Advertisement

Maternal and Child Health Journal

, Volume 18, Issue 2, pp 431–442 | Cite as

Incorporating Life Course Theory and Social Determinants of Health into the LEND Curriculum

  • Karen Edwards
  • Patricia O. Towle
  • Barbara Levitz
Article

Abstract

The goal of this paper is to describe strategies for revising LEND curricula to incorporate a stronger focus on life course theory and social determinants of health (LCT/SDOH). The Maternal and Child Health Bureau (MCHB) includes a central focus on LCT/SDOH and states that a goal of Maternal and Child Health (MCH) training is to “Prepare and empower MCH leaders to promote health equity…and reduce disparities in health and health care.” Two LEND programs engaged in a comprehensive process to strengthen LCT/SDOH in their curricula that included choosing content and themes and developing instructional strategies congruent with MCH Leadership Competencies and with the learning needs of LEND trainees. We describe: key elements of LCT/SDOH; the relationship of these to children with disabilities and to the MCH Leadership Competencies; LCT/SDOH resources for the LEND curriculum; a collaborative curriculum revision process for faculty; and LCT/SDOH content and themes for the LEND Curriculum and strategies for incorporating them. We present the results of our work in a format that may be used by other LEND programs undertaking curriculum revision to incorporate LCT/SDOH.

Keywords

Life course theory Social determinants of health LEND program curriculum Developmental disabilities MCH leadership competencies 

Notes

Acknowledgments

We acknowledge the contribution Lisa Katz, MSW, core LEND faculty in social work and other members of the core LEND faculty at our programs who contributed their expertise and creativity in carrying out our curriculum revision. This effort was supported in part through Grants (Numbers HRSA-11-036 and HRSA-06-048) from the Health Resources and Services Administration, U.S. Department of Health and Human Services.

