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Quality of Life Research

, Volume 27, Issue 4, pp 845–856 | Cite as

The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis

  • Ammarah Y. Soofi
  • Vanina Dal Bello-Haas
  • Michelle E. Kho
  • Lori Letts
Review

Abstract

Background

The nature of amyotrophic lateral sclerosis (ALS) is progressive and degenerative, thus influencing individuals physically, emotionally, and socially. A broad review of qualitative studies that describe the personal experiences of people with ALS with physiotherapy, occupational therapy and speech and language pathology interventions, and how those affect QoL is warranted.

Purpose

This study synthesizes qualitative research regarding the potential that rehabilitation interventions have to maintain and/or improve QoL from the perspective of people with ALS.

Methods

The SPIDER search strategy was applied and five articles met inclusion criteria addressing the perceived impact of rehabilitation on QoL for individuals with ALS.

Results

Four themes emerged: the concept of control; adapting interventions to disease stage; struggles with interventions; and barriers between healthcare providers and patients.

Conclusions

Rehabilitation interventions were perceived to have potential to support QoL by people with ALS. Advantages and limitations of rehabilitation services within this population were identified.

Keywords

Amyotrophic lateral sclerosis (ALS) Physiotherapy (PT) Occupational therapy (OT) Speech and language pathology (SLP) Quality of life (QoL) Rehabilitation 

Notes

Funding

Michelle Kho is funded by a Canada Research Chair in Critical Care Rehabilitation and Knowledge Translation.

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Copyright information

© Springer International Publishing AG, part of Springer Nature 2017

Authors and Affiliations

  • Ammarah Y. Soofi
    • 1
  • Vanina Dal Bello-Haas
    • 1
  • Michelle E. Kho
    • 1
  • Lori Letts
    • 1
  1. 1.School of Rehabilitation SciencesMcMaster UniversityHamiltonCanada

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