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Decisional Control Preferences in the Hispanic Population in the Bronx

  • Jhosselini Cardenas
  • Pamela Infante
  • Abel Infante
  • Elizabeth Chuang
  • Peter Selwyn
Article

Abstract

Hispanic Americans are among the fastest growing minority groups in the USA, and understanding their preferences for medical decision-making and information sharing is imperative to provide high quality end of life care. Studies exploring these decision control preferences (DCPs) are limited and found inconsistent results. (1) To measure DCPs of Hispanic patients in the Bronx. (2) To measure disclosure of information preferences of Hispanic patients in the Bronx. This is a cross-sectional survey. One hundred nineteen cancer patients who self-identified as Hispanic and were waiting at the oncology clinic at Montefiore Medical Center Cancer Center. Proportions of patients endorsing DCPs and disclosure of information preferences are reported. The relationship between patient characteristics and DCPs was tested using chi-squared tests of homogeneity. The majority (63, 52.9%) preferred shared decision-making with their doctors, families or both, while 46 (38.7%) had an active decision-making style. A minority (9, 7.6%) had a passive decision-making style, deferring to their families, and only 1 (0.8%) deferring to the physician. No demographic characteristics significantly predicted DCPs. The majority of patients agreed or strongly agreed that they wanted to hear all of the information regarding their diagnosis (94%), treatment options (94%), treatment expectations (92%), and treatment risks and benefits (96%). These results confirm our hypothesis that most Hispanic patients prefer either an active or shared decision-making process rather than a passive decision-making process. Most patients prefer disclosure of diagnosis, prognosis, and plan.

Keywords

Healthcare disparities Advanced cancer Health communication Palliative care Hispanic Americans 

Notes

Compliance with Ethical Standards

Conflict of interest

The authors declare that they have no conflicts of interest.

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Copyright information

© American Association for Cancer Education 2018

Authors and Affiliations

  • Jhosselini Cardenas
    • 1
  • Pamela Infante
    • 2
  • Abel Infante
    • 2
  • Elizabeth Chuang
    • 1
  • Peter Selwyn
    • 3
  1. 1.Department of Family and Social Medicine, Palliative Care ServiceMontefiore Medical CenterBronxUSA
  2. 2.Department of Family and Social MedicineMontefiore Medical CenterBronxUSA
  3. 3.Department of Family and Social MedicineAlbert Einstein College of MedicineBronxUSA

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