Abstract
Traditional approaches to palliative care may not meet the unique needs of poor cancer patients in developing countries. Cancer patients treated in India are often unable to make repeat visits to the hospital, pay for drugs, or understand and follow complex treatments. Many are from rural areas and may lack basic financial or social support. Our palliative care clinic has taken a series of innovative first steps towards meeting these unique needs, from providing treatment without complete diagnosis, accelerating through the World Health Organization (WHO) analgesic schedule, systematically simplifying prescriptions, and providing treatment free of charge. This paper describes these first steps, presents an initial evaluation of their impacts, and articulates a number of opportunities for additional improvements.
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References
Breitbart W (1994) Cancer pain management guidelines: implications for psycho-oncology. Psyco-Oncol 3:103–108
Twycross RG, Lack SA (1983) Symptom control in far advanced cancer. Pitman, London
Cherny NI, Coyle N, Foley KM (1994) Suffering in the advanced cancer patient: a definition and taxonomy. J Palliat Care 10(2):57–70
Walsh D, Regan J (2001) Terminal care in the home—the general practice perspective. Ir Med J 94(1):9–11
Walsh D, Donnelly S, Rybicki L (2000) The symptoms of advanced cancer: relationship to age, gender, and performance status in 1,000 patients. Support Care Cancer 8(3):175–179
Vainio A, Auvinen A (1996) Prevalence of symptoms among patients with advanced cancer: an international collaborative study. symptom prevalence group. J Pain Symptom Manag 12(1):3–10
Higginson IJ, Hearn J (1997) A Multicenter evaluation of cancer pain control by palliative care teams. J Pain Symptom Manag 14(1):29–35
Clemens KE, Kumar S, Bruera E et al (2007) Palliative care in developing countries: what are the important issues? Palliat Med 21(3):173–175
Ahmad N, Kamal M, Anwar M et al (2006) Needs of terminally ill patients and their families: an experience with fifty three patients attending a newly organized palliative care service in Bangladesh. J BSA 19(1&2):38–43
Dumitrescu L, van den Heuvel-Olaroiu M, van den Heuvel WJ (2007) Changes in symptoms and pain intensity of cancer patients after enrollment in palliative care at home. J Pain Symptom Manag 34(5):488–496
Strasser F, Sweeney C, Willey J et al (2004) Impact of a half-day multidisciplinary symptom control and palliative care outpatient clinic in a comprehensive cancer center on recommendations, symptom intensity, and patient satisfaction: a retrospective descriptive study. J Pain Symptom Manag 27(6):481–491
International Association for the Study of Pain (1986) Pain terms. A current list of definitions ad notes on usage. Pain 27: Supplement 3
Bruera E, Watanabe S (1994) New developments in the assessment of pain in cancer patients. Support Care Cancer 2(5):312–318
Cleeland CS, Gonin R, Hatfield AK et al (1994) Pain and its treatment in outpatients with Metastatic cancer. N Engl J Med 330(9):592–596
Weiss SC, Emanuel LL, Fairclough DL et al (2001) Understanding the experience of pain in terminally ill patients. Lancet 357(9265):1311–1315
Houts PS, Yasko JM, Harvey HA et al (1988) Unmet needs of persons with cancer in Pennsylvania during the period of terminal care. Cancer 62(3):627–634
Vachon ML, Kristjanson L, Higginson I (1995) Psychological issues in palliative care: the patient, the family and the process and outcome of care. J Pain Symptom Manag 10(2):142–150
Derogatis LR, Morrow GR, Fetting J et al (1983) The prevalence of psychiatric disorders among cancer patients. JAMA 249(6):751–757
Morita T, Fujimoto K, Tei Y (2005) Palliative care team: the first year audit in Japan. J Pain Symptom Manag 29(5):458–465
Acknowledgments
The authors are thankful to all our patients and caregivers for sharing their experiences. Special thanks go to Dr. Nidhi Kalra for encouraging us.
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No competing financial interest exits.
Ethical Standard
The survey did not involve any therapeutic interventions on patient and did not lead to documentation of data other than that recommended for routine assessment and quality assurance. Therefore, approval of ethical committee was not required.
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Lal, M., Raheja, S., Kale, S. et al. Palliative Care Tailored Towards the Needs of the Poor in India. Indian J Surg Oncol 6, 227–231 (2015). https://doi.org/10.1007/s13193-015-0409-9
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DOI: https://doi.org/10.1007/s13193-015-0409-9