Rasch Analysis of the Families in Early Intervention Quality of Life (FEIQoL) Scale

Abstract

Family quality of life (FQoL) has become one of the main outcomes of services for people with disabilities and their families, especially in early intervention, which nowadays is all about families. In this article, we analyze and validate the psychometric properties of the FEIQoL scale with Spanish families in early intervention, through Rasch analysis. A total of 776 families of children 0–6 completed the FEIQoL. To assess the Rasch model, we analyzed the item fit, reliability and separation, unidimensionality, response forms, and DIF analyses. The results indicated that the scores on the FEIQoL were reliable and fit the Rasch model. The response forms were adequate, the item difficulty matched respondents’ ability levels, and we found unidimensionality in the 3 factors. DIF analysis indicated that the items did not function differently by child age. The FEIQoL could be improved by modifying misfitting items and possibly including more difficult items for respondents with high FQoL.

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References

  1. Ashley, L., Smith, A. B., Keding, A., Jones, H., Velikova, G., & Wright, P. (2013). Psychometric evaluation of the Revised Illness Perception Questionnaire (IPQ-R) in cancer patients: confirmatory factor analysis and Rasch analysis. Journal of Psychosomatic Research, 75, 556–562.

    Google Scholar 

  2. Bailey, D., & Bruder, M. B. (2005). Family outcomes of early intervention and early childhood special education: issues and considerations. Menlo Park: Early Childhood Outcomes Center.

    Google Scholar 

  3. Bailey, D., McWilliam, R. A., Darkes, L. A., Hebbeler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64, 313–328.

    Google Scholar 

  4. Balcells-Balcells, A. (2011). L’impacte dels serveis i la relació professional en la qualitat de vida de les famílies amb fills amb discapacitat intellectual [Impact of services and relationships with professionals in the family quality of life of families with children with intellectual disabilities]. Doctoral dissertation, Universitat Ramon Llull, FPCEEB—Psicologia, Barcelona, Spain.

  5. Balcells-Balcells, A., Giné, C., Guàrdia-Olmos, J., & Summers, J. A. (2011). Family quality of life: adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55, 1151–1163.

    Google Scholar 

  6. Belvedere, S. L., & de Morton, N. A. (2010). Application of Rasch analysis in health care is increasing and is applied for variable reasons in mobility instruments. Journal of Clinical Epidemiology, 63, 1287–1297.

    Google Scholar 

  7. Blackman, J. A. (2002). Early intervention: A global perspective. Infants & Young Children, 15, 11–19.

    Google Scholar 

  8. Boavida, T., Akers, K., McWilliam, R. A., & Jung, L. A. (2015). Rasch analysis of the routines-based interview implementation checklist. Infants & Young Children, 28, 237–247.

    Google Scholar 

  9. Bond, T. G., & Fox, C. M. (2007). Applying the Rasch model: fundamental measurement in the human sciences (2nd ed.). Mahwah: Lawrence Erlbaum Associates Publishers.

    Google Scholar 

  10. Bond, T., & Fox, C. M. (2015). Applying the Rasch model: Fundamental measurement in the human sciences (3rd ed.). New York: Routledge.

  11. Bricker, D., Yovanoff, P., Capt, B., & Allen, D. (2003). Use of a curriculum-based measure to corroborate eligibility decisions. Journal of Early Intervention, 26, 20–30.

    Google Scholar 

  12. Brown, R. I., MacAdam-Crisp, J., Wang, M., & Iarocci, G. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3, 238–245.

    Google Scholar 

  13. Čagran, B., Schmidt, M., & Brown, I. (2011). Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia. Journal of Intellectual Disability Research, 55, 1164–1175.

    Google Scholar 

  14. Cella, D. F., Dineen, K., Arnason, B., Reder, A., Webster, K. A., Karabatsos, G., Chang, C., Lloyd, S., Mo, F., Stewart, J., & Stefoski, D. (1996). Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology, 47, 129–139.

