Abstract
Although research on eldercare and work has burgeoned in recent years, current literature is lacking an integrative model or framework to summarize existing findings and guide future research. The purpose of this article is to synthesize prior empirical research regarding eldercare among informal caregivers who must balance care with employment. We propose a conceptual model to serve as an organizing framework to understand eldercare and work. More specifically, our model includes predictors and outcomes that are grouped in terms of individual, family, caregiver relationships, work, and societal factors related to elder caregiving and work. We highlight and discuss key factors that mediate and moderate the relations between eldercare and its associated outcomes at multiple levels, including employees, their families, organizations for which caregivers work, and society as a whole. Finally, we provide methodological and substantive recommendations to guide future research.
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References
AARP Public Policy Institute and National Alliance for Caregiving. (2009). Valuing the invaluable: The economic value of family caregiving. Washington, DC: National Alliance for Caregiving and AARP Public Policy Institute. Retrieved October 1, 2017 from https://assets.aarp.org/rgcenter/il/ib82_caregiving.pdf
AARP Public policy institute and National Alliance for caregiving. (2015a). Caregiving in the U.S. research report. Washington, DC: National Alliance for Caregiving and AARP Public Policy Institute. Retrieved October 1, 2017 from https://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-states-2015-report-revised.pdf
AARP Public Policy Institute and National Alliance for Caregiving. (2015b). Caregivers of older adults: A focused look at those caring for someone age 50+. Washington, D.C.: National Alliance for Caregiving and AARP Public Policy Institute. Retrieved October 1, 2017 from https://www.aarp.org/content/dam/aarp/ppi/2015/caregivers-of-older-adults-focused-look.pdf
AGE Platform. (2017, November). AGE Platform Europe position on the commission initiative on supporting work-life balance for working parents and carers. Retrieved December 10, 2017 from http://www.age-platform.eu/sites/default/files/PRESS%20RELEASE_7_Dec2017_AGE_position_CarersLeave_1.pdf
Allen, T. D. (2001). Family-supportive work environments: The role of organizational perceptions. Journal of Vocational Behavior, 58(3), 414–435. https://doi.org/10.1006/jvbe.2000.1774
Allen, T. D., Herst, D. E., Bruck, C. S., & Sutton, M. (2000). Consequences associated with work-to-family conflict: A review and agenda for future research. Journal of Occupational Health Psychology, 5(2), 278–308.
Allen, T. D., & Martin, A. (2017). The work-family interface: A retrospective look at 20 years of research in JOHP. Journal of Occupational Health Psychology, 22(3), 259–272.
Almberg, B., Grafstrom, M., & Winblad, B. (1997). Major strain and coping strategies as reported by family members who care for aged demented relatives. Journal of Advanced Nursing, 26(4), 683–691.
Alpass, F., Keeling, S., Allen, J., Stevenson, B., & Stephens, C. (2017). Reconciling work and caregiving responsibilities among other workers in New Zealand. Journal of Cross-Cultural Gerontology, 32, 323–327. https://doi.org/10.1007/s10823-017-9327-3
Andren, S., & Elmstahl, S. (2008). The relationship between caregiver burden, caregivers’ perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17(6), 790–799. https://doi.org/10.1111/j.1365-2702.2007.02066.x
Azarnoff, R., & Scharlach, A. (1988). Can employees carry the eldercare burden? The Personnel Journal, 67, 60–67.
Bacon, E., Milne, D. L., Sheikh, A. I., & Freeston, M. H. (2009). Positive experiences in caregivers: An exploratory case series. Behavioral and Cognitive Psychotherapy, 37(1), 95–114. https://doi.org/10.1017/S1352465808005055
Baider, L., & Surbone, A. (2014). Universality of aging: Family caregivers for elderly cancer patients. Frontiers in Psychology, 5, 744. https://doi.org/10.3389/fpsyg.2014.00744
Bainbridge, H. T. J., & Broady, T. R. (2017). Caregiving responsibilities for a child, spouse or parent: The impact of care recipient independence on employee well-being. Journal of Vocational Behavior, 101, 57–66. https://doi.org/10.1016/j.jvb.2017.04.006
Bakker, A. B., & Demerouti, E. (2017). Job demands–resources theory: Taking stock and looking forward. Journal of Occupational Health Psychology, 22(3), 273–285. https://doi.org/10.1037/ocp0000056
Barling, J., MacEwen, K. E., Kelloway, E. K., & Higginbottom, S. F. (1994). Predictors and outcomes of elder-care-based interrole conflict. Psychology and Aging, 9(3), 391–397. https://doi.org/10.1037/0882-7974.9.3.391
Barnett, R. C. (2005). Ageism and sexism in the workplace. Generations, 29(3), 25–30.
Barrah, J. L., Shultz, K. S., Baltes, B., & Stolz, H. E. (2004). Men’s and women’s eldercare-based work family conflict: Predictors and work-related outcomes. Fathering: A Journal of Theory, Research, and Practice About Men as Fathers, 2(3), 305–330.
Bauer, J. M., & Sousa-Poza, A. (2015). Impacts of informal caregiving on caregiver employment, health, and family. Population Ageing, 8, 113–145. https://doi.org/10.1007/s12062-015-9116-0
Berecki-Gisolf, J., Lucke, J., Hockey, R., & Dobson, A. (2008). Transition into informal caregiving and out of paid employment of women in their 50s. Social Science and Medicine, 76(1), 122–127. https://doi.org/10.1016/j.socscimed.2008.03.031
Bettio, F., & Verashchangina, A. (2010). Long-term care for the elderly: Provisions and providers in 33 European countries. Luxembourg: Publications Office of the European Union. https://doi.org/10.2838/87307
Biegel, D. E., Sales, E., & Schulz, R. (1991). Family caregiving in chronic illness: Heart disease, cancer, stroke, Alzheimer’s disease, and chronic mental illness. Newbury Park: Sage.
