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Teaching Parents of Children with Autism to Evaluate Interventions

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Abstract

Children with autism are participating in a variety of interventions that are believed to be effective by their parents; however, a majority of these interventions are not empirically supported. In this study, we assessed the efficacy of a parent education program to teach parents of children with autism to evaluate their child’s interventions. Parents’ acquisition, generalization, and maintenance of evaluation behaviors were examined. Additionally, we looked at parents’ understanding of information regarding evaluating interventions and decision-making patterns regarding treatments in comparison to controls. A multiple baseline design across parent participants was used to assess parents’ evaluation skills. After completion of a parent education program, parents increased in their evaluative behaviors relative to individual baseline measures. In addition, parents in the experimental group increased their understanding of information regarding evaluating interventions and empirically based decisions regarding treatments in comparison to controls.

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References

  • American Academy of Pediatrics: Committee on Children with Disabilities. (2001). The pediatrician’s role in diagnosis and management of autistic spectrum disorder in children. Pediatrics, 107(5), 1221–1226. doi:10.1542/peds.107.5.1221.

    Article  Google Scholar 

  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, Fourth Edition-Text Revision. Washington, DC: American Psychiatric Association.

    Book  Google Scholar 

  • Benson, P., Karlof, K. L., & Siperstein, G. N. (2008). Maternal involvement in the education of young children with autism spectrum disorders. Autism, 12(1), 47–63. doi:10.1177/1362361307085269.

    Article  PubMed  Google Scholar 

  • Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness on family stress: a comparison between autism and cystic fibrosis. Journal of Clinical Psychology, 46(6), 722–730. doi:10.1002/1097-4679(199011)46:6<722::AID-JCLP2270460605>3.0.CO;2-6.

    Article  PubMed  Google Scholar 

  • Bussing, R., Zima, B., & Garvan, G. (2002). Use of complementary and alternative medicine for symptoms of attention deficit hyperactivity disorder. Psychiatry Service, 53, 1196–1102. doi:10.1176/appi.ps.53.9.1096. Retrieved from http://psychservices.psychiatryonline.org.

    Article  Google Scholar 

  • Campbell, M., Schopler, E., Cueva, J. E., & Hallin, A. (1996). Treatment of autistic disorder. Journal of the American Academy of Child Adolescences Psychiatry, 35(2), 134–143. doi:10.1097/00004583-199602000-00005.

    Article  Google Scholar 

  • Carinci, G. J. (2007). Experiences of caregivers with an autistic child: Understanding perspectives related to parental participation and involvement. Unpublished doctoral dissertation, California School of Professional Psychology at Alliant University San Diego, San Diego, California.

  • Charlop, M. H., & Trasowech, J. E. (1991). Increasing autistic children’s daily spontaneous speech. Journal of Applied Behavior Analysis, 24(4), 747–761. doi:10.1901/jaba.1991.24-747.

    Article  PubMed Central  PubMed  Google Scholar 

  • Christon, L. M., Mackintosh, V. H., & Myers, B. J. (2010). Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 4, 249–259. doi:10.1016/j.rasd.2009.09.013.

    Article  Google Scholar 

  • Cohen, J. (1960). A coefficient of agreement for nominal scales. Educational and Psychological Measurement, 20, 37–46. doi:10.1177/001316446002000104.

    Article  Google Scholar 

  • DeMyer, M. K. (1979). Parents and children in autism. New York: Wiley.

    Google Scholar 

  • Ergüner-Tekinalp, B., & Akkök, F. (2004). The effects of a coping skills training program on the coping skills, hopelessness, and stress levels of mothers of children with autism. International Journal for the Advancement of Counseling, 26(3), 257–269. doi:10.1023/B:ADCO.0000035529.92256.0d.

    Article  Google Scholar 

  • Feinberg, E., & Vacca, J. (2000). The drama and trauma of creating policies on autism: critical issues to consider in the new millennium. Focus on Autism and Other Developmental Disabilities, 15(3), 130–137. doi:10.1177/108835760001500301.