    Google Scholar 

  15. Chen, W. H., McLeod, L. D., & Coles, T. M. (2014). Rasch first? Factor first? Value in Health, 17, A569.

    Google Scholar 

  16. Chien, C. W., & Bond, T. G. (2009). Measurement properties of fine motor scale of Peabody developmental motor scales-: a Rasch analysis. American Journal of Physical Medicine & Rehabilitation, 88, 376–386.

    Google Scholar 

  17. Christensen, K. B., Engelhard, G., & Salzberger, T., Jr. (2012). Ask the experts: Rasch vs. factor analysis. Rasch Measurement Transactions, 26, 1373–1378.

    Google Scholar 

  18. Davis, K., & Gavidia-Payne, S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability, 34, 153–162.

    Google Scholar 

  19. DiStefano, C., Greer, F. W., Kamphaus, R. W., & Brown, W. H. (2014). Using Rasch rating scale methodology to examine a behavioral screener for preschoolers at risk. Journal of Early Intervention, 36, 192–211.

    Google Scholar 

  20. Dunst, C. J., & Bruder, M. B. (2002). Valued outcomes of service coordination, early intervention, and natural environments. Exceptional Children, 68, 361–375.

    Google Scholar 

  21. Fischer, G. H., & Molenaar, I. W. (Eds.). (1995). Rasch models: Foundations, recent developments, and applications. New York: Springer-Verlag.

    Google Scholar 

  22. Fitzpatrick, R., Norquist, J. M., Dawson, J., & Jenkinson, C. (2003). Rasch scoring of outcomes of total hip replacement. Journal of Clinical Epidemiology, 56, 68–74.

    Google Scholar 

  23. García-Grau, P. (2015). Atención Temprana: Modelo de intervención en entornos naturales y calidad de vida familiar (unpublished doctoral dissertation). Universidad Católica de Valencia, Valencia, España.

  24. Garcia-Grau, P., McWilliam, R. A., Martinez-Rico, G., & Grau-Sevilla, M. D. (2018). Factor structure and internal consistency of a Spanish version of the family quality of life (FaQoL). Applied Research in Quality of Life, 1–14.

  25. García-Grau, P., McWilliam, R. A., Martínez-Rico, G., & Morales-Murillo, C. P. (2019). Child, family, and early intervention characteristics related to family quality of life in Spain. Journal of Early Intervention, 41, 44–61.

    Google Scholar 

  26. Giné, C., Vilaseca, R., Gràcia, M., Mora, J., Ramón Orcasitas, J., Simón, C., et al. (2013). Spanish family quality of life scales: under and over 18 years old. Journal of Intellectual and Developmental Disability, 38, 141–148.

    Google Scholar 

  27. Guralnick, M. J. (2001). A developmental systems model for early intervention. Infants and Young Children, 14, 1–18.

    Google Scholar 

  28. Handley, L. I., Jackson, T. L. W., & Jackson, T. R. (2008). An evaluation of the validity of inferences made from 3 diabetes assessment instruments: a Rasch analysis. Research in Social and Administrative Pharmacy, 4, 67–81.

    Google Scholar 

  29. Ho, E., James, N., Brown, I., Firkowska-Mankiewicz, A., Zasępa, E., Wołowicz, A., & Wapiennik, E. (2013). Family quality of life of Polish families with a member with intellectual disability. Journal on Developmental Disabilities, 19, 36–41.

    Google Scholar 

  30. Hoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing family outcomes: psychometric evaluation of the beach center family quality of life scale. Journal of Marriage and Family, 68, 1069–1083.

    Google Scholar 

  31. Hu, X., Summers, J. A., Turnbull, A., & Zuna, N. (2011). The quantitative measurement of family quality of life: a review of available instruments. Journal of Intellectual Disability Research, 55, 1098–1114.

    Google Scholar 

  32. Isaacs, B. J., Brown, I., Brown, R. I., Baum, N., Myerscough, T., Neikrug, S., Roth, D., Shearer, J., & Wang, M. (2007). The international family quality of life project: goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities, 4, 177–185.

