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Race is a Strong Predictor of Receipt of a Written Survivorship Care Plan: Results from the National Health Interview Survey

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Abstract

The purpose of this study is to investigate the prevalence of receipt of written documentation of follow up care and of cancer treatments and to examine the predictors of receipt of such written documentation. Data from the 2010 National Health Interview Survey was used to identify individuals 18 years or older with a history of cancer. Binary and multinomial logistic regression were used to investigate patient-level variables associated with receipt of written documentation of cancer treatment, written advice about follow-up care, or both written documents. Patient-level variables included in the analysis were age, gender, region of residence, race/ethnicity, marital status, education level, insurance coverage, cancer type, employment status, and psychosocial support. Of the 1185 responses to the questions used to access receipt of a SCP, the prevalence of any receipt of a written documentation was 68%, where 30% obtained written advice only and 8% were provided a written treatment summary only; only 31% received both. Non-white race, cancer type, and psychosocial services were associated with increased odds of receiving written documentation. Patient-level characteristics are associated with receipt of care plan documentation. Further work needs to investigate the interaction of provider and patient-level characteristics. Understanding patient-level characteristics associated with receipt of written documentation may help uncover strategies for improved survivorship care plan implementation.

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References

  1. Centers for Disease Control. (2004). A national action plan for cancer survivorship: Advancing public health strategies. Atlanta, GA: US Department of Health and Human Services.

    Google Scholar 

  2. Centers for Disease Control and Prevention. (2013). Basic information about cancer survivorship. Atlanta, GA: Centers for Disease Control and Prevention.

    Google Scholar 

  3. Denlinger, C. S., Carlson, R. W., Are, M., et al. (2014). Survivorship: Introduction and definition. Journal of the National Comprehensive Cancer Network, 12(1), 34–45.

    Article  PubMed  PubMed Central  Google Scholar 

  4. Hewitt, M., Greenfield, S., & Stovall, E. (2005) From cancer patient to cancer survivor: Lost in transition. Washington, DC: National Academies Press.

  5. Garcia, S. F., Kircher, S. M., Oden, M., et al. (2016). Survivorship care planning in a comprehensive cancer center using an implementation framework. The Journal of Community and Supportive Oncology, 14(5), 192–199.

    Article  PubMed  Google Scholar 

  6. Salz, T., Oeffinger, K. C., McCabe, M. S., Layne, T. M., & Bach, P. B. (2012). Survivorship care plans in research and practice. CA: A Cancer Journal for Clinicians, 62(2), 101–117.

    Google Scholar 

  7. McCabe, M. S., Bhatia, S., Oeffinger, K. C., et al. (2013). American Society of Clinical Oncology statement: Achieving high-quality cancer survivorship care. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 31(5), 631–640.

    Article  Google Scholar 

  8. Jabson, J. M., & Bowen, D. J. (2013). Cancer treatment summaries and follow-up care instructions: which cancer survivors receive them? Cancer Causes and Control: CCC, 24(5), 861–871.

    Article  PubMed  Google Scholar 

  9. Jabson, J. M. (2015). Treatment summaries, follow-up care instructions, and patient navigation: could they be combined to improve cancer survivor’s receipt of follow-up care? Journal of Cancer Survivorship, 9, 692–698.

    Article  PubMed  Google Scholar 

  10. Chubak, J., Aiello Bowles, E. J., Tuzzio, L., et al. (2014). Perspectives of cancer survivors on the role of different healthcare providers in an integrated delivery system. Journal of Cancer Survivorship, 8(2), 229–238.

    Article  PubMed  Google Scholar 

  11. Advani, P. S., Ying, J., Theriault, R., et al. (2014). Ethnic disparities in adherence to breast cancer survivorship surveillance care. Cancer, 120(6), 894–900.

    Article  PubMed  Google Scholar 

  12. Keating, N. L., Landrum, M. B., Guadagnoli, E., Winer, E. P., & Ayanian, J. Z. (2006). Factors related to underuse of surveillance mammography among breast cancer survivors. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 24(1), 85–94.

    Article  Google Scholar 

  13. Ashing, K., Rosales, M., Lai, L., & Hurria, A. (2014). Occurrence of comorbidities among African-American and Latina breast cancer survivors. Journal of Cancer Survivorship, 8(2), 312–318.

    Article  PubMed  Google Scholar 

  14. Tammemagi, C. M., Nerenz, D., Neslund-Dudas, C., Feldkamp, C., & Nathanson, D. (2005). Comorbidity and survival disparities among Black and White patients with breast cancer. JAMA, 294(14), 1765–1772.

    Article  CAS  PubMed  Google Scholar 

  15. Du, X. L., Fang, S., & Meyer, T. E. (2008). Impact of treatment and socioeconomic status on racial disparities in survival among older women with breast cancer. American Journal of Clinical Oncology, 31, 125–132.

    Article  PubMed  Google Scholar 

  16. Tompkins Stricker, C., Jacobs, L. A., Risendal, B., et al. (2011). Survivorship care planning after the institute of medicine recommendations: How are we faring? Journal of Cancer Survivorship, 5, 358–370.

    Article  Google Scholar 

  17. Jacobs, L. A., & Shulman, L. N. (2017). Follow-up care of cancer survivors: Challenges and solutions. The Lancet Oncology, 18, e19–e29.

    Article  PubMed  Google Scholar 

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Correspondence to Leslie Hinyard.

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This article does not contain any studies with human participants performed by any of the authors.

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Hinyard, L., Wirth, L.S. Race is a Strong Predictor of Receipt of a Written Survivorship Care Plan: Results from the National Health Interview Survey. J Community Health 42, 1156–1162 (2017). https://doi.org/10.1007/s10900-017-0365-0

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  • DOI: https://doi.org/10.1007/s10900-017-0365-0

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