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Chinese Immigrant Mothers of Children with Developmental Disabilities: Stressors and Social Support

Original Article

Abstract

This qualitative study examined Chinese immigrant mothers of children with developmental disabilities (DDs) about their experiences of stressors, social support, and traditional cultural beliefs in Canada. Fifteen mothers were recruited from Toronto through one community organization. One-on-one semi-structured in-depth interviews on mothers in Mandarin were used in private settings. A descriptive qualitative approach was applied (Sandelowski, Research in Nursing & Health, 23, 334–340, 2000, Research Nursing Health, 33(1), 77–84, 2010). Analyses were guided by House’s (1981) classification of social support (structural, instrumental, emotional, and perceptive). Mothers expressed challenges in accessing services for their children, such as limited financial resources, occupational unemployment, excessive paper work, long waiting times, language barriers, limited knowledge of social services, emotional strain, transportation difficulties, dispersed services, and feelings of “loss of face.” All mothers actively seek treatments for their children without traditional “reciprocity thought.” The findings provide a better understanding of Chinese immigrant mothers’ experiences raising children with DDs in Canada. Implications of the study are also discussed.

Keywords

Chinese immigrant mothers Developmental disabilities Stress Social support Cultural beliefs 

Notes

Funding

Funding for the project was provided by Meighen Wright Maternal Child Health (formerly named Lillian Wright Postdoctoral Fellowship in Maternal-Child Health), Faculty of Health, York University. Dr. Nazilla Khanlou is an Associate Professor at York University and a postdoctoral supervisor of Dr. Chang Su.

Compliance with Ethical Standards

This study obtained ethical approval from a university’s Research Ethics Board in Toronto, Canada.

Conflict of Interest

The authors declare that they have no conflicts of interest.