    Google Scholar 

  33. Jung, L. A., Bradley, K. D., Sampson, S. O., McWilliam, R. A., & Toland, M. D. (2015). Evaluating construct validity and internal consistency of early childhood individualized family service plans. Studies in Educational Evaluation, 45, 10–16.

    Google Scholar 

  34. Kober, R., & Eggleton, I. R. (2009). Using quality of life to evaluate outcomes and measure effectiveness. Journal of Policy and Practice in Intellectual Disabilities, 6, 40–51.

    Google Scholar 

  35. Kook, S. H., & Varni, J. W. (2008). Validation of the Korean version of the pediatric quality of life inventory™ 4.0 (PedsQL™) generic core scales in school children and adolescents using the rasch model. Health and Quality of Life Outcomes, 6, 41.

    Google Scholar 

  36. Linacre, J. M. (1999). Investigating rating scale category utility. Journal of Outcome Measurement, 3, 103–122.

    Google Scholar 

  37. Linacre, J. M. (2000). Item discrimination and infit mean-squares. Rasch Measurement Transactions, 14, 743.

    Google Scholar 

  38. Linacre, J. M. (2006). Rasch analysis of rank-ordered data. Journal of Applied Measurement, 7, 129–139.

    Google Scholar 

  39. Linacre, J. (2013). Differential item functioning DIF sample size nomogram. Rasch Measurement Transactions, 26, 1391.

    Google Scholar 

  40. Linacre, J. (2018). Help for Winsteps Rasch Measurement and Rasch Analysis Software. Retrieved on March 21, 2019 from https://www.winsteps.com/winman/misfitdiagnosis.htm.

  41. Masters, G. N. (1982). A Rasch model for partial credit scoring. Psychometrika, 47, 149–174.

    Google Scholar 

  42. McWilliam, R. A. (2010). Routines-based early intervention. Supporting young children and their families. Balitimore: Paul H. Brookes.

    Google Scholar 

  43. McWilliam, R. A., & Casey, A. M. (2013). Factor analysis of family quality of life (FaQoL). Nashville: Unpublished manuscript.

    Google Scholar 

  44. Meral, F., Cavkaytar, A., Turnbull, A. P., & Wang, M. (2013). Family quality of life of Turkish families who have children with intellectual disabilities and autism. Research and Practice for Persons with Severe Disabilities, 38, 233–246.

    Google Scholar 

  45. Muñiz, J. (1989). Robustez de las estimaciones del modelo de Rasch. Anuario de psicología n°43., España.

  46. Muñiz, J. (2010). Las teorías de los tests: teoría clásica y teoría de respuesta a los ítems. Papeles del psicólogo, 31, 57–66.

    Google Scholar 

  47. Noerholm, V., Groenvold, M., Watt, T., Bjorner, J. B., Rasmussen, N. A., & Bech, P. (2004). Quality of life in the Danish general population–normative data and validity of WHOQOL-BREF using Rasch and item response theory models. Quality of Life Research, 13, 531–540.

    Google Scholar 

  48. Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: a qualitative inquiry. Mental Retardation, 41, 313–328.

    Google Scholar 

  49. Prieto, L., Alonso, J., & Lamarca, R. (2003). Classical test theory versus Rasch analysis for quality of life questionnaire reduction. Health and Quality of Life Outcomes, 1, 27.

    Google Scholar 

  50. Rasch, G. (1960). Probabilistic models for some intelligence and achievement tests. Copenhagen: Danish Institute for Educational Research.

    Google Scholar 

  51. Rasch, G. (1980). Probabilistic Models for Intelligence and Attainment Tests (Expanded Edition), University of Chicago Press: Chicago, IL (original work published 1960).

  52. Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45, S22–S31.

    Google Scholar 

  53. Romaguera, E. (2017). Influential variables in family quality of life in families with children with cerebral palsy in Anantapur, India. Unpublished doctoral dissertation, Universidad Católica de Valencia, Valencia.

  54. Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., Keith, K. D., & Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457–470.

    Google Scholar 

  55. Shonkoff, J. P., & Meisels, S. J. (Eds.). (2000). Handbook of early childhood intervention. New York: Cambridge University Press.