Bittman, M., Hill, T., & Thomas, C. (2007). The impact of caring on informal carers’ employment, income, and earnings: A longitudinal approach. Australian Journal of Social Issues, 42(2), 255–272. https://doi.org/10.1002/j.1839-4655.2007.tb00053.x
Boise, L., & Neal, M. (1996). Family responsibilities and absenteeism: Employees caring for parents versus employees caring for children. Journal of Managerial Issues, 8(2), 218–238.
Bolin, K., Lindgren, B., & Lundborg, P. (2008). Your next of kin or your own career? Caring and working among the 50+ of Europe. Journal of Health Economics, 27, 718–738.
Bookwala, J. (2009). The impact of parent care on marital quality and well-being in adult daughters and sons. The Journals of Gerontology, Series B, Psychological Sciences and Social Sciences, 64B(3), 339–347. https://doi.org/10.1093/geronb/gbp018
Boyar, S. L., Maertz, C. P., Pearson, A. W., & Keough, S. (2003). Work-family conflict: A model of linkages between work and family domain variables and turnover intentions. Journal of Managerial Issues, 25, 175–190.
Brody, E. M. (2004). Women in the middle: Their parent-care years (2nd ed.). New York, NY: Springer Publishing Company.
Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513–531.
Bronfenbrenner, U. (2005). Making human beings human: Bioecological perspectives on human development. Thousand Oaks, CA: Sage Publications.
Bronfenbrenner, U. (2009). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
Bronfenbrenner, U., & Morris, P. A. (1998). The ecology of developmental processes. In W. Damon & R. M. Lerner (Eds.), Handbook of child psychology, Vol. 1: Theoretical models of human development (5th ed., pp. 993–1023). New York, NY: Wiley.
Buffardi, L. C., Smith, J. L., O’Brien, A. S., & Erdwins, C. J. (1999). The impact of dependent-care responsibility and gender on work attitudes. Journal of Occupational Health Psychology, 4(4), 356–367. https://doi.org/10.1037//1076-8998.4.4.356
Buhr, G. T., Kuchibhatla, M., & Clipp, E. C. (2006). Caregivers’ reasons for nursing home placement: Clues for improving discussions with families prior to the transition. The Gerontologist, 46(1), 52–61. https://doi.org/10.1093/geront/46.1.52
Bulger, C. A., & Fisher, G. G. (2012). Ethical imperatives of work/life balance. In N. P. Reilly, M. J. Sirgy, & C. A. Gorman (Eds.), Work and quality of life: Ethical practices in organizations (pp. 181–200). New York, NY: Springer.
Calisanti, T. (2004). Feminist gerontology and old men. The Journals of Gerontology: Series B, 59(6), S305–S314.
Calvano, L. (2013). Tug of war: Caring for our elders while remaining productive at work. Academy of Management Perspectives, 27(3), 204–218. https://doi.org/10.5465/amp.2012.0095
Calvano, L. (2015). Eldercare: The new frontier of work-family balance. The Psychologist, 28, 202–205.
Campbell, L. D., & Martin-Matthews, A. (2003). The gendered nature of men’s filial care. The Journals of Gerontology, Series B, Psychological Sciences and Social Sciences, 58(6), 350–358.
Carer’s Leave Act (2001). Government of Ireland. Retrieved October 1, 2017 from http://www.irishstatutebook.ie/eli/2001/act/19/enacted/en/html
Carlson, D. S., & Frone, M. R. (2003). Relation of behavioral and psychological involvement to a new four-factor conceptualization of work-family interference. Journal of Business and Psychology, 17(4), 515–535.
Carlson, D. S., Kacmar, K. M., Wayne, J. H., & Grzywacz, J. G. (2006). Measuring the positive side of the work-family interface: Development and validation of the work-family enrichment scale. Journal of Vocational Behavior, 68, 131–164. https://doi.org/10.1016/j.jvb.2005.02.002
Carlson, D. S., Kacmar, K. M., & Williams, L. J. (2000). The development and validation of a multi-dimensional measure of work–family conflict. Journal of Vocational Behavior, 56, 249 –276.