    Article  Google Scholar 

  • Frea, W. D., & Hepburn, S. L. (1999). Teaching parents of children with autism to perform functional assessments to plan interventions for extremely disruptive behaviors. Journal of Positive Behavior Interventions, 1(2), 112–116. doi:10.1177/109830079900100205.

    Article  Google Scholar 

  • Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatric and Adolescent Medicine, 161(4), 343–349. doi:10.1001/archpedi.161.4.343.

    Article  Google Scholar 

  • Goin-Kochel, R. P., Myers, B. J., & Mackintosh, V. H. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 195–209. doi:10.1016/j.rasd.2006.08.006.

    Article  Google Scholar 

  • Golnik, A. E., & Ireland, M. (2009). Complementary alternative medicine for children with autism: a physician survey. Journal of Autism and Developmental Disorders, 39, 996–1005. doi:10.1007/s 10803-009-0714-7.

    Article  PubMed  Google Scholar 

  • Green, G. (1996). Evaluating claims about treatments for autism. In C. Maurice, G. Green, & S. C. Luce (Eds.), Behavioral intervention for young children with autism (pp. 15–28). Austin: Pro-ed Inc.

    Google Scholar 

  • Green, V. A. (2007). Parent experience with treatments for autism. The Journal of Developmental and Physical Disabilities, 19, 91–101. doi:10.1007/s10882-007-9035-y.

    Article  Google Scholar 

  • Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27(1), 70–84. doi:10.1016/j.ridd.2004.12.002.

    Article  PubMed  Google Scholar 

  • Handelman, J. S., & Harris, S. L. (1986). Educating the developmentally disabled: Meeting the needs of children and families. Boston: College-Hill.

    Google Scholar 

  • Hanson, E., Kalish, L. A., Bunce, E., Curtis, C., McDaniel, S., Ware, J., & Petry, J. (2007). Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders, 37, 628–636. doi:10.1007/s10803-006-0192-0.

    Article  PubMed  Google Scholar 

  • Harrington, J. W., Rosen, L., Garnecho, A., & Patrick, P. A. (2006). Parental perceptions and the use of complementary and alternative medicine practices for children with autism spectrum disorders in private practice. Journal of Developmental and Behavioral Pediatrics, 27(2), S156–S161.

    Article  PubMed  Google Scholar 

  • Herbert, J. D., Sharp, I. R., & Gaudiano, B. A. (2002). Separating fact from fiction in the etiology and treatment of autism: a scientific review of the evidence. The Scientific Review of Mental Health Practice, 1(1), 23–43.

    Google Scholar 

  • Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: a contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 80, 431–436.

    PubMed  Google Scholar 

  • Horner, R. H., Carr, E. G., Halle, J., McGee, G., Odom, S., & Wolery, M. (2005). The use of single-subject research to identify evidence-based practice in special education. Council for Exceptional Children, 71(2), 165–179. Retrieved from Academic Search Alumni Edition database (AN: 15457833).

    Article  Google Scholar 

  • Hurvitz, E., Leonard, C., Ayyangar, R., & Nelson, V. (2003). Complementary and alternative medicine use in families of children with cerebral palsy. Developmental Medicine and Child Neurology, 52, 364–370. doi:10.1111/j.1469-8749.2003.tb00414.x.

    Google Scholar 

  • Interactive Autism Network (IAN). (2009, June 1). IAN research findings: Treatment series (online). Retrieved from http://www.iancommunity.org/cs/ian_treatment_reports/overview.

  • Jacobson, J. W., Mulick, J. A., & Schwartz, A. A. (1995). A history of facilitated communication: science, pseudoscience, and antiscience working group facilitated communication. American Psychologist, 50(9), 750–765. doi:10.1037/0003-066X.50.9.750.

    Article  Google Scholar 

  • Kabot, S., Masi, W., & Segal, M. (2003). Advances in the diagnosis and treatment of autism spectrum disorders. Professional Psychology: Research and Practice, 34(1), 26–33. doi:10.1037/0735-7028.34.1.26.

    Article  Google Scholar 

  • Kane, K., & Linn, V. (2005, August 25). Boy dies during autism treatment. Pittsburgh Post-Gazette. Retrieved 22 April 2007, from http://www.post-gazette.com/pg/05237/559756.stm

  • Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250.

