Advertisement

Journal of Child and Family Studies

, Volume 26, Issue 2, pp 337–344 | Cite as

Peer-Delivered Models for Caregivers of Children and Adults with Health Conditions: A Review

  • Mary Acri
  • Shirley Zhang
  • Joshua G. Adler
  • Geetha Gopalan
Original Paper

Abstract

Peer-delivered health models may hold important benefits for family members, yet their prevalence, components, and outcomes are unknown. We conducted a review of peer-delivered services for families of children and adults with serious health problems. Studies of interventions published between 2000 and 2016 were included if the intervention contained a component for family members. Of 88 studies that were assessed for their eligibility, five met criteria. Familial components included information about the health condition and management, strategies to enhance communication and stress, and the provision of emotional support. Outcomes were largely favorable, including reductions in distress and symptoms of trauma, enhanced quality of life, and positive perceptions of the peer therapeutic alliance. Peer-delivered services for family members may hold important benefits to caregivers; however, the research base remains thin. A research agenda to develop and examine these models is discussed.

Keywords

Peer support services Informal caregivers Peer models for health conditions 

Notes

Compliance with ethical standards

Competing financial interests

The authors declare no competing financial interests.

References

  1. Acri, M., Hooley, C.D., Richardson, N., & Moaba, L.B. (2016). Peer models in mental health for caregivers and families. Community Mental Health Journal, 1–9.Google Scholar
  2. Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. The Journal of the American Medical Association, 311(10), 1052–1060.CrossRefPubMedGoogle Scholar
  3. Allicock, M., Carr, C., Johnson, L. S., Smith, R., Lawrence, M., Kaye, L., et al. (2014). Implementing a one-on-one peer support program for cancer survivors using a motivational interviewing approach: Results and lessons learned. Journal of Cancer Education, 29(1), 91–98.CrossRefPubMedPubMedCentralGoogle Scholar
  4. Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217.PubMedPubMedCentralGoogle Scholar
  5. Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33(4), 408–421.CrossRefPubMedGoogle Scholar
  6. Chambers, S. K., Schover, L., Halford, K., Ferguson, M., Gardiner, R. A., Occhipinti, S., et al. (2013). ProsCan for couples: A feasibility study for evaluating peer support within a controlled research design. Psycho‐Oncology, 