Carmichael, F., & Charles, S. (2003). The opportunity cost of informal care: Does gender matter? Journal of Health Economics, 22(5), 781–803. https://doi.org/10.1016/S0167-6296(03)00044-4
Carmichael, F., Hulme, C., Sheppard, S., & Connell, G. (2008). Work-life imbalance: Informal care and paid employment in the UK. Feminist Economics, 14(2), 3–35. https://doi.org/10.1080/13545700701881005
Carr, E., Murray, E. T., Zaninotto, P., Cadar, D., Head, J., Stansfeld, S., & Stafford, M. (2016). The association between informal caregiving and exit from employment among older workers: Prospective findings from the UK household longitudinal study. The Journals of Gerontology: Series B, 00(0), 1–10. https://doi.org/10.1093/geronb/gbw156
Casper, W. J., Eby, L. T., Bordeaux, C., Lockwood, A., & Lambert, D. (2007). A review of research methods in IO/OB work-family research. Journal of Applied Psychology, 92(1), 28–43. https://doi.org/10.1037/0021-9010.92.1.28
Chari, A., Engberg, J., Ray, K., & Mehrotra, A. (2015). The opportunity costs of informal elder-care in the United States: New estimates from the American time use survey. Health Services Research, 50(3), 871–882. https://doi.org/10.1111/1475-6773.1223
Collins, C. R. (2014). Men as caregivers of the elderly: Ssupport for the contributions of sons. Journal of Multidisciplinary Healthcare, 7, 525–531. https://doi.org/10.2147/JMDH.S68350
Colombo, F., et al. (2011). Help wanted? Providing and paying for long-term care. Paris: OECD Publishing. https://doi.org/10.1787/9789264097759-en
Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Vilalta-Franch, J., & Lopez-Pousa, S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer’s disease: An exploratory comparative design. International Journal of Nursing Studies, 47(10), 1262–1273. https://doi.org/10.1016/j.ijnurstu.2010.03.001
Couch, K., Daly, M., & Wolf, D. (1999). Time? Money? Both? The allocation of resources to older parents. Demography, 36(2), 219–232. https://doi.org/10.2307/2648110
Covinsky, K. E., Kahana, E., Kahana, B., Kercher, K., Schumacher, J. G., & Justice, A. C. (2001). History and mobility exam index to identify community-dwelling elderly persons at risk of falling. The Journals of Gerontology, Series A, Biological Sciences and Medical Sciences, 56(4), 253–259.
Crain, T., & Stevens, S. (2018). Family-supportive supervisor behaviors: A review and recommendations for research and practice. Journal of Organizational Behavior., 39, 869–888. https://doi.org/10.1002/job.2320
Dautzenberg, M., Diederiks, J., Philipsen, H., Stevens, F., Tan, F., & Vernooij-Dassen, M. (2000). The competing demands of paid work and parent care: Middle-aged daughters providing assistance to elderly parents. Research on Aging, 22(2), 165–187. https://doi.org/10.1177/0164027500222004
Demerouti, E., Bakker, A. B., Nachreiner, F., & Schaufeli, W. B. (2001). The job-demands resources model of burnout. Journal of Applied Psychology, 86(3), 499–512.
Demerouti, E., Peeters, M. C., & van der Heijden, B. I. (2012). Work-family interface from a life and career stage perspective: The role of demands and resources. International Journal of Psychology, 47(4), 241–258. https://doi.org/10.1080/00207594.2012.699055
Dentinger, E., & Clarkberg, M. (2002). Informal caregiving and retirement timing among men and women: Gender and caregiving relationships in late midlife. Journal of Family Issues, 23, 857–879. https://doi.org/10.1177/019251302236598
Dugan, A., Fortinsky, R., Barnes-Farrell, J., Kenny, A., Robison, J., Warren, N., & Cherniack, M. (2016). Associations of eldercare and competing demands with health and work outcomes among manufacturing workers. Community, Work & Family, 19(5), 569–587. https://doi.org/10.1080/13668803.2016.1150809
Duxbury, L., Higgins, C., & Smart, R. (2011). Elder care and the impact of caregiver strain on the health of employed caregivers. Work, 40, 29–40. https://doi.org/10.3233/WOR-2011-1204
Eagly, A. H. (1987). Sex differences in social behaviour: A social role interpretation. Hillsdale, NJ: Lawrence Erlbaum Associates.
Eagly, A. H. (1997). Sex differences in social behaviour: Comparing social role theory and evolutionary psychology. American Psychologist, 50, 1380–1383.
Eagly, A. H., & Steffen, V. J. (1984). Gender stereotypes stem from the distribution of women and men into social roles. Journal of Personality and Social Psychology, 46(4), 735–754
Eagly, A. H., Wood, W., & Diekman, A. B. (2000). Social role theory of sex differences and similarities: A current appraisal. In T. Eckes & H. M. Trauter (Eds.), The developmental social psychology of gender (pp. 123–174). Hillsdale, NJ: Lawrence Erlbaum Associates.
Earle, A., & Heymann, J. (2012). The cost of caregiving: Wage loss among caregivers of elderly and disabled adults and children with special needs. Community, Work, & Family, 15(3), 357–375. https://doi.org/10.1080/13668803.2012.674408
Eby, L. T., Casper, W. J., Lockwood, A., Bordeaux, C., & Brinley, A. (2005). Work and family research in IO/OB: Content analysis and review of the literature (1980-2002). Journal of Vocational Behavior, 66(1), 124–197.
Ejem, D. B., Drentea, P., & Clay, O. J. (2014). The effects of caregiver emotional stress on the depressive symptomatology of the care recipient. Aging & Mental Health, 19(1), 55–62. https://doi.org/10.1080/13607863.2014.915919
Eom, K. Y., Penkunas, M. J., & Chan, A. W. M. (2016). Psychological health of informal caregivers of patients with long-term care needs: Effect of caregiving relationship types and formal long-term care services use. International Journal of Integrated Care, 16(6), 1–8. https://doi.org/10.5334/ijic.2761
Family Caregiver Alliance. (2016). Caregiver statistics: Demographics. San Francisco, CA: Family Caregiver Alliance National Center on Caregiving.
Fast, J. E., Williamson, D. L., & Keating, N. C. (1999). The hidden costs of informal elder care. Journal of Family and Economic Issues, 20, 301–326. https://doi.org/10.1023/A:1022909510229
Fisher, G., Franks, M., Plassman, B., Brown, S., Potter, G., Llewellyn, D., Rogers, M., & Langa, K. (2011). Caring for individuals with dementia and cognitive impairment, not dementia: Findings from the aging, demographics, and memory study. Journal of the American Geriatric Society, 59(3), 488–494. https://doi.org/10.1111/j.1532-5415.2010.03304.x
Fisher, G. G., & Barnes-Farrell, J. L. (2013). Use of archival data in OHP research. In M. Wang, R. R. Sinclair, & L. E. Tetrick (Eds.), Research methods in occupational health psychology: State of the art in measurement, design, and data analysis (pp. 290–322). New York, NY: Routledge.