    Google Scholar 

  • Kay, S., & Vyse, S. (2005). Helping parents separate the wheat from the chaff: Putting autism treatments to the test. In J. W. Jacobson, R. M. Foxx, & J. A. Mulick (Eds.), Controversial therapies for developmental disabilities (pp. 265–277). Mahwah: Lawrence Erlbaum Associates Inc.

    Google Scholar 

  • Koegel, R. L., Glahn, T. J., & Nieminen, G. S. (1978). Generalization of parent-training results. Journal of Applied Behavior Analysis, 11, 95–109. doi:10.1901/jaba.1978.11-95.

    Article  PubMed Central  PubMed  Google Scholar 

  • Koegel, R. L., Schreibman, L., O’Neill, R. E., & Burke, J. C. (1983). Personality and family interaction characteristics of parents of autistic children. Journal of Consulting and Clinical Psychology, 51(5), 683–692. doi:10.1037/0022-006X.51.5.683.

    Article  PubMed  Google Scholar 

  • Koran, M. L., Snow, R. E., & McDonald, F. J. (1971). Teacher aptitude and observational learning of a teaching skill. Journal of Educational Psychology, 62(3), 219–228. doi:10.1037/h0031142.

    Article  Google Scholar 

  • Lange, D. N. (1971). An application of the social learning theory in affecting change in a group of student teachers using video modeling techniques. The Journal of Education Research, 65(4), 151–154. Article Stable URL: http://www.jstor.org/stable/27536242.

    Google Scholar 

  • Laski, K. E., Charlop, M. H., & Schreibman, L. (1988). Training parents to use the natural language paradigm to increase their autistic children’s speech. Journal of Applied Behavior Analysis, 21, 391–400. doi:10.1901/jaba.1988.21-391.

    Article  PubMed Central  PubMed  Google Scholar 

  • Mackintosh, V. H., Myers, B. J., & Goin-Kochel, R. P. (2006). Sources of information and support used by parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 12(1), 41–51. Retrieved from psycINFO database.

    Google Scholar 

  • Mackintosh, V. H., Goin-Kochel, R. P., & Myers, B. J. (2012). “What do you like/dislike about the treatments you’re currently using?”: a qualitative study of parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 27, 51–60. doi:10.1177/1088357611423542.

    Article  Google Scholar 

  • Malmberg, D. B. (2007). Assessment of a collaborative parent education program targeting the maladaptive behaviors of children with autism. Unpublished doctoral dissertation, Claremont Graduate University, Claremont, California.

  • McGuire, J. K., Kulkarni, M. S., & Baden, H. P. (2000). Fatal hypermagnesemia in a child treated with megavitamin/megamineral therapy. Pediatrics, 105(2), 1–3. doi:10.1542/peds.105.2.e18.

    Article  Google Scholar 

  • Metz, B., Mulick, J. A., & Butter, E. M. (2005). Autism: A late-20th-century fad magnet. In J. W. Jacobson, R. M. Foxx, & J. A. Mulick (Eds.), Controversial therapies for developmental disabilities (pp. 237–263). Mahwah: Lawrence Erlbaum Associates Inc.

    Google Scholar 

  • Moses, D. R., & Frea, W. D. (2002). Using family context to inform intervention planning for the treatment of a child with autism. Journal of Positive Behavior Interventions, 2, 40–46. doi:10.1177/109830070000200106.

    Article  Google Scholar 

  • National Autism Center (NAC) (2009). National standards project. (online). Retrieved 16 March 2010, from, http://www.nationalautismcenter.org/affiliates/

  • National Institute of Health (NIH) (2012). Funding Facts. (online). Retrieved 28 August 2012 from, http://report.nih.gov/fundingfacts/index.cfm

  • Santarelli, G., Koegel, R. L., Casas, J. M., & Koegel, L. K. (2001). Culturally diverse families participating in behavior therapy parent education programs for children with developmental disabilities. Journal of Positive Behavior Interventions, 3, 120–123. doi:10.1177/109830070100300209.

