Diverse Families’ Experiences with HPV Vaccine Information Sources: A Community-Based Participatory Approach
Current sources of publicly available human papillomavirus (HPV) information may not adequately meet the needs of diverse families. This study sought to describe associations between sociodemographic and acculturation factors, and sources of HPV information among diverse parents and caregivers. Community organizations purposively recruited participants from African American, African refugee, Hispanic/Latino, American Indian, and Native Hawaiian and Pacific Islander communities for a 21-item survey (N = 228). Ninenty-three of these participants also participated in ten focus groups conducted in three languages. Descriptive statistics and Fishers’ Exact Test for Count Data were produced and triangulated with focus group data to provide additional context. Overall, HPV vaccine awareness and knowledge in the five communities was low. This study found that a greater proportion of lower-acculturated participants had heard of HPV through personal networks (foreign-born = 50 % vs US-born = 30 %, p < 0.05; medium acculturation = 60 % vs high acculturation = 26 %, p = 0.01), while greater proportions of US-born participants reported media sources (49 % vs foreign-born = 29 %, p < 0.05). Across communities, healthcare system sources were described as important and preferred sources of HPV information. Hearing about the HPV vaccine from healthcare settings was significantly associated with increased accuracy in HPV vaccine knowledge (p < 0.05). Communities described a need for more in-depth information about the HPV vaccine, and culturally and linguistically appropriate educational materials. Culturally-competent delivery of HPV information through the healthcare system sources may be important in improving knowledge and acceptability of the HPV vaccine among diverse families.
KeywordsPapillomavirus vaccines Adolescent health Culturally competent care Community-based participatory research Consumer health information
The authors wish to acknowledge Guadalupe Tovar, Echo Warner, Ivoni Nash, and Maria Borrerro who helped with the facilitation and organization of the focus groups, Alfonse, Esperance, Paul and Cecilia from Best of Africa who assisted with the translations, and the families who participated in this research. The authors also wish to acknowledge the late Sylvia Rickard, former executive director of the Hispanic Health Care Task Force and a key contributor in the early phases of this study; and Grant Sunada from the University of Utah and Brenda Ralls from the Utah Department of Health who also provided valuable feedback during the research process. The last author was funded by a grant from the Primary Children’s Hospital Foundation and an award from the National Center for Advancing Translational Sciences from the National Institutes of Health under Award Number KL2TR001065. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
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