Fisher, G. G., Chaffee, D. S., & Sonnega, A. (2016). Retirement timing: A review and recommendations for future research. Work, Aging and Retirement, 2(2), 230–261. https://doi.org/10.1093/workar/waw001
Fisher, G. G., & Ryan, L. H. (2018). Overview of the health and retirement study and introduction to the special issue. Work, Aging and Retirement, 4(1), 1–9. https://doi.org/10.1093/worker/wax032
Fisher, P. A., & Laschinger, H. S. (2001). A relaxation training program to increase self-efficacy for anxiety control in Alzheimer family caregivers. Holistic Nursing Practice, 15(2), 47–58.
Franks, M., & Stephens, M. (1996). Social support in the context of caregiving: Husbands’ provision of support to wives involved in parent care. Journal of Gerontological Nursing, 51, 43–52. https://doi.org/10.1093/geronb/51B.1.P43
Franks, M. M., Pierce, L. S., & Dwyer, J. W. (2003). Expected parent-care involvement of adult children. Journal of Applied Gerontology, 22(1), 104–117.
Fredriksen, K., & Scharlach, A. (1997). Caregiving and employment: The impact of workplace characteristics on role strain. Journal of Gerontological Social Work, 28(4), 3–22. https://doi.org/10.1300/J083v28n04_02
Fruhauf, C. A., Jarrott, S. E., & Allen, K. R. (2006). Grandchildren’s perceptions of caring for grandparents. Journal of Family Issues, 27(7), 887–911.
Ganster, D. C., Rosen, C. C., & Fisher, G. G. (2018). Long working hours and well-being: What we know, what we don’t know, and what we need to know. Journal of Business and Psychology, 33(1), 25–39. https://doi.org/10.1007/s10869-016-9478-1
Gerald, L. (1998). Mental health outcomes among women in caregiving roles: Eldercare versus childcare. Unpublished doctoral dissertation, University of Alabama at Birmingham.
Gaugler, J., James, B., Johnson, T., Scholz, K., Weuve, J., & Alzheimer's Association. (2016). 2016 Alzheimer’s disease facts and figures. Alzheimer’s and Dementia, 12(4), 459–509. https://doi.org/10.1016/j.jalz.2016.03.001
Gerstel, N., & Gallagher, S. K. (2001). Men’s caregiving: Gender and the contingent character of care. Gender & Society, 15(2), 197–217.
Goff, S. J., Mount, M. K., & Jamison, R. L. (1990). Employer supported child care, work/family conflict, and absenteeism: A field study. Personnel Psychology, 43, 793–810. https://doi.org/10.1111/j.1744-6570.1990.tb00683.x
Golembiewski, R. T., & Proehl, C. W. (1978). A survey of the empirical literature on flexible workhours: Character and consequences of a major innovation. The Academy of Management Review, 3(4), 837–853.
Gordon, J., & Rouse, E. (2013). The relationship of job and elder caregiving involvement to work-caregiving conflict and work costs. Research on Aging, 35(1), 96–117. https://doi.org/10.1177/0164027511424293
Gottlieb, B., Kelloway, E., & Fraboni, M. (1994). Aspects of eldercare that place employees at risk. The Gerontologist, 34(6), 815–821. https://doi.org/10.1093/geront/34.6.815
Greenhaus, J. H., & Beutell, N. J. (1985). Sources of conflict between work and family roles. The Academy of Management Review, 10, 76–88.
Greenhaus, J. H., & Powell, G. N. (2006). When work and family are allies: A theory or work-family enrichment. The Academy of Management Review, 31, 72–92.
Grunfeld, E., Coyle, D., Whelan, T., Clinch, J., Reyno, L., Earle, C. C., Willan, A., Viola, R., Coristine, M., Janz, T., & Glossop, R. (2004). Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal, 170(12), 1795–1801.
Grzywacz, J. G., & Marks, N. F. (2000). Reconceptualizing the work-family interface: An ecological perspective on the correlates of positive and negative spillover between work and family. Journal of Occupational Health Psychology, 5(1), 111–126.
Gubrium, J. F. (1988). Family responsibility and caregiving in the qualitative analysis of the Alzheimer’s disease experience (in care for elderly relatives). Marriage & Family, 50, 197–207. https://doi.org/10.2307/352439
Hackman, J. (1992). Group influences on individuals in organizations. In M. D. Dunnette & L. M. Hough (Eds.), Handbook of industrial and organizational psychology (Vol. 3, 2nd ed., pp. 199–267). Palo Alto, CA: Consulting Psychologist Press.
Haley, W. E. (1997). The family caregiver’s role in Alzheimer’s disease. Neurology, 48(5 Suppl 6), 25S–29S.
Hansen, T., & Slagsvold, B. (2015). Feeling the squeeze? The effects of combining work and informal caregiving on psychological well-being. European Journal of Ageing, 12(1), 51–60. https://doi.org/10.1007/s10433-014-0315-y
Hepburn, C. G., & Barling, J. (1996). Eldercare responsibilities, interrole conflict, and employee absence: A daily study. Journal of Occupational Health Psychology, 1(3), 331–318. https://doi.org/10.1037//1076-8998.1.3.311
Hoffman, G. J., Lee, J., & Mendez-Luck, C. A. (2012). Health behaviors among baby boomer informal caregivers. The Gerontologist, 52(2), 219–230. https://doi.org/10.1093/geront/gns003
Horowitz, A. (1985). Sons and daughters as caregivers to older parents: Differences in role performance and consequences. The Gerontologist, 25, 612–617.