    Article  Google Scholar 

  • Schreck, K. A., & Mazur, A. (2008). Behavior analyst use of and beliefs in treatments for people with autism. Behavioral Interventions, 23, 201–212. doi:10.1002/bin.264.

    Article  Google Scholar 

  • Schreibman, L. (1983). Are we forgetting the parent in parent training? The Behavior Therapist, 6, 107–109. Retrieved from psycINFO database.

    Google Scholar 

  • Schreibman, L. (2005). The science and fiction of autism. Cambridge: Harvard University Press.

    Google Scholar 

  • Schreibman, L., & Anderson, A. (2001). Focus on integration: the future of behavioral treatment of autism. Behavior Therapy, 32, 619–632. doi:10.1016/S0005-7894(01)80012-5.

    Article  Google Scholar 

  • Scott, J. M. (1993). Teaching sequences of behaviors to humans by forward chaining, backward chaining, and whole task training. Unpublished doctoral dissertation, University of Ottawa, Ottawa, Ontario, Canada. url: http://hdl.handle.net/10393/5614

  • Shearer, M. S., & Shearer, D. E. (1977). Parent involvement. In B. Jordan, A. H. Hayden, M. B. Karnes, & M. M. Wood (Eds.), Early childhood education for exceptional children: A handbook of ideas and exemplary practices (pp. 208–235). Reston: The Council for Exceptional Children.

    Google Scholar 

  • Simpson, R. L., de Boer-Ott, S. R., Myles, B. S., Byrd, S. E., Ganz, J. B., Cook, K. T., et al. (2005). Autism spectrum disorders: Interventions and treatments for children and youth. Thousand Oaks: Corwin.

    Google Scholar 

  • Smith, G. J. (1999). Teaching a long sequence of a behavior using whole task training, forward, and backward chaining. Perceptual and Motor Skills, 89(3), 951–965. doi:10.2466/pms.1999.89.3.951.

    Article  PubMed  Google Scholar 

  • Smith, T. (2005). The appeal of unvalidated treatments. In J.W. Jacobson, R.M. Foxx, & J. A. Mulick (Eds.), Controversial therapies for developmental disabilities (pp. 45–57). Mahwah: Lawrence Erlbaum Associates Inc.

  • Smith, T., & Antolovich, M. (2000). Parental perceptions of supplemental interventions received by young children with autism in intensive behavior analytic treatment. Behavioral Interventions, 15, 83–97. doi:10.1002/(SICI)1099-078X(200004/06)15:2<83::AID-BIN47>3.0.CO;2-W.

    Article  Google Scholar 

  • Smith, T. B., Oliver, M. N., & Innocenti, M. S. (2001). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71(2), 257–261. doi:10.1037/0002-9432.71.2.257.

    Article  PubMed  Google Scholar 

  • Sparrow, S., Balla, D., & Cichetti, D. (1984). Vineland adaptive behavior scale. Circle Pines: American Guidance Service.

    Google Scholar 

  • Stokes, T. F., & Baer, D. M. (1977). An implicit technology of generalization. Journal of Applied Behavior Analysis, 10, 349–367. doi:10.1901/jaba.1977.10-349.

    Article  PubMed Central  PubMed  Google Scholar 

  • Strain, P. S. (1987). Parent education with young autistic children: a report on the LEAP model. Zero to Three, 7(3), 7–12. Retrieved from psycINFO database.

    Google Scholar 

  • Walls, R. T., Zane, T., & Ellis, W. D. (1981). Forward and backward chaining, and whole task methods training assembly tasks in vocational rehabilitation. Behavior Modification, 5, 61–74. doi:10.1177/014544558151005.

    Article  Google Scholar 

  • Watkins, M. W., & Pacheco, M. (2000). Interobserver agreement in behavioral research: importance and calculation. Journal of Behavioral Education, 10, 205–212. doi:10.1023/A:1012295615144.

    Article  Google Scholar 

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Correspondence to Kari L. Berquist.

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Berquist, K.L., Charlop, M.H. Teaching Parents of Children with Autism to Evaluate Interventions. J Dev Phys Disabil 26, 451–472 (2014). https://doi.org/10.1007/s10882-014-9374-4

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