Correlates of Positive Aspects of Caregiving Among Family Caregivers of Patients with Acute Myeloblastic Leukaemia
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To evaluate the positive aspects of caregiving and its sociodemographic and clinical correlates in family caregivers of patients with Acute Myeloblastic Leukaemia (AML). A total of 30 caregivers of the patients with AML were evaluated on the Scale for Positive Aspects of Caregiving Experience (SPACE), Family Burden Interview (FBI) and Schedule and Caregiver Strain Index (CSI). On the SPACE, the mean score was highest for the domain of motivation for the caregiving role, followed by the domain of ‘caregiving personal gains’, ‘caregiver satisfaction’ and least score was seen in the domain of ‘self-esteem and social aspect of caring’. All the SPACE domains were negatively correlated with financial burden, disruption of routine family activities, disruption of family interaction, physical health and subjective burden domains of FBI. Effect on physical health of others domain of FBI correlated negatively with all domains of SPACE except ‘self esteem and social aspect of caregiving’. FBI total objective burden was negatively correlated with motivation for caregiving role, caregiver satisfaction and total SPACE score. All SPACE domains were negatively correlated with adaptation and inconvenience domains and total CSI score. Lower level of positive caregiving experience is reported by caregivers who experience high level of caregiver burden.
KeywordsCaregivers Acute myeloblastic leukaemia Cancer Burden
Compliance with Ethical Standards
The study was approved by the Ethics Committee of the Institute and declaration of Helsinki. All the patients and caregivers provided written informed consent prior to induction into the study. The study was not funded by any funding agency.
Conflict of interest
All authors declare that they have no conflict of interest.
- 2.Cancer Facts & Figures 2013 (2013) http://www.cancer.org/acs/groups/content/@epidemiologysurveilance/documents/document/acspc-036845.pdf. Accessed 16 June 2017