  56. Smith, A. B., Armes, J., Richardson, A., & Stark, D. P. (2013). Psychological distress in cancer survivors: the further development of an item bank. Psycho-Oncology, 22, 308–314.

    Google Scholar 

  57. Snyder, S., & Sheehan, R. (1992). The Rasch measurement model: an introduction. Journal of Early Intervention, 16, 87–95.

    Google Scholar 

  58. Streiner, D. L., Norman, G. R., & Cairney, J. (2015). Health measurement scales: A practical guide to their development and use. USA: Oxford University Press.

    Google Scholar 

  59. Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Fleming, K., Poston, D. J., Wang, M., & Kupzyk, K. (2007). Relationship of perceived adequacy of services, family–professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education, 54, 319–338.

    Google Scholar 

  60. Tennant, A., & Conaghan, P. G. (2007). The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Care & Research, 57, 1358–1362.

    Google Scholar 

  61. Turnbull, A. P., Blue-Banning, M., Turbiville, V., & Park, J. (1999). From parent education to partnership education: a call for a transformed focus. Topics in Early Childhood Special Education, 19, 164–172.

    Google Scholar 

  62. Vélez, C. M., Lugo-Agudelo, L. H., Hernández-Herrera, G. N., & García-García, H. I. (2016). Colombian Rasch validation of KIDSCREEN-27 quality of life questionnaire. Health and Quality of Life Outcomes, 14, 67.

    Google Scholar 

  63. Verdugo, M.A. (2004). Calidad de vida y calidad de vida familiar. II Congreso internacional de discapacidad intelectual: enfoques y realidad: un desafío. Medellín, Colombia.

  64. Verdugo, M. A., Córdoba, I., & Gómez, J. (2006). Adaptación y validación al español de la escala de calidad de vida familar (ECVF). Siglo Cero, 37, 41–48.

    Google Scholar 

  65. Verdugo, M. A., Rodríguez, A., & Sainz, F. (2009). Escala de calidad de vida familiar. Salamanca: Universidad de Salamanca, INICO.

    Google Scholar 

  66. Wang, M., & Brown, R. (2009). Family quality of life: A framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12, 144–167.

    Google Scholar 

  67. Wang, M., Mannan, H., Poston, D., Turnbull, A. P., & Summers, J. A. (2004). Parents' perceptions of advocacy activities and their impact on family quality of life. Research and Practice for Persons with Severe Disabilities, 29, 144–155.

    Google Scholar 

  68. Wiren, L., Whalley, D., McKenna, S., & Wilhelmsen, L. (2000). Application of a disease specific, quality of life measure (QoL AGHDA) in growth hormone deficient adults and a random population sample in Sweden: validation of the measure by Rasch analysis. Clinical Endocrinology, 52, 143–152.

    Google Scholar 

  69. Zucca, A., Lambert, S. D., Boyes, A. W., & Pallant, J. F. (2012). Rasch analysis of the Mini-Mental Adjustment to Cancer Scale (mini-MAC) among a heterogeneous sample of long-term cancer survivors: a cross-sectional study. Health and Quality of Life Outcomes, 10, 55.

    Google Scholar 

  70. Zuna, N. I., Turnbull, A., & Summers, J. A. (2009). Family quality of life: Moving from measurement to application. Journal of Policy and Practice in Intellectual Disabilities, 6, 25–31.

  71. Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X. & Xu, S. (2010), Theorizing about family quality of life. In R. Kober, Enhancing Quality of Life for People with Intellectual Disabilities: From Theory to Practice, 241–78. Springer Publishing, Dordrecht, Netherlands.

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García-Grau, P., McWilliam, R.A., Martínez-Rico, G. et al. Rasch Analysis of the Families in Early Intervention Quality of Life (FEIQoL) Scale. Applied Research Quality Life 16, 383–399 (2021). https://doi.org/10.1007/s11482-019-09761-w

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Keywords

  • Rasch analysis
  • Validity
  • Reliability
  • Family quality of life
  • Early intervention