Horrell, B., Stephens, C., & Breheny, M. (2015). Capability to care: Supporting the health of informal caregivers for older people. Health Psychology, 34(4), 339–348. https://doi.org/10.1037/hea0000144
Johnson, N. E., & Climo, J. J. (2000). Aging and eldercare in more developed countries: The United States, South Korea, and Puerto Rico. Journal of Family Issues, 21(5), 531–540. https://doi.org/10.1177/019251300021005001
Jolanki, O. (2015). To work or to care? Work women’s decision-making. Community, Work & Family, 18(3), 268–283. https://doi.org/10.1080/13668803.2014.997194
Jutras, S., & Veilleux, F. (1991). Gender roles and care giving to the elderly: An empirical study. Sex Roles, 25(1–2), 1–18.
Kahn, R., Wolfe, D., Quinn, R., Snoek, J. D., & Rosenthal, R. (1964). Organizational stress: Studies in role conflict and ambiguity. New York, NY: Wiley.
Kemp, C. L. & Rosenthal, C. J. (2001). The consequences of caregiving: Does employment make a difference. In Social and Economic Dimensions of an Aging Population Research Papers, #36. Hamilton, ON, Canada: McMaster University.
Kim, J., Ingersoll-Dayton, B., & Kwak, M. (2011). Balancing eldercare and employment: The role of work interruptions and supportive employers. Journal of Applied Gerontology, 32(3), 347–369. https://doi.org/10.1177/0733464811423647
Kim, N., & Gordon, J. (2014). Addressing the stress of work and elder caregiving of the graying workforce: The moderating effects of financial strain on the relationship between work-caregiving conflict and psychological well-being. Human Resource Management, 53(5), 723–747. https://doi.org/10.1002/hrm.21582
Kim, Y., & Schulz, R. (2008). Family caregivers’ strains: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health, 20(5), 483–503. https://doi.org/10.1177/0898264308317533
King, D., & Pickard, L. (2013). When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England. Health & Social Care in the Community, 21(3), 303–314. https://doi.org/10.1111/hsc.12018
Kinney, J. M., & Stephens, M. A. (1989). Hassles and uplifts of giving care to a family member with dementia. Psychology and Aging, 4(4), 402–408.
Kochanek, M. A., Murphy, S. L., Xu, J., & Arias, E. (2017, December). Mortality in the United States, 2016. In National Center for Health Statistics (NCHS) Data Brief, No. 293. Retrieved February 23, 2018 from https://www.cdc.gov/nchs/data/databriefs/db293.pdf
Kossek, E. E., Thompson, R. J., Lawson, K. M., Bodner, T., Perrigino, M. B., Hammer, L. B., & Buxton, O. M. et al. (2017). Caring for the elderly at work and home: Can a randomized organizational intervention improve psychological health? Journal of Occupational Health Psychology. Advanced online publication.
Kotsadam, A. (2011). Does informal eldercare impede women’s employment? The case of European welfare states. Feminist Economics, 17(2), 121–144. https://doi.org/10.1080/13545701.2010.543384
Kramer, B. J. (2002). Men caregivers: An overview. In B. J. Kramer & E. H. Thompson (Eds.), Men as caregivers: Theory, research, and service implications. New York: Springer Publishing.
Lee, J., Foos, P., & Clow, C. (2010). Caring for one’s elders and family-to-work conflict. The Psychologist-Manager Journal, 13, 15–39. https://doi.org/10.1080/10887150903540185
Lee, J., Walker, M., & Shoup, R. (2001). Balancing elder care responsibilities and work: The impact on emotional health. Journal of Business and Psychology, 16(2), 277–289. https://doi.org/10.1023/A:1011165318139
Lee, J. A. (1997). Balancing elder care responsibilities and work: Two empirical studies. Journal of Occupational Health Psychology, 2, 220–228. https://doi.org/10.1037//1076-8998.2.3.220
Lee, Y., Tang, F., Kim, K., & Albert, S. (2014). Exploring gender differences in the relationships between eldercare and labour force participation. Canadian Journal on Aging, 34(1), 14–25. https://doi.org/10.1017/S0714980814000543
Leigh, A. (2010). Informal care and labor market participation. Labour Economics, 17(1), 140–142. https://doi.org/10.1016/j.labeco.2009.11.005
Levande, D. I., Herrick, J. M., & Sung, K. (2000). Eldercare in the United States and South Korea: Balancing family and community support. Journal of Family Issues, 21(5), 632–651. https://doi.org/10.1177/019251300021005006
Lilly, M., Laporte, A., & Coyte, P. C. (2007). Labor market work and home care’s unpaid caregivers: A systematic review of labor force participation rates, predictors of labor market withdrawal, and hours of work. Milbank Quarterly, 95(4), 641–690.