References

  1. 1.
    HRSA. MCH Training Program: Leadership Education in Neurodevelopmental and related Disabilities (LEND). (2010). http://mchb.hrsa.gov/training/documents/fs/lend_factsheet-rev1-14.pdf. Accessed 27 June 2013.
  2. 2.
    Maternal and Child Health Bureau. (2009). MCH leadership competencies 3.0. Maternal and child health leadership competencies. http://devleadership.mchtraining.net/mchlc_docs/mch_leadership_comp_3-0.pdf. Accessed 27 June 2013.
  3. 3.
    U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. Maternal and child health training program: Leadership education in neurodevelopmental and other related disabilities (LEND) funding announcement. Rockville, MD, December 18, 2010.Google Scholar
  4. 4.
    Maternal and Child Health Bureau. (2012). National strategic plan for MCH training 2012–2020 DRAFT goals and strategies. http://spw.mchtraining.net. Accessed 27 June 2013.
  5. 5.
    Pies, C., Parthasarathy, P., Kotelchuck, M. et al. (2009). Making a paradigm shift in maternal and child health. A report on the national MCH life course meeting.Google Scholar
  6. 6.
    Fine, A., & Kotelchuck, M. (2010). Rethinking MCH: The life course model as an organizing framework. Washington, DC: US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, pp. 1–21.Google Scholar
  7. 7.
    Truman, B. I., Smith, K. C., Roy, K., et al. (2011). Rationale for regular reporting on health disparities and inequalities—United States. Morbidity and Mortality Weekly Report. Surveillance Summaries, 60(Suppl), 3–10.PubMedGoogle Scholar
  8. 8.
    WHO Commission on Social Determinants of Health. (2008). Closing the gap in a generation: Health equity through action on the social determinants of health: Commission on Social Determinants of Health final report. Geneva, Switzerland: World Health Organization. Available from: http://whqlibdoc.who.int/publications/2008/9789241563703_eng.pdf. Accessed 27 June 2013.
  9. 9.
    National Research Council, Committee on Evaluation of Children’s Health. (2004). Children’s health, the nation’s wealth: Assessing and improving child health. Washington, DC: National Academy Press.Google Scholar
  10. 10.
    World Health Organization. (2011). World report on disability. Geneva: WHO.Google Scholar
  11. 11.
    Halfon, N., Houtrow, A., Larson, K., et al. (2012). The changing landscape of disability in childhood. Future of Children, 22(1), 13–42.PubMedCrossRefGoogle Scholar
  12. 12.
    Braveman, P. A., Egerter, S. A., & Mockenhaupt, R. E. (2011). Broadening the focus: the need to address the social determinants of health. American Journal of Preventive Medicine, 40(1 Suppl 1), S4–S18. doi: 10.1016/j.amepre.2010.10.002.PubMedCrossRefGoogle Scholar
  13. 13.
    Braveman, P., Egerter, S., & Williams, D. R. (2011). The social determinants of health: coming of age. Annual Review of Public Health, 32, 381–398. doi: 10.1146/annurev-publhealth-031210-101218.PubMedCrossRefGoogle Scholar
  14. 14.
    Park, J., Turnbull, A. P., & Turnbull, H. R. (2002). Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68(2), 151–170.Google Scholar
  15. 15.
    Boyle, C. A., Boulet, S., Schieve, L. A., et al. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127(6), 1034–1042. doi: 10.1542/peds.2010-2989.PubMedCrossRefGoogle Scholar
  16. 16.
    Shonkoff, J. P. (2010). Building a new biodevelopmental framework to guide the future of early childhood policy. Child Development, 81(1), 357–367.PubMedCrossRefGoogle Scholar
  17. 17.
    Shonkoff, J. P., & Garner, A. S. (2012). The lifelong effects of early childhood adversity and toxic stress. Pediatrics, 129(1), e232–e246. doi: 10.1542/peds.2011-2663.PubMedCrossRefGoogle Scholar
  18. 18.
    Wise, P. H. (2009). Confronting social disparities in child health: a critical appraisal of life-course science and research. Pediatrics, 124(Suppl 3), S203–S211. doi: 10.1542/peds.2009-1100H.PubMedCrossRefGoogle Scholar
  19. 19.
    Currie, J., & Kahn, R. (2012). Children with disabilities: Introducing the Issue. The Future of Children, 22(1), 3–11.CrossRefGoogle Scholar
  20. 20.
    Boulet, S. L., Boyle, C. A., & Schieve, L. A. (2009). Health care use and health and functional impact of developmental disabilities among US children, 1997–2005. Archives of Pediatrics and Adolescent Medicine, 163(1), 19–26. doi: 10.1001/archpediatrics.2008.506.PubMedCrossRefGoogle Scholar
  21. 21.
