet, Denis. 1995. Development ethics: A guide to theory and practice. New York, NY: Apex Press.

    Google Scholar 

  • Goulet, Denis. 2006. Development ethics at work: Explorations-1960-2002. New York, NY: Routledge.

    Book  Google Scholar 

  • Gruskin, Sofia, and Norman Daniels. 2008. Process is the point: Justice and human rights: Priority setting and fair deliberative process. American Journal of Public Health 98 (9): 1573–1577.

    Article  Google Scholar 

  • Ho, Calvin Wai Loon. 2013. The equity of universal health coverage: Some reflections from Singapore. Brookings Institute. https://www.brookings.edu/opinions/the-equity-of-universal-health-coverage-some-reflections-from-singapore. Accessed 21 May 2018.

  • Kieslich, Katharina, Jeonghoon Ahn, Gabriele Badano, Kalipso Chalkidou, Leonardo Cubillos, Renata Curi Hauegen, Chris Henshall, Carleigh B. Krubiner, Peter Littlejohns, Lanting Lu, Steven D. Pearson, Annette Rid, Jennifer A. Whitty, and James Wilson. 2016. Public participation in decision-making on the coverage of new antivirals for hepatitis C. Journal of Health Organization and Management 30 (5): 769–785.

    Article  Google Scholar 

  • Lenaghan, Jo. 1999. Involving the public in rationing decisions. The experience of citizens juries. Health Policy 49: 45–61.

    Article  Google Scholar 

  • Marsh, Vicky M., Dorcas M. Kamuya, Michael J. Parker, and Catherine S. Molyneux. 2011. Working with concepts: The role of community in international collaborative biomedical research. Public Health Ethics 4 (1): 26–39.

    Article  Google Scholar 

  • Menon, Devidas, and Tania Stafinski. 2008. Engaging the public in priority-setting for health technology assessment: Findings from a citizens’ jury. Health Expectations 11: 282–293.

    Article  Google Scholar 

  • Mitton, Craig, Neale Smith, Stuart Peacock, Brian Evoy, and Julia Abelson. 2009. Public participation in health care priority setting: A scoping review. Health Policy 91: 219–228.

    Article  Google Scholar 

  • Mompati, Tlamelo, and Gerard Prinsen. 2011. Ethnicity and participatory development methods in Botswana: Some participants are to be seen and not heard. In The participation reader, ed. Andrea Cornwall, 224–237. New York, NY: Zed Books.

    Google Scholar 

  • Muangpin, Mesinee, and Pratch Ruji. 2015. Solutions offered for inequality in state healthcare schemes. The Nation. http://www.nationmultimedia.com/national/Solutions-offered-for-inequality-in-state-healthca-30261650.html. Accessed 21 May 2018.

  • Njue, Maureen, Francis Kombe, Salim Mwalukore, Sassy Molyneux, and Vicky Marsh. 2014. What are fair study benefits in international health research? Consulting community members in Kenya. PLoS One 9 (12): e113112.

    Article  Google Scholar 

  • Norheim, Ole F. 2016. Ethical priority setting for universal health coverage: Challenges in deciding upon fair distribution of health services. BMC Medicine 14: 75.

    Article  Google Scholar 

  • O’Doherty, Kieran, Francois-Pierre Gauvin, Colleen Grogan, and Will Friedman. 2012. Implementing a public deliberative forum. Hastings Center Report 42 (2): 20–23.

    Article  Google Scholar 

  • Oh, Juhwan, Young Ko, Allison Baer Alley, and Soonman Kwon. 2015. Participation of the lay public in decision-making for benefit coverage of national health insurance in South Korea. Health Systems & Reform 1 (1): 62–71.

    Article  Google Scholar 

  • Powers, Madison, and Ruth Faden. 2006. Social justice: The moral foundations of public health and health policy. New York: Oxford University Press.

    Google Scholar 

  • Pratt, Bridget, Maria W. Merritt, and Adnan A. Hyder. 2016. Towards deep inclusion for equity-oriented health research priority-setting: A working model. Social Science & Medicine 15: 215–224.

    Article  Google Scholar 

  • Qingyue, Meng, and Tang Shenglan. 2013. Universal health care coverage in China: Challenges and opportunities. Procedia - Social and Behavioral Sciences 77: 330–340.