Lilly, M., Laporte, A., & Coyte, P. C. (2010). Do they care too much to work? The influence of caregiving intensity on the labour force participation of unpaid caregivers in Canada. Journal of Health Economics, 29(6), 895–903. https://doi.org/10.1016/j.jhealeco.2010.08.007
Liu, L., Dong, X., & Zheng, X. (2010). Parental care and married women’s labor supply in urban China. Feminist Economics, 16(3), 169–192. https://doi.org/10.1080/13545701.2010.493717
Longacre, M. L., Valdmanis, V. G., Handorf, E. A., & Yang, C. F. (2017). Work impact and emotional stress among informal caregivers for older adults. Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 72(3), 522–531. https://doi.org/10.1093/geronb/gbw027
Louderback, P. (2000). Elder care: A positive approach to caregiving. Journal of the American Association of Nurse Practitioners, 12(3), 197–200. https://doi.org/10.1111/j.1745-7599.2000.tb00175.x
Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57(3), 195–204. https://doi.org/10.1093/geronb/57.3.P195
MacDonald, M., Phipps, S., & Lethbridge, L. (2005). Taking its toll: The influence of paid and unpaid work on women’s well-being. Feminist Economics, 11(1), 63–94. https://doi.org/10.1080/1354570042000332597
Marchi-Jones, S., Murphy, J. F., & Rousseau, P. (1996). Caring for caregivers. Journal of Gerontological Nursing, 22(8), 7–13.
Martire, L. M., & Stephens, M. A. (2003). Juggling parent care and employment responsibilities: The dilemmas of adult daughter caregivers in the workforce. Sex Roles, 48, 167–173. https://doi.org/10.1023/A:1022407523039
Maslach, C. (1982). Burnout: The cost of caring. Englewood Cliffs, NJ: Prentice-Hall.
Matos, K. & Galinsky, E. (2014). The 2014 National Study of employers. Families and Work Institute. Retrieved August 1, 2017 from http://familiesandwork.org/downloads/2014NationalStudyOfEmployers.pdf
Matthews, R. A., Barnes-Farrell, J. L., & Bulger, C. A. (2010). Advancing measurement of work and family domain boundary characteristics. Journal of Vocational Behavior, 77(3), 447–460.
Matthews, R. A., & Fisher, G. G. (2013). The role of work and family in the retirement process: A review and new directions. In M. Wang (Ed.), The Oxford handbook of retirement (pp. 354–370). New York, NY: Oxford University Press.
Matthews, S. H., Werkner, J. E., & Delaney, P. J. (1989). Relative contributions of help by employed and nonemployed sisters to their elderly parents. Journal of Gerontology, 44, 36–44.
Matz-Costa, C., & Pitt-Catsouphes, M. (2009). Workplace flexibility as an organizational response to the aging of the workforce: A comparison of nonprofit and for-profit organizations. Journal of Social Service Research, 36(1), 68–80. https://doi.org/10.1080/01488370903333645
McLennon, S. M., Habermann, B., & Davis, L. L. (2010). Deciding to institutionalize: Why do family members cease caregiving at home? Journal of Neuroscience Nursing, 42(2), 95–103. https://doi.org/10.1097/JNN.0b013e3181ce5c45
McNamara, T. K., Pitt-Catsouphes, M., & Brown, M. (2013). Employer policies for dependent care: The role of internal demographics. Journal of Managerial Issues, 25(2), 192–211.
Mehta, K. K., & Leng, T. L. (2017). Experiences of formal and informal caregivers of older persons in Singapore. Journal of Cross-Cultural Gerontology, 32(3), 373–385. https://doi.org/10.1007/s10823-017-9329-1
Meng, A. (2012). Informal home care and labor force participation of house hold members. Empirical Economics, 44(2), 959–979.
Michaud, P., Heitmueller, A., & Nazarov, Z. (2010). A dynamic analysis of informal care and employment in England. Labour Economics, 17(3), 455–465.
Moen, P. (1996). A life course perspective on retirement, gender, and well-being. Journal of Occupational Health Psychology, 1, 131–144. https://doi.org/10.1037//1076-8998.1.2.131
Moen, P., Robinson, J., & Dempster-McClain, D. (1995). Caregiving and women’s well-being: A life course approach. Journal of Health and Social Behavior, 36(3), 259–273.
Morris, J. (1997). Care of empowerment? A disability rights perspective. Social Policy Administration, 31, 54–60.
Moscarola, F. C. (2010). Informal caregiving and women’s work choices: Lessons from the Netherlands. Review of Labour Economics and Industrial Relations, 24, 93–105.
Mutschler, P. (1994). From executive suite to production line: How employees in different occupations manage elder care responsibilities. Research on Aging, 16(1), 7–26. https://doi.org/10.1177/0164027594161002
National Conference of State Legislatures. (2016). State family and medical leave laws. Retrieved February 23, 2018 from http://www.ncsl.org/research/labor-and-employment/state-family-and-medical-leave-laws.aspx
National Institute of Mental Health. (2016). Major depression. Retrieved August 1, 2017 from https://www.nimh.nih.gov/health/statistics/major-depression.shtml#part_155033.
Neal, M. B., Chapman, N. J., Ingersoll-Dayton, B., & Emlen, A. C. (1993). Balancing work and caregiving for children, adults, and elders. Newbury Park, CA: Sage Publications Inc.
Neal, M. B., & Hammer, L. B. (2007). Working couples caring for children and aging parents: Effects on work and well-being. Mahwah, NJ: Lawrence Erlbaum Associates, Inc..
Nguyen, H. T., & Connelly, L. B. (2014). The effect of unpaid caregiving intensity on labour force participation: Results from a multinomial endogenous treatment model. Social Science and Medicine, 100, 115–122. https://doi.org/10.1016/j.socscimed.2013.10.031
O’Connor, L., Kmec, J., & Harris, E. (2015). Giving care and perceiving discrimination: The social and organizational context of family responsibilities discrimination. Work and Family in the New Economy, 26, 249–276. https://doi.org/10.1108/S0277-283320150000026016
Oldenkamp, M., Bultmann, U., & Witek, R. P. M. (2018). Combining informal care and paid work: The use of work arrangements by working adult-child caregivers in the Netherlands. Health & Social Care, 28, 122–131.
