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Spillover Effects of Long-Term Disabilities on Close Family Members

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Abstract

Background

Care and support of people dealing with long-term disabilities involves the entire family.

Objective

This paper evaluates the effect of living with a relative dealing with a long-term disability on the health status of all family members in the household.

Methods

Using information from the Swiss household panel from the year 1999 to 2003 (n = 18,030), a linear regression is implemented to compare the health status of family members cohabiting with individuals dealing with a long-term disability with the health status of individuals of similar characteristics in the general population. Additionally, a non-parametric graphical analysis estimates the smooth patterns of the results over time.

Results

Family members who cohabit with a person dealing with a long-term disability have a consistently reduced health status. The size of the impact depends on the sex and the role in the family. In general, women show the most negative effects. For children, the impact depends on the relationship with the disabled person.

Conclusions

Recognizing the presence of health spillovers can help to design policies to better support families. Being the perceived health status a good indicator of the use of health services and mortality, the health system should focus on the entire family, and not only on the patient or the main caregiver.

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Fig. 1

Source Data from the Swiss Household Panel (SHP)

Fig. 2

Source Data from the Swiss Household Panel (SHP)

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References

  1. Knox M. Family control: the views of families who have a child with an intellectual disability. J Appl Res Intellect Disabil. 2000;13(1):17–28.

    Article  Google Scholar 

  2. Tilford JM, Payakachat N. Progress in measuring family spillover effects for economic evaluations. Expert Rev Pharmacoecon Outcomes Res. 2014;15(2):195–8.

    Article  PubMed  PubMed Central  Google Scholar 

  3. Brouwer WB. Too important to ignore: informal caregivers and other significant others. Pharmacoeconomics. 2006;24(1):39–41.

    Article  PubMed  Google Scholar 

  4. Wittenberg E, Prosser LA. Disutility of illness for caregivers and families: a systematic review of the literature. Pharmacoeconomics. 2013;31(6):489–500.

    Article  PubMed  PubMed Central  Google Scholar 

  5. Roper SO, Allred DW, Mandleco B, Freeborn D, Dyches T. Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children. Fam Syst Health. 2014;32(2):241–6.

    Article  PubMed  Google Scholar 

  6. Stoneman Z, Gavidia-Payne S. Marital adjustment in families of young children with disabilities: associations with daily hassles and problem-focused coping. Am J Ment Retard. 2006;111(1):1–14.

    Article  PubMed  Google Scholar 

  7. LeClere F, Marsteller Kowalewski B. Disability in the family: the effects on children’s well-being. J Marriage Fam. 1994;56(2):457–68.

    Article  Google Scholar 

  8. Coe NB, Van Houtven CH. Caring for mom and neglecting yourself? The health effects of caring for an elderly parent. Health Econ. 2009;18:991–1010.

    Article  PubMed  Google Scholar 

  9. Al-Janabi H, Van Exel J, Brouwer W, Trotter C, Glennie L, Hannigan L, et al. Measuring health spillovers for economic evaluation: a case study in meningitis. Health Econ. 2016;25:1529–44.

    Article  PubMed  Google Scholar 

  10. Gallagher SK, Mechanic D. Living with the mentally ill: effects on the health and functioning of other households members. Soc Sci Med. 1996;42(12):1691–701.

    Article  CAS  PubMed  Google Scholar 

  11. Lavelle TA, Wittenberg E, Lamarand K, Prosser LA. Variation in the spillover effects of illness on parents, spouses, and children of the chronically ill. Appl Health Econ Health Policy. 2014;12(2):117–24.

    Article  PubMed  PubMed Central  Google Scholar 

  12. Farrel AF, Krahn GL. Family life goes on: disability in contemporary families. Fam Relat. 2014;63(1):1–6.

    Article  Google Scholar 

  13. Gaugle J, Kane R, editors. Family caregiving in the new normal. 1st ed. Minnesota: Elsevier; 2015.

    Google Scholar 

  14. Marks NF. Does it hurt to care? Caregiving, work-family conflict, and midlife well-being. J Marriage Fam. 1998;60(4):951–66.

    Article  Google Scholar 

  15. De Salvo KB, Fan VS, McDonell MB, Fihn SD. Predicting mortality and healthcare utilization with a single question. Health Serv Res. 2005;40(4):1234–46.

    Article  Google Scholar 

  16. Montgomery M. Are women really happier than men around the world? Guest post by Mallory Montgomery. 2016. https://blogs.worldbank.org/impactevaluations/are-women-really-happier-men-around-world-guest-post-mallory-montgomery. Accessed 5 Oct 2017.

  17. Lalive R, Lehman T. The labor market in Switzerland, 2000–2016. IZA World of Labor. 2017;402. https://doi.org/10.15185/izawol.402.

  18. Sturny I. The Swiss health care system. Swiss Health Observatory.  International Health Care Systems Profiles. 2017. http://international.commonwealthfund.org/countries/switzerland.