References

  1. Ahmed, A., Stewart, E. D., Teng, L., Wahoush, O., & Gagnon, J. A. (2008). Experiences of immigrant new mothers with symptoms of depression. Archives of Women’s Mental Health, 11, 295–303.  https://doi.org/10.1007/s00737-008-0025-6.CrossRefPubMedGoogle Scholar
  2. Armstrong, M. I., Birnie-Lefcovitch, S., & Ungar, M. T. (2005). Pathways between social support, family well-being, quality of parenting, and child resilience: what we know. Journal of Child and Family Studies, 14, 269–281.  https://doi.org/10.1007/s10826-005-5054-4.CrossRefGoogle Scholar
  3. Bailey, D. B., Skinner, D., Correa, C., Arcia, E., Reyes-Blances, M. E., Rodriguez, P., Vazquez-Montilla, E., & Skinner, M. (1999). Needs and supports reported by Latino families of young children with developmental disabilities. American Journal on Mental Retardation, 104(5), 437–451.  https://doi.org/10.1352/0895-8017(1999)104<0437:NASRBL>2.0.CO;2.CrossRefPubMedGoogle Scholar
  4. Beresford, B. (1994). Resources and strategies: how parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35, 171–209.  https://doi.org/10.1111/j.1469-7610.1994.tb01136.x.CrossRefPubMedGoogle Scholar
  5. Boyce, C., & Neale, P. (2006). Conducting in-depth interviews: a guide for designing and conducting in-depth interviews for evaluation input. http://www2.pathfinder.org/site/DocServer/m_e_tool_series_indepth_interviews.pdf,  https://doi.org/10.1038/nm1206-1356.
  6. Canadian Magazine Immigration (2016). Chinese Immigrants in Canada. http://canadaimmigrants.com/chinese-immigrants-to-canada/.
  7. Chan, S. (1997). Families with Asian roots. In E. W. Lynch & M. J. Hanson (Eds.), Developing cross-cultural competence: a guide for working children and their families (2nd ed.). Baltimore: Brookes.Google Scholar
  8. Chao, R., & Tseng, V. (2002). Parenting of Asians. In M. H. Bornstein (Ed.), Handbook of parenting: Vol. 4: Social conditions and applied parenting (2nd ed., pp. 59–93). Mahwah: Erlbaum.Google Scholar
  9. Chen, R., Brodwin, M. G., Cardoso, E., & Chan, F. (2002). Attitudes toward people with disabilities in the social context of dating and marriage: a comparison of American, Taiwanese, and Singaporean college students. Journal of Rehabilitation, 68(4), 5–11.Google Scholar
  10. Colker, R. (2015). Blaming mothers: a disability perspective. Rethinking Schools, 30(2), 32–35.Google Scholar
  11. Darling, C. A., Senatore, N., & Strachan, J. (2011). Fathers of children with disabilities: stress and life satisfaction. Stress and Health, 28, 269–278.  https://doi.org/10.1002/smi.1427.CrossRefPubMedGoogle Scholar
  12. DeLambo, D., Chung, W., & Huang, W. (2011). Stress and age: a comparison of Asian American and non-Asian American parents of children with developmental disabilities. Journal of Developmental and Physical Disabilities, 23(2), 129–141.  https://doi.org/10.1007/s10882-010-9211-3.CrossRefGoogle Scholar
  13. Dowling, M., & Dolan, L. (2001). Families with children with disabilities: inequalities and social model. Disability and Society, 16(1), 21–35.  https://doi.org/10.1080/713662027.CrossRefGoogle Scholar
  14. Fuligni, A. J., & Pedersen, S. (2002). Family obligation and the transition to young adulthood. Developmental Psychology, 38(5), 856–868.  https://doi.org/10.1037/0012-1649.38.5.856.CrossRefPubMedGoogle Scholar
  15. Gottlieb, B. H. (1983). Social support strategies. Beverly Hills: Sage Publications.  https://doi.org/10.1016/0002-9343(83)90468-0.Google Scholar
  16. Greenwood, N., Habibi, R., Smith, R., & Manthorpe, J. (2014). Barriers to access and minory ethnic carers’ satisfaction with services in the community. Health and Social Care, 23, 64–78.  https://doi.org/10.1111/hsc.12116.CrossRefGoogle Scholar
  17. Hampton, Z. N., & Xiao, F. (2009). Traditional Chinese values and attitudes of Chinese university students toward people with intellectual disabilities. International Journal of Disability, Development and Education, 56(3), 247–261.  https://doi.org/10.1080/10349120903102270.CrossRefGoogle Scholar
  18. Herman, E. S., & Marcenko, O. M. (1997). Perceptions of services and resources as mediators of depression among parents of children with developmental disabilities. Mental Retardation, 35(6), 458–467.  https://doi.org/10.1352/0047-6765(1997)035<0458:POSARA>2.0.CO;2.CrossRefPubMedGoogle Scholar
  19. Hernandez-Plaza, S., Alonso-Morillejo, E., & Pozo-Munoz, C. (2006). Social support interventions in migrant populations. British Journal of Social Work, 36(7), 1151–1169.  https://doi.org/10.1093/bjsw/bch396.CrossRefGoogle Scholar