    Emerson, E. (2012). Deprivation, ethnicity and the prevalence of intellectual and developmental disabilities. Journal of Epidemiology and Community Health, 66(3), 218–224. doi: 10.1136/jech.2010.111773.PubMedCrossRefGoogle Scholar
  22. 22.
    Koh, H. K., & Nowinski, J. M. (2010). Health equity and public health leadership. American Journal of Public Health, 100(Suppl 1), S9–S11. doi: 10.2105/AJPH.2010.191379.PubMedCrossRefGoogle Scholar
  23. 23.
    Hanson, M. J., & Lynch, E. W. (2004). Understanding families : approaches to diversity, disability, and risk. Baltimore: P.H. Brookes.Google Scholar
  24. 24.
    Haughton, B., Eppig, K., Looney, S. M., et al. (2012). Incorporating the life course model into MCH Nutrition leadership education and training programs. Maternal and Child Health Journal,. doi: 10.1007/s10995-012-0959-1.Google Scholar
  25. 25.
    Kupperschmidt, B. R., & Burns, P. (1997). Curriculum revision isn’t just change: It’s transition! Journal of Professional Nursing, 13(2), 90–98.PubMedCrossRefGoogle Scholar
  26. 26.
    Cicchetti, D., & Toth, S. L. (2009). The past achievements and future promises of developmental psychopathology: the coming of age of a discipline. Journal of Child Psychology and Psychiatry, 50(1–2), 16–25. doi: 10.1111/j.1469-7610.2008.01979.x.PubMedCentralPubMedCrossRefGoogle Scholar
  27. 27.
    Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science, 196(4286), 129–136.PubMedCrossRefGoogle Scholar
  28. 28.
    Maternal and Child Health Bureau. Prelude to strategic planning: A conversation to inform direction. October 19, 2010 meeting summary highlights. http://mchb.hrsa.gov/training/documents/sp_prelude_mtg_short_summary_final_2010-10-19.pdf. Accessed 27 June 2013.
  29. 29.
    Power, C., & Hertzman, C. (1997). Social and biological pathways linking early life and adult disease. British Medical Bulletin, 53(1), 210–221.PubMedCrossRefGoogle Scholar
  30. 30.
    Maggi, S., Irwin, L. J., Siddiqi, A., et al. (2010). The social determinants of early child development: an overview. Journal of Paediatrics and Child Health, 46(11), 627–635. doi: 10.1111/j.1440-1754.2010.01817.x.PubMedCrossRefGoogle Scholar
  31. 31.
    Larson, K., Russ, S. A., Crall, J. J., et al. (2008). Influence of multiple social risks on children’s health. Pediatrics, 121(2), 337–344. doi: 10.1542/peds.2007-0447.PubMedCrossRefGoogle Scholar
  32. 32.
    Blumenshine, P., Egerter, S., Barclay, C. J., et al. (2010). Socioeconomic disparities in adverse birth outcomes: a systematic review. American Journal of Preventive Medicine, 39(3), 263–272. doi: 10.1016/j.amepre.2010.05.012.PubMedCrossRefGoogle Scholar
  33. 33.
    Boulet, S. L., Schieve, L. A., & Boyle, C. A. (2011). Birth weight and health and developmental outcomes in US children, 1997–2005. Maternal and Child Health Journal, 15(7), 836–844. doi: 10.1007/s10995-009-0538-2.PubMedCrossRefGoogle Scholar
  34. 34.
    Center on the Developing Child at Harvard University. (2007). A science-based framework for early childhood policy: Using evidence to improve outcomes in learning, behavior, and health for vulnerable children. http://developingchild.harvard.edu/index.php/resources/reports_and_working_papers/policy_framework/. Accessed 27 June 2013.
  35. 35.
    Missouri family to family: Charting the life course. Kansas City, MO: Institute for Human Development, The University of Missouri Kansas City. 2012. http://mofamilytofamily.org/user_storage/File/f2f/MOF2F%20Charting%20the%20Life%20Course%20Framework%20-%20April%202012.pdf. Accessed 27 June 2013.
  36. 36.
    Turnbull, A. P., & Turnbull, H. (2002). From the old to the new paradigm of disability and families: Research to enhance family quality of life outcomes. In J. L. Paul ea (Ed.), Rethinking professional issues in special education. Westport, Conn: Ablex.Google Scholar
  37. 37.
    Perrin, J. M. (2012). How can quality improvement enhance the lives of children with disabilities? Future of Children, 22(1), 149–168.PubMedCrossRefGoogle Scholar
  38. 38.
    Rauch, S. A., & Lanphear, B. P. (2012). Prevention of disability in children: Elevating the role of environment. Future of Children, 22(1), 193–217.PubMedCrossRefGoogle Scholar
  39. 39.
    Mandell, D. S., Ittenbach, R. F., Levy, S. E., et al. (2007). Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1795–1802. doi: 10.1007/s10803-006-0314-8.PubMedCentralPubMedCrossRefGoogle Scholar
  40. 40.