  19. Angrist JD, Pischke JS. Mostly harmless econometrics: an empiricist’s companion. London: Princeton University Press; 2009.

    Google Scholar 

  20. King G, Nielsel R. Working Paper. Why propensity scores should not be used for matching. Harvard University, Gary King webpage; 2016. https://gking.harvard.edu/publications/why-propensity-scores-should-not-be-used-formatching. Accessed 10 Jan 2018.

  21. Wittenberg E, Ritter GA, Prosser LA. Evidence of spillovers of illness among household members: EQ-5D scores from a US sample. Med Decis Making. 2013;33(2):235–43.

    Article  PubMed  Google Scholar 

  22. Davidson T, Krevers B, Leven LA. In pursuit of QALY weights for relatives: empirical estimates in relatives caring for older people. Eur J Health Econ. 2008;9:285–92.

    Article  PubMed  Google Scholar 

  23. Black K, Lobo M. A Conceptual Review of Family Resilience Factors. J Fam Nurs. 2008;14(1):33–55.

    Article  PubMed  Google Scholar 

  24. Offord DR, Aponte JF. Distortion of disability and effect on family life. J Am Acad Child Psychiatry. 1967;6(3):499–511.

    Article  CAS  PubMed  Google Scholar 

  25. McConnell D, Savage A. Stress and resilience among families caring for children with intellectual disability: expanding the research agenda. Curr Dev Disord Rep. 2015;2(2):100–9.

    Article  Google Scholar 

  26. Reichman NE, Corman H, Noonan K. Impact of child disability on the family. Matern Child Health J. 2008;12(6):679–83.

    Article  PubMed  Google Scholar 

  27. Brouwer WB, van Exel NJ, van de Berg B, Dinant HJ, Koopmanschap MA, van den Bos GA. Burden of caregiving: evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. Arthritis Rheum. 2004;51:570–7.

    Article  PubMed  Google Scholar 

  28. Poley MJ, Brouwer WB, van Exel NJ, Tibboel D. Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies. Qual Life Res. 2011;21(5):849–61.

    Article  PubMed  PubMed Central  Google Scholar 

  29. Bobinac A, Van Exel NJA, Rutten FF, Brouwer WB. Caring for and caring about: disentangling the caregiver effect and the family effect. J Health Econ. 2010;29(4):549–56.

    Article  PubMed  Google Scholar 

  30. Fitting M, Rabins P, Lucas J, Eastham J. Caregivers for dementia patients: a comparison of husbands and wives. Gerontologist. 1986;26(3):248–52.

    Article  CAS  PubMed  Google Scholar 

  31. Gallicchio L, Siddiqi N, Langenberg P, Baumgarte M. Gender differences in burden and depression among informal caregivers of dementied elders in the community. Int J Geriatr Psychiatry. 2002;17(2):154–63.

    Article  PubMed  Google Scholar 

  32. Gallagher D, Rose J, Rivera P, Lovett S, Thompson L. Prevalence of depression in family caregivers. Gerontologist. 1989;29(4):449–56.

    Article  CAS  PubMed  Google Scholar 

  33. Young R, Kahana E. Specifying caregiver outcomes: gender and relationship aspects of caregiving strain. Gerontologist. 1989;29(5):660–6.

    Article  CAS  PubMed  Google Scholar 

  34. Miller B, Cafasso L. Gender differences in caregiving: fact or artifact. Gerontologist. 1992;32(4):498–507.

    Article  CAS  PubMed  Google Scholar 

  35. Horowitz A. Sons and daughters as caregivers to older parents: differences in role performance and consequences. Gerontologist. 1985;25(6):612–7.

    Article  CAS  PubMed  Google Scholar 

  36. Goodrich K, Kaambwa B, Al-Janabi H. The inclusion of informal care in applied economic evaluation: a review. Value Health. 2012;15(6):975–81.

    Article  PubMed  Google Scholar 

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Data Availability Statement

The data that support the findings of this study are available at Swiss Centre of Expertise in the Social Sciences FORS center (http://www.swisspanel.ch).

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Corresponding author

Correspondence to Diana Pacheco Barzallo.

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Funding

This research was conducted while the author worked as a research fellow at Swiss Paraplegic Research. This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors.

Conflict of interest

Diana Pacheco declares no conflict of interest.

Additional information

This study has been realized using the data collected by the Swiss Household Panel (SHP), which is based at the Swiss Centre of Expertise in the Social Sciences FORS. The project is financed by the Swiss National Science Foundation.

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Pacheco Barzallo, D. Spillover Effects of Long-Term Disabilities on Close Family Members. Appl Health Econ Health Policy 16, 347–355 (2018). https://doi.org/10.1007/s40258-018-0391-9

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  • DOI: https://doi.org/10.1007/s40258-018-0391-9

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