Pei, X., Luo, H., Lin, Z., Keating, N., & Fast, J. (2017). The impact of eldercare on adult children’s health and employment in transitional China. Journal of Cross Cultural Gerontology, 32, 357–372. https://doi.org/10.1007/s10823-017-9330-8
Penning, M. J. (1998). In the middle: Parental caregiving in the context of other roles. Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 53B(4), 188–197.
Pickard, L. (2004). The effectiveness and cost-effectiveness of support and services to informal carers of older people: A review of the literature prepared for the audit commission. Retrieved February 23, 2018 from https://www.pssru.ac.uk/pub/dp2014.pdf
Pines, A., & Aronson, E. (1988). Career burnout: Causes and cures. New York: Free Press.
Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250–267. https://doi.org/10.1037/0882-7974.18.2.250
Pinquart, M., & Sörensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45, 90–106.
Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. Journal of Gerontology: Psychological Sciences, 62B(2), 126–137. https://doi.org/10.1093/geronb/62.2.P126
Pruchno, R. A., Brill, J. E., Shands, Y., Gordon, J. R., Genderson, M. W., Rose, M., & Cartwright, F. (2008). Convenience samples and caregiving research: How generalizable are the findings? The Gerontologist, 48(6), 820–827.
Pruchno, R. A., Burant, C. J., & Peters, N. D. (1997). Typologies of caregiving families: Family congruence and individual well-being. The Gerontologist, 37, 157–167.
Pyper, W. (2006). Balancing career and care. Perspectives on Labour and Income, 18(4), 37–47.
Qualls, S. H. (2016). Caregiving families within the long-term services and support system for older adults. American Psychologist, 71, 283–293.
Reid, R., Stajduhar, K., & Chappell, N. (2010). The impact of work interferences on family caregiver outcomes. Journal of Applied Gerontology, 29(3), 267–289. https://doi.org/10.1177/0733464809339591
Rinaldi, P., Spazzafumo, L., Mastriforti, R., Mattioli, P., Marvardi, M., et al. (2005). Study group on brain aging of the Italian society of gerontology and geriatrics. Predictors of high level of burden and distress in caregivers of demented patients: Results of an Italian multicenter study. International Journal of Geriatric Psychiatry, 20(2), 168–174. https://doi.org/10.1002/gps.1267
Sahibzada, K., Hammer, L. B., Neal, M. B., & Kuang, D. C. (2005). The moderating effects of work-family role combinations and work-family organizational culture on the relationship between family-friendly workplace supports and job satisfaction. Journal of Family Issues, 26, 1–20.
Scandura, T. A., & Lankau, M. J. (1997). Relationships of gender, family responsibility and flexible work hours to organizational commitment and job satisfaction. Journal of Organizational Behavior, 18(4), 377–391.
Scharlach, A. E., & Fredriksen, K. I. (1994). Elder care versus adult care: Does care recipient age make a difference? Research on Aging, 16(1), 43–68. https://doi.org/10.1177/0164027594161004
Scharlach, A. E., Sobel, E. L., & Roberts, R. E. (1991). Employment and caregiver strain: An integrative model. The Gerontologist, 31(6), 778–787. https://doi.org/10.1093/geront/31.6.778
Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282(23), 2215–2219.
Schulz, R., & Eden, J. (Eds.). (2016). Families caring for an aging America. Washington, D.C.: National Academies Press.
Scott, L. D., Hwang, W. T., & Rogers, A. E. (2006). The impact of multiple care giving roles on fatigue, stress, and work performance among hospital staff nurses. The Journal of Nursing Administration, 36(3), 86–95.
Shoptaugh, C., Phelps, J., & Visio, M. (2004). Employee eldercare responsibilities: Should organizations care? Journal of Business and Psychology, 19(2), 179–196. https://doi.org/10.1007/s10869-004-0547-5
Skaff, M. M., & Pearlin, L. I. (1992). Caregiving: Role engulfment and loss of self. The Gerontologist, 32(5), 656–664.
Skira, M. (2015). Dynamic wage and employment effects of elder parent care. International Economic Review, 56(1), 63–93. https://doi.org/10.1111/iere.12095
Smith, P. (2004). Elder care, gender, and work: The work-family issue of the 21st century. Berkeley Journal of Employment and Labor Law, 25(2), 351–399.
Sonnentag, S., Venz, L., & Casper, A. (2017). Advances in recovery research: What have we learned? What should be done next? Journal of Occupational Health Psychology, 22(3), 365–380.
Speer, D. C., & Newman, F. L. (1996). Mental health services outcome evaluation. Clinical Psychology: Science and Practice, 3(2), 105–129. https://doi.org/10.1111/j.1468-2850.1996.tb00061.x
Spiess, C. K., & Schneider, A. U. (2003). Interactions between care-giving and paid work hours among European midlife women, 1994 to 1996. Ageing and Society, 23, 41–68. https://doi.org/10.1017/S0144686X02001010
Spillers, R. L., Wellisch, D. K., Kim, Y., Matthews, B. A., & Baker, F. (2008). Family caregivers and guilt in the context of cancer care. Psychosomatics, 49(6), 511–519. https://doi.org/10.1176/appi.psy.49.6.511
Spillman, B. C., Wolff, J., Freedman, V. A., & Kasper, J. D. (2014). Informal caregiving for older Americans: An analysis of the 2011 National Study of Caregiving. Washington, DC: Office of the Assistant Secretary for Planning and Evaluation.
