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De zorg voor kinderen met downsyndroom

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Huisarts en wetenschap Aims and scope

Samenvatting

Weijerman ME. De zorg voor kinderen met het downsyndroom. Huisarts Wet 2013;56(10):534-9.

De levensverwachting van kinderen met het syndroom van Down is sterk verbeterd en de prevalentie is in het afgelopen decennium stabiel gebleven. Mensen met het downsyndroom vormen thans een gevarieerde groep qua klinisch beeld, sociaal en cognitief ontwikkelingsniveau, leefwijze en plaats in de maatschappij. De comorbiditeit is veranderd en preventieve zorg op de kinderleeftijd is belangrijker geworden. De meeste kinderen met downsyndroom groeien thuis in het gezin op en daardoor komen de hulpvragen vaker bij de huisarts terecht. Onlangs is de multidisciplinaire richtlijn voor de medische begeleiding van kinderen met het downsyndroom van de Nederlandse Vereniging voor Kindergeneeskunde (NVK) herzien. In deze nascholing worden de belangrijkste aandachtspunten voor de huisarts onder de aandacht gebracht.

Abstract

Weijerman ME. Caring for children with Down’s syndrome. Huisarts Wet 2013;56(10):534-9.

The life expectancy of children with Down’s syndrome has improved substantially and the prevalence of the disorder has stabilized in the last 10 years. People with Down’s syndrome form a heterogeneous group, with different clinical symptoms, social and cognitive development, life style, and social position. The nature of comorbidity has changed and preventive care during childhood has become more important. Most children with Down’s syndrome grow up at home with their families, and for this reason families often approach general practitioners with their questions about care and assistance. The Netherlands Paediatrics Association has recently revised its multidisciplinary guideline on the medical management of children with Down’s syndrome, and this article reviews the main points for general practitioners.

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Correspondence to Michel Weijerman.

Additional information

Rijnland ziekenhuis, Simon Smitweg 1, 2353 GA Leiderdorp: dr. M.E. Weijerman, kinderarts • Correspondentie: m.weijerman@rijnland.nl • Mogelijke belangenverstrengeling: niets aangegeven.

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Weijerman, M. De zorg voor kinderen met downsyndroom. HUISARTS WETENSCHAP 56, 534–539 (2013). https://doi.org/10.1007/s12445-013-0263-3

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