    Lord, C., & Bishop, S. L. (2010). Autism spectrum disorders. Social Policy Report, 24(2), 3–16.Google Scholar
  41. 41.
    Gee, G. C., Walsemann, K. M., & Brondolo, E. (2012). A life course perspective on how racism may be related to health inequities. American Journal of Public Health, 102(5), 967–974. doi: 10.2105/AJPH.2012.300666.PubMedCrossRefGoogle Scholar
  42. 42.
    Honey, A., Emerson, E., & Llewellyn, G. (2011). The mental health of young people with disabilities: impact of social conditions. Social Psychiatry and Psychiatric Epidemiology, 46(1), 1–10. doi: 10.1007/s00127-009-0161-y.PubMedCrossRefGoogle Scholar
  43. 43.
    Council on Children With Disabilities. (2006). Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, et al. Identifying infants and young children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics, 118(1), 405–420. doi: 10.1542/peds.2006-1231.CrossRefGoogle Scholar
  44. 44.
    Barnett, W. S. (2011). Effectiveness of early educational intervention. Science, 333(6045), 975–978. doi: 10.1126/science.1204534.PubMedCrossRefGoogle Scholar
  45. 45.
    Briggs, R. D., Stettler, E. M., Silver, E. J., et al. (2012). Social-emotional screening for infants and toddlers in primary care. Pediatrics, 129(2), e377–e384.PubMedCrossRefGoogle Scholar
  46. 46.
    Delaney, L., & Smith, J. P. (2012). Childhood health: trends and consequences over the life course. Future of Children, 22(1), 43–63.PubMedCentralPubMedCrossRefGoogle Scholar
  47. 47.
    Holt, J., Esquivel, M., & Pariseau, C. (2010). Medical home competencies for LEND trainees. http://www.aucd.org/template/news.cfm?news_id=6088&parent=295&parent_title=AUCDPublications&url=/template/page.cfm?id%3D295. Accessed 27 June 2013.
  48. 48.
    Brown, J. S., & Adler, R. P. (2008). Minds on fire: Open education, the long tail, and learning 2.0. Educause Review, 43(1), 16–20.Google Scholar
  49. 49.
    Mouradian, W. E., & Huebner, C. E. (2007). Future directions in leadership training of MCH professionals: Cross-cutting MCH leadership competencies. Maternal and Child Health Journal, 11(3), 211–218. doi: 10.1007/s10995-006-0170-3.PubMedCrossRefGoogle Scholar
  50. 50.
    Cooley, R. & Flores, L. (Eds.). (2012). The selected essays of Sarah Savage Cooley. Self-published and available at http://www.blurb.com/bookstore/invited/2878069/c9c5bc089b68159461145eb1c7c31f9b8d789a22?utm_source=TellAFriend&utm_medium=email&utm_content=3495681. Accessed 27 June 2013.
  51. 51.
    Kingsley, J., Levitz, M., & Cooney, J. G. (2007). Count us in: Growing up with Down syndrome. Boston, MA: Mariner Books.Google Scholar
  52. 52.
    Snow, K. (2001). Disability is natural: Revolutionary common sense for raising successful children with disabilities. Woodland Park, CO: Braveheart Press.Google Scholar
  53. 53.
    Goode, T., & Bronheim, S. (2010). Research—Cultural and linguistic competence checklist for MCH training programs. Washington, DC: National Center for Cultural Competence, Georgetown University Center for Child and Human Development.Google Scholar
  54. 54.
    Lynch, E. W., & Hanson, M. J. (2011). Developing cross-cultural competence: A guide for working with children and their families (4th ed.). Baltimore, MD: Paul H. Brookes Pub.Google Scholar
  55. 55.
    Wang, M., & Brown, R. (2009). Family quality of life: a framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12(2), 144–167.CrossRefGoogle Scholar
  56. 56.
    Schaefer, S. A. (2001). Understanding research: Top ten tips for advocates and policymakers. Washington, DC: Voices for.Google Scholar
  57. 57.
    Carrillo, J. E., Green, A. R., & Betancourt, J. R. (1999). Cross-cultural primary care: a patient-based approach. Annals of Internal Medicine, 130(10), 829–834.PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  • Karen Edwards
    • 1
    • 2
    • 3
  • Patricia O. Towle
    • 3
  • Barbara Levitz
    • 3
  1. 1.Leadership Education in Neurodevelopmental Disabilities (LEND) Program, University Center for Excellence in Developmental DisabilitiesUniversity of CincinnatiCincinnatiUSA
  2. 2.Division of Developmental and Behavioral PediatricsCincinnati Children’s Hospital Medical CenterCincinnatiUSA
  3. 3.University Center for Excellence in Developmental Disabilities and Leadership Education in Neurodevelopmental Disabilities (LEND) Program (in affiliation with New York Medical College)Westchester Institute for Human DevelopmentValhallaUSA

Personalised recommendations