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Recruiting Young Adult Cancer Survivors for Behavioral Research

  • Carolyn Rabin
  • Santina Horowitz
  • Bess Marcus
Article

Abstract

Young adults have been dramatically underrepresented in cancer survivorship research. One contributing factor is the difficulty recruiting this population. To identify effective recruitment strategies, the current study assessed the yield of strategies used to recruit young survivors for an exercise intervention including: clinic-based recruitment, recruitment at cancer-related events, mailings, telephone-based recruitment, advertising on the internet, radio, television and social networking media, distributing brochures and word-of-mouth referrals. When taking into account the strategies for which we could track the number of survivors approached, recruitment at an oncology clinic was the most productive: 38 % of those approached were screened and 8 % enrolled. When evaluating which strategy yielded the greatest percentage of the sample, however, mailings were the most productive. Given widespread use of the internet and social networking by young adults, investigators should also consider these low-cost recruitment strategies.

Keywords

Young adult Cancer survivors Recruitment Internet 

Notes

Acknowledgments

This research was funded by an award from the National Cancer Institute (5 R03 CA134197-02). We would like to thank Beverly Procopio for her assistance with managing the data for this project.

References

  1. Adolescent and Young Adult Oncology Progress Review Group. (2006). Closing the gap: Research and care imperatives for adolescents and young adults with cancer (No. 06-6067). Bethesda, MD: US Department of Health and Human Services, Livestrong Young Adult Alliance.Google Scholar
  2. Bleyer, W. (2006). American Society of Pediatric Hematology/Oncology website. Retrieved July 20, 2006 from http://www.aspho.org/i4a/pages/index.cfm?pageid=481.
  3. Burgess, C., Cornelius, V., Love, S., Graham, J., Richards, M., & Ramirez, A. (2005). Depression and anxiety in women with early breast cancer: Five-year observational cohort study [Electronic Version]. British Medical Journal. Retrieved Mar 26 from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15695497.
  4. Callahan, S. T., & Cooper, W. O. (2005). Uninsurance and health care access among young adults in the United States. Pediatrics, 116, 88–95.PubMedCrossRefGoogle Scholar
  5. Harlan, L. C., Lynch, C. F., Keegan, T. H., Hamilton, A. S., Wu, X. C., Kato, I., et al. (2011). Recruitment and follow-up of adolescent and young adult cancer survivors: The AYA HOPE Study. Journal of Cancer Survivorship, 5, 305–314.PubMedCrossRefGoogle Scholar
  6. Hewitt, M., & Rowland, J. H. (2002). Mental health service use among adult cancer survivors: Analyses of the National Health Interview Survey. Journal of Clinical Oncology, 20, 4581–4590.PubMedCrossRefGoogle Scholar
  7. Huddart, R. A., Norman, A., Shahidi, M., Horwich, A., Coward, D., Nicholls, J., et al. (2003). Cardiovascular disease as a long-term complication of treatment for testicular cancer. Journal of Clinical Oncology, 21, 1513–1523.PubMedCrossRefGoogle Scholar
  8. Hull, M. C., Morris, C. G., Pepine, C. J., & Mendenhall, N. P. (2003). Valvular dysfunction and carotid, subclavian, and coronary artery disease in survivors of hodgkin lymphoma treated with radiation therapy. JAMA, 290, 2831–2837.PubMedCrossRefGoogle Scholar
  9. Lenhart, A., Purcell, K., Smith, A., & Zickuhr, K. (2010). Social media and mobile Internet use among teens and young adults. Washington, D.C.: Pew Research Center.Google Scholar
  10. Matthews, C. E., Wilcox, S., Hanby, C. L., Der Ananian, C., Heiney, S. P., Gebretsadik, T., et al. (2007). Evaluation of a 12-week home-based walking intervention for breast cancer survivors. Support Care in Cancer, 15, 203–211.CrossRefGoogle Scholar
  11. Pinto, B. M., Trunzo, J. J., Rabin, C., Cady, B., Fenton, M. A., Herman, A., et al. (2004). Recruitment strategies for a home-based physical activity intervention for breast cancer patients. Journal of Clinical Psychology in Medical Settings, 11, 171–178.CrossRefGoogle Scholar
  12. Shapiro, C. L., & Recht, A. (2001). Side effects of adjuvant treatment of breast cancer. New England Journal of Medicine, 344, 1997–2008.PubMedCrossRefGoogle Scholar
  13. Travis, L. B., Fossa, S. D., Schonfeld, S. J., McMaster, M. L., Lynch, C. F., Storm, H., et al. (2005). Second cancers among 40,576 testicular cancer patients: Focus on long-term survivors. Journal of the National Cancer Institute, 97, 1354–1365.PubMedCrossRefGoogle Scholar
  14. US Census Bureau. (2006). Geographic mobility: 2005–2006. Retrieved August 12, 2008 from www.census.gov/population/www/socdemo/migrate/cps2006.html.

Copyright information

© Springer Science+Business Media, LLC 2012

Authors and Affiliations

  1. 1.Centers for Behavioral and Preventive MedicineMiriam Hospital and Alpert Medical School of Brown UniversityProvidenceUSA
  2. 2.Department of Family and Preventive MedicineUniversity of California, San DiegoLa JollaUSA

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