Prenatal diagnosis: do prospective parents have the right not to know?
- 361 Downloads
Prenatal diagnosis (PND) challenges the issue of parental autonomy. Two ethical aspects of the parental decision making process with reference to PND have been taken into consideration: the duty to know and the right not to know. Whilst the first approach has been widely discussed in literature, the latter seems to be overlooked. In order to find good moral reasons supporting the right not to know, firstly the duty to know approach was critically analysed. Subsequently, the emphasis was put on the unconditional parental love and the issue of child’s best interests as the features supporting parental right not to know. The clarification of what is good parenthood was presented as the best normative approach supporting the parental right not to know in case of PND. Apart from parental autonomy, raising the question of the right not to know is important in the debate about the place and role of people with disabilities in society.
KeywordsPrenatal diagnosis Right not to know Parenthood Child’s interest Disability
The author would like to thank two anonymous reviewers for their insightful comments that helped to improve the manuscript.
Conflict of interest
- Beauchamp, T., and J. Childress. 2009. Principles of biomedical ethics. Oxford: Oxford University Press.Google Scholar
- Dworkin, R. 1994. Life’s dominion, 18. New York: Vintage Books.Google Scholar
- Frankfurt, H. 2004. The reasons of love. Princeton: University Press.Google Scholar
- Johnson, K., and J. Walmsley. 2010. People with Intelectual Disabilities. Towards a Good Life. University of Bristol: Policy Press.Google Scholar
- Williams, V. 2011. Disability and Discourse. Wiley-Blackwell.Google Scholar
- World Medical Association, 2005-last update, WMA Declaration of Lisbon on the Rights of the Patient. Available: http://www.wma.net/en/30publications/10policies/l4/ [08/11, 2014].