    Article  Google Scholar 

  • Ram-Tiktin, Efrat. 2011. A decent minimum for everyone as sufficiency of basic human functional capabilities. American Journal of Bioethics 11: 24–25.

    Article  Google Scholar 

  • Ram-Tiktin, Efrat. 2012. The right to health care as a right to basic human functional capabilities. Ethical Theory and Moral Practice 15: 337–351.

    Article  Google Scholar 

  • Reich, Michael R., Joseph Harris, Naoki Ikegami, Akiko Maeda, Cheryl Cashin, Edson C. Araujo, Keizo Takemi, and Timothy G. Evans. 2016. Moving towards universal health coverage: Lessons from 11 country studies. Lancet 387: 811–816.

    Article  Google Scholar 

  • Richardson, Henry. 2002. Democratic autonomy: Public reasoning about the ends of policy. Oxford: Oxford University Press.

    Google Scholar 

  • Ruger, Jennifer Prah. 2010. Health and social justice. Oxford: Oxford University Press.

    Google Scholar 

  • Shan, Linghan, Qunhong Wu, Chaojie Liu, Ye Li, Yu Cui, Zi Liang, Yanhua Hao, Libo Liang, Ding Ning, Qingxia Pan, and Liyuan Han. 2017. Perceived challenges to achieving universal health coverage: A cross-sectional survey of social health insurance managers/administrators in China. BMJ Open 7: e014425.

    Article  Google Scholar 

  • Shayo, Elizabeth H., Ole F. Norheim, Leonard E.G. Mboera, Jens Byskov, Stephen Maluka, Peter Kamuzora, and Astrid Blystad. 2012. Challenges to fair decision-making processes in the context of health care services: A qualitative assessment from Tanzania. International Journal for Equity in Health 11: 30.

    Article  Google Scholar 

  • Tangcharoensathien, Viroj, Woranan Witthayapipopsakul, Warisa Panichkriangkrai, Walaiporn Patcharanarumol, and Anne Mills. 2018. Health systems development in Thailand: A solid platform for successful implementation of universal health coverage. Lancet 391: 1205–1223.

    Article  Google Scholar 

  • United Nations Development Programme. 2018. Goal 3: Good health and well-being. Available at: http://www.undp.org/content/undp/en/home/sustainable-development-goals/goal-3-good-health-and-well-being.html

  • World Bank. 2010. The path to integrated insurance systems in China. Washington DC: The International Bank for Reconstruction and Development / The World Bank.

    Book  Google Scholar 

  • World Health Organization. 2008. The World Health Report 2008: Primary health care – Now more than ever. Geneva: World Health Organization.

    Book  Google Scholar 

  • World Health Organization. 2014. Making fair choices on the path to universal health coverage: Final report of the WHO Consultative Group on Equity and Universal Health Coverage. Geneva: World Health Organization.

    Google Scholar 

  • World Health Organization. 2015. WHO global strategy on people-centred and integrated health services: Interim report. Geneva: World Health Organization.

    Google Scholar 

  • Young, Iris Marion. 1990. Justice and the politics of difference. Princeton: Princeton University Press.

    Google Scholar 

  • Young, Iris Marion. 2000. Inclusion and democracy. Oxford: Oxford University Press.

    Google Scholar 

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Acknowledgements

The author would like to thank the speakers and attendees of the ABR Research Conference on the Ethics of Universal Health Coverage, held at the National University of Singapore, 5–7 February 2018. Their insightful presentations and comments informed the thinking that is reflected in this paper.

Funding

BP is currently supported by an Australian Research Council (ARC) Discovery Early Career Researcher Award (Award No. DE170100414).

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Correspondence to Bridget Pratt.

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BP’s participation (travel and accommodation) in the ABR Research Conference on the Ethics of Universal Health Coverage was supported by the National University of Singapore.

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The contents of this article are solely the responsibility of the author and do not reflect the views of the ARC.

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Pratt, B. Justice and public participation in universal health coverage: when is tiered coverage unfair and who should decide?. ABR 11, 5–19 (2019). https://doi.org/10.1007/s41649-018-0064-x

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