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Prenatal diagnosis: do prospective parents have the right not to know?

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Abstract

Prenatal diagnosis (PND) challenges the issue of parental autonomy. Two ethical aspects of the parental decision making process with reference to PND have been taken into consideration: the duty to know and the right not to know. Whilst the first approach has been widely discussed in literature, the latter seems to be overlooked. In order to find good moral reasons supporting the right not to know, firstly the duty to know approach was critically analysed. Subsequently, the emphasis was put on the unconditional parental love and the issue of child’s best interests as the features supporting parental right not to know. The clarification of what is good parenthood was presented as the best normative approach supporting the parental right not to know in case of PND. Apart from parental autonomy, raising the question of the right not to know is important in the debate about the place and role of people with disabilities in society.

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References

  • Andorno, R., and G. Laurie. 2004. The right not to know: An autonomy based approach. Journal of Medical Ethics 30(5): 435–440.

    Article  Google Scholar 

  • Babkina, N., and J.M. Graham Jr. 2014. New genetic testing in prenatal diagnosis. Seminars in Fetal and Neonatal Medicine 19(3): 214–219.

    Article  Google Scholar 

  • Beauchamp, T., and J. Childress. 2009. Principles of biomedical ethics. Oxford: Oxford University Press.

    Google Scholar 

  • Benn, P.A., and A.R. Chapman. 2009. Practical and ethical considerations of noninvasive prenatal diagnosis. JAMA - Journal of the American Medical Association 301(20): 2154–2156.

    Article  Google Scholar 

  • Blustein, J. 1997. Procreation and parental responsibility. Journal of Social Philosophy 28(2): 79–86.

    Article  Google Scholar 

  • Caughey, A.B., L.M. Hopkins, and M.E. Norton. 2007. Chorionic villus sampling compared with amniocentesis and the difference in the rate of pregnancy loss [16]. Obstetrics and Gynecology 109(1): 205–206.

    Article  Google Scholar 

  • de Jong, A., W.J. Dondorp, C.E.M. De Die-Smulders, S.G.M. Frints, and G.M.W.R. de Wert. 2010. Non-invasive prenatal testing: Ethical issues explored. European Journal of Human Genetics 18(3): 272–277.

    Article  Google Scholar 

  • Denier, Y. 2006. Need or desire? International Journal of Applied Philosophy 20: 81–95.

    Article  Google Scholar 

  • Dickens, B.M. 2014. Ethical and legal aspects of noninvasive prenatal genetic diagnosis. International Journal of Gynecology and Obstetrics 124(2): 181–184.

    Article  Google Scholar 

  • Dworkin, R. 1994. Life’s dominion, 18. New York: Vintage Books.

    Google Scholar 

  • Frankfurt, H. 2004. The reasons of love. Princeton: University Press.

    Google Scholar 

  • Johanson, R., M. Newburn, and A. Macfarlane. 2002. Has the medicalisation of childbirth gone too far? British Medical Journal 324(7342): 892–895.

    Article  Google Scholar 

  • Johnson, K., and J. Walmsley. 2010. People with Intelectual Disabilities. Towards a Good Life. University of Bristol: Policy Press.

  • Jotkowitz, A., and A.Z. Zivotofsky. 2010. The ethics of abortions for fetuses with congenital abnormalities. European Journal of Obstetrics, Gynecology, and Reproductive Biology 152(2): 148–151.

    Article  Google Scholar 

  • Kielstein, R., and H. Sass. 1992. Right not to know or duty to know? Prenatal screening for polycystic renal disease. Journal of Medicine and Philosophy 17(4): 395–405.

    Article  Google Scholar 

  • Mujezinovic, F., and Z. Alfirevic. 2007. Procedure-related complications of amniocentesis and chorionic villous sampling: A systematic review. Obstetrics and Gynecology 110(3): 687–694.

    Article  Google Scholar 

  • Procter, S.B., and C.G. Campbell. 2014. Position of the academy of nutrition and dietetics: nutrition and lifestyle for a healthy pregnancy outcome. Journal of the Academy of Nutrition and Dietetics 114(7): 1099–1103.

    Article  Google Scholar 

  • Savulescu, J. 2002. Is there a “right not to be born”? Reproductive decision making, options and the right to information. Archives of Disease in Childhood. Fetal and Neonatal Edition 87(2): F72–F74.

    Article  Google Scholar 

  • Savulescu, J., and G. Kahane. 2009. The moral obligation to create children with the best chance of the best life. Bioethics 23(5): 274–290.

    Article  Google Scholar 

  • Schmitz, D. 2012. Terminating pregnancy after prenatal diagnosisdwith a little help of professional ethics? Journal of Medical Ethics 38(7): 399–402.

    Article  Google Scholar 

  • Steinbock, B. 2006. The morality of killing human embryos. Journal of Law, Medicine and Ethics 34(1): 26–34.

    Article  Google Scholar 

  • Strong, C. 1997. The moral status of preembryos, embryos, fetuses, and infants. Journal of Medicine and Philosophy 22(3): 457–478.

    Article  Google Scholar 

  • Takala, T., and M. Häyry. 2000. Genetic ignorance, moral obligations and social duties. Journal of Medicine and Philosophy 25(1): 107–113.

    Article  Google Scholar 

  • Wallace, R.J. 2012. Duties of love. Aristotelian Society Supplementary 86: 175–198.

    Article  Google Scholar 

  • Williams, V. 2011. Disability and Discourse. Wiley-Blackwell.

  • World Medical Association, 2005-last update, WMA Declaration of Lisbon on the Rights of the Patient. Available: http://www.wma.net/en/30publications/10policies/l4/ [08/11, 2014].

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Acknowledgments

The author would like to thank two anonymous reviewers for their insightful comments that helped to improve the manuscript.

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Correspondence to Anna Karolina Sierawska.

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Sierawska, A.K. Prenatal diagnosis: do prospective parents have the right not to know?. Med Health Care and Philos 18, 279–286 (2015). https://doi.org/10.1007/s11019-014-9591-8

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  • DOI: https://doi.org/10.1007/s11019-014-9591-8

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