  20. Ho, D. Y. (1976). On the concept of face. American Journal of Sociology, 81(4), 867–884.  https://doi.org/10.1086/226145.CrossRefGoogle Scholar
  21. Ho, D. (1996). Filial piety and its psychological consequences. In M. H. Bond (Ed.), The handbook of Chinese psychology (pp. 155–165). Hong Kong: Oxford University.Google Scholar
  22. Holroyd, E. E. (2003). Chinese cultural influences on parental caregiving obligations toward children with disabilities. Qualitative Health Research, 13(1), 4–19.CrossRefPubMedGoogle Scholar
  23. House, J. S. (1981). Work, stress and social support. Reading: Addison-Wesley.  https://doi.org/10.1177/000348948109000617.Google Scholar
  24. Jennings, J., Khanlou, N., & Su, C. (2014). Public health policy and social support for immigrant mothers raising disabled children in Canada. Disability and Society, 29(10), 1645–1657.  https://doi.org/10.1080/09687599.2014.966804.CrossRefGoogle Scholar
  25. Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883–893.  https://doi.org/10.1111/j.1365-2788.2006.00906.x.CrossRefPubMedGoogle Scholar
  26. Khanlou, N., & Haque, N. (2013). Information sheet 1: voices of immigrant mothers of children with disabilities: availability and use of social support. Toronto: York University http://nkhanlou.info.yorku.ca/files/2014/12/Information-Sheet-2-Research-to-Action_Nov212014.pdf.Google Scholar
  27. Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015a). It is an issue of not knowing where to go: service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840–1847.  https://doi.org/10.1007/s10903-014-0122-8.CrossRefPubMedGoogle Scholar
  28. Khanlou, N., Mustafa, N., Vazquez, L. M., Haque, N., & Yoshida, K. (2015b). Stressors and barriers to services for immigrant fathers raising children with developmental disabilities. International Journal of Mental Health & Addiction, 13, 659–674.  https://doi.org/10.1007/s11469-015-9584-8.CrossRefGoogle Scholar
  29. Khanlou, N., Haque, N., Mustafa, N., Vazquez, L. M., Mantini, A., & Weiss, J. (2017). Access barriers to services by immigrant mothers of children with autism in Canada. International Journal of Mental Health Addiction, 15(2), 239–259.  https://doi.org/10.1007/s11469-017-9732-4.CrossRefPubMedPubMedCentralGoogle Scholar
  30. Kramer, E., Kwong, K., Lee, E., & Chung, H. (2002). Cultural factors influencing the mental health of Asian Americans. Western Journal of Meditation, 176(4), 227–231.Google Scholar
  31. Lai, H. M. (2004). Becoming Chinese American: a history of communities and institutions. Walnut Creak: Alta Mira Press.  https://doi.org/10.1007/BF02914549.Google Scholar
  32. Lai, Y., & Ishiyama, F. I. (2004). Involvement of immigrant Chinese Canadian mothers of children with disabilities. Exceptional Children, 71(1), 97–108.  https://doi.org/10.1177/001440290407100106.CrossRefGoogle Scholar
  33. Lo, L., & Wang, L. (2005). Economic status of the Chinese population in the Toronto CMA: immigrant origin and landing period. Journal of International Migration and Integration, 5(1), 107–140.CrossRefGoogle Scholar
  34. McCabe, H. (2007). Parent advocacy in the face of adversity: autism and families in the People’s Republic of China. Focus on Autism and Other Developmental Disabilities, 22(1), 39–50.  https://doi.org/10.1177/10883576070220010501.CrossRefGoogle Scholar
  35. McConnell, D., Savage, A., & Breitkreuz, R. (2014). Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities, 35(4), 833–848.  https://doi.org/10.1016/j.ridd.2014.01.015.CrossRefPubMedGoogle Scholar
  36. Ow, R., Tiong, T. T., & Goh, S. (2004). Diverse perceptions of social support: Asian mothers of children with intellectual disability. Families in Society, 85(2), 214–220.  https://doi.org/10.1606/1044-3894.327.CrossRefGoogle Scholar
  37. Padden, C., & James, E. J. (2017). Stress among parents of children with and without autism spectrum disorder: a comparison involving physiological indicators and parent self-reports. Journal of Developmental and Physical Disabilities, 29(4), 567–586.  https://doi.org/10.1007/s10882-017-9547-z.CrossRefPubMedPubMedCentralGoogle Scholar
  38. Ritzema, A., & Sladeczek, E. I. (2011). Stress in parents of children with developmental disabilities over time. Journal on Developmental Disabilities, 17(2), 21–34.Google Scholar
  39. Ryan, W. G., & Bernard, H. R. (2003). Techniques to identify themes. Field Methods, 15(1), 85–109.  https://doi.org/10.1177/1525822X02239569.CrossRefGoogle Scholar
  40. Sandelowski, M. (2000). Focus on research methods whatever happened to qualitative description? Research in Nursing & Health, 23, 334–340.  https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G.CrossRefGoogle Scholar
  41. Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research Nursing Health, 33(1), 77–84.  https://doi.org/10.1002/nur.20362.Google Scholar
  42. Shea, T., & Bauer, A. (1991). Parent and teachers of children with exceptionalities: a handbook for collaboration. Boston: Allyn and Bacon.Google Scholar
  43. Simich, L., Beiser, M., Stewart, M., & Mwakarimba, E. (2005). Providing social support for immigrants and refugees in Canada: challenges and directions. Journal of Immigrant Health, 7, 259–268.  https://doi.org/10.1007/s10903-005-5123-1.CrossRefPubMedGoogle Scholar
  44. Simmerman, S., Blacher, J., & Baker, B. L. (2001). Fathers’ and mothers’ perceptions of father involvement in families with young children with a disability. Journal of Intellectual & Developmental Disability, 26(4), 325–338.  https://doi.org/10.1080/13668250120087335.CrossRefGoogle Scholar
  45. Su, C., & Hynie, M. (2011). Effects of life stress, social support and cultural norms on parenting styles among mainland Chinese, European-Canadian and Chinese-Canadian immigrant mothers. Journal of Cross-Cultural Psychology, 42(6), 945–963.  https://doi.org/10.1177/002202211038112.CrossRefGoogle Scholar
  46. Sue, D. W. (1994). Asian-American mental health and help seeking behavior:comment on Solberg et al. (1994), Tata and Leong (1994), and Lin (1994). Journal of Counselling Psychology, 41, 292–295.  https://doi.org/10.1037/0022-0167.41.3.292.CrossRefGoogle Scholar
  47. Sue, D. W. (2003). Cultural competence in the treatment of ethnic minority populations. https://www.apa.org/pi/oema/resources/brochures/treatment-minority.pdf, DOI:  https://doi.org/10.1023/B:MEDI.0000005483.80655.15.
  48. Tabora, B. L., & Flaskerud, J. H. (1997). Mental health beliefs, practices and knowledge of Chinese American immigrant women. Issues in Mental Health Nursing, 18, 173–189.CrossRefPubMedGoogle Scholar
  49. Tews, L., & Merali, N. (2008). Helping Chinese parents understand and support children with learning disabilities. Professional Psychology, 39(2), 137–144.  https://doi.org/10.1037/0735-7028.39.2.137.CrossRefGoogle Scholar
  50. Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal Autism Developmental Disorder, 37(10), 1902–1912.  https://doi.org/10.1007/s10803-006-0323-7.CrossRefGoogle Scholar
  51. Thornicroft, G., Rose, D., Kassam, A., & Sartorius, N. (2007). Stigma: ignorance, prejudice or discrimination? The British Journal of Psychiatry, 190(3), 192–193.  https://doi.org/10.1192/bjp.bp.106.025791.CrossRefPubMedGoogle Scholar
  52. Waldman, H. B., Compton, K., Cannella, D., & Perlman, S. P. (2013). Illegal immigrants with disabilities: the complications for children with special needs added to the general difficulties faced by immigrants of overcoming the barriers of culture, economics, language and the availability of health services. The Exceptional Parent, 43(12), 12–14.Google Scholar
  53. Wang, M., & Brown, R. (2009). Family quality of life: a framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12, 144–167.  https://doi.org/10.1080/10522150902874842.CrossRefGoogle Scholar
  54. Wang, S. G., & Lo, L. (2004). Chinese immigrants in Canada: their changing composition and economic performance. In M. Doucet (Ed.), CERIS policy matters series (pp. 1–7). Toronto: The Joint Centre of Excellence for Research on Immigration and Settlement (CERIS).  https://doi.org/10.1088/1741-2560/1/1/001.Google Scholar
  55. Wang, M., Thomas, K. R., Chan, F., & Cheing, G. (2003). A conjoint analysis of factors influencing American and Taiwanese college student’s preferences for people with disabilities. Rehabilitation Psychology, 48, 195–201.  https://doi.org/10.1037/0090-5550.48.3.195.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2018

Authors and Affiliations

  1. 1.Meighen Wright Postdoctoral Fellowship, Office of Women’s Health Research Chair in Mental Health, Faculty of HealthYork UniversityTorontoCanada
  2. 2.Women’s Health Research Chair in Mental Health, Lillian Wright Maternal Child Health Scholars Program, School of NursingYork UniversityTorontoCanada
  3. 3.Dalla Lana School of Public HealthUniversity of TorontoTorontoCanada
  4. 4.Office of Women’s Health Research Chair in Mental Health, Faculty of HealthYork UniversityTorontoCanada

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