Stone, R. I., & Short, P. F. (1990). The competing demands of employment and informal caregiving to disabled elders. Medical Care, 28(6), 513–526. https://doi.org/10.1097/00005650-199006000-00004
Stroller, E. P., & Pugliesi, K. L. (1989). Other roles of caregivers: Competing responsibilities or supportive resources. Journal of Gerontology, 44(6), 231–238.
Szinovacz, M. E., & Davey, A. (2008). The division of parent care between spouses. Ageing & Society, 28, 571–597. https://doi.org/10.1017/S0144686X0700691
Tangney, J. P., Miller, R. S., Flicker, L., & Barlow, D. H. (1996). Are shame, guilt, and embarrassment distinct emotions? Journal of Personality and Social Psychology, 70(6), 1256–1269.
Trukeschitz, B., Schneider, U., Muhlmann, R., & Ponocny, I. (2013). Informal eldercare and work-related strain. Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 68(2), 257–267. https://doi.org/10.1093/geronb/gbs101
Tudge, J. R., Mokrova, I., Hatfield, B. E., & Karnik, R. B. (2009). Uses and misuses of Bronfenbrenner’s bioecological theory of human development. Journal of Family Theory & Review, 1, 198–210.
U.S. Department of Labor. (2002). Code of Federal Regulations, 29 CFR 825.114 - What is a “serious health condition” entitling an employee to FMLA leave? Retrieved March 5, 2018 from https://www.gpo.gov/fdsys/granule/CFR-2002-title29-vol3/CFR-2002-title29-vol3-sec825-114
Ugreninov, E. (2013). Offspring in squeeze: Health and sick leave absence among middle-aged informal caregivers. Journal of Population Ageing, 6(4), 323–338.
United Nations. (2001). World population prospects. The 2000 revision. New York, NY: United Nations Population Division. Department of Economic and Social Affairs. Retrieved August 1, 2017 from http://www.un.org/esa/population/publications/wpp2000/highlights.pdf
United Nations (2015). Life expectancy at birth, total (years). Retrieved August 1, 2017 from http://data.un.org/Data.aspx?d=WDI&f=Indicator_Code%3ASP.DYN.LE00.IN
Van Houtven, C. H., Coe, N. B., & Skira, M. M. (2013). The effect of informal care on work and wages. Journal of Health Economics, 32(1), 240–252. https://doi.org/10.1016/j.jhealeco.2012.10.006
Vernon, E., Cooley, B., Rozum, W., Rattinger, G., Behrens, S., & Tschanz, J. (2017). Caregiver-care recipient relationships are associated with neuropsychiatric symptoms in dementia. Innovation in Aging, 1, 572. https://doi.org/10.1093/geroni/igx004.2011
Wagner, D., & Takagi, E. (2010). Health affairs: Informal caregiving by and for older adults. Health Affairs Blog. https://doi.org/10.1377/hblog20100216.003722.
Wakabayashi, C., & Donato, K. M. (2005). The consequences of caregiving: Effects on women’s employment and earnings. Population Research and Policy Review, 24, 467–488. https://doi.org/10.1007/s11113-005-3805-y
Walker, A. J., Pratt, C. C., & Oppy, N. C. (1992). Perceived reciprocity in family caregiving. Family Relations, 41, 82–85. https://doi.org/10.2307/585398
Williams, J., Devaux, R., Petrac, P., & Feinberg, L. (2012). Protecting family caregivers from employment discrimination. AARP Public Policy Institute, pp 1–26. Retrieved March 5, 2018 from: https://www.aarp.org/content/dam/aarp/research/public_policy_institute/health/protecting-caregivers-employment-discrimination-insight-AARP-ppi-ltc.pdf
Winett, R., Neale, M., & Neal, M. (1980). Results of experimental study on flexitime and family life. Monthly Labor Review, 103(11), 29–32.
Wolff, J. L., & Agree, E. M. (2004). Depression among recipients of informal care: The effects of reciprocity, respect, and adequacy of support. The Journals of Gerontology, Series B, Psychological Sciences and Social Sciences, 59(3), 173–180.
Wolff, J. L., Spillman, B. C., & Freedman, V. A. (2016). A national profile of family and unpaid caregivers who assist older adults with health care activities. The Journal of the American Medical Association Intern Med, 176(3), 372–379. https://doi.org/10.1001/jamainternmed.2015.7664
Wright, D. L., & Aquilino, W. S. (1998). Influence of emotional support exchange in marriage on caregiving wives’ burden and marital satisfaction. Family Relations, 47, 195–204. https://doi.org/10.2307/585624
Zacher, H., Jimmieson, N., & Winter, G. (2012). Eldercare demands, mental health, and work performance: The moderating role of satisfaction with eldercare tasks. Journal of Occupational Health Psychology, 17(1), 52–64. https://doi.org/10.1037/a0025154
Zeytinoglu, I. U., Cooke, G. B., & Mann, S. L. (2010). Employer offered family support programs, gender, and voluntary and involuntary part-time work. Industrial Relations, 65(2), 177–-195.
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We thank Elenoa McCabe and Sarah Mercer for their assistance with preparing this manuscript.
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This research was supported by the Mountains and Plains Education and Research Center, Grant T42OH009229, funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.
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Clancy, R.L., Fisher, G.G., Daigle, K.L. et al. Eldercare and Work Among Informal Caregivers: A Multidisciplinary Review and Recommendations for Future Research. J Bus Psychol 35, 9–27 (2020). https://doi.org/10.1007/s10869-018-9612-3
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DOI: https://doi.org/10.1007/s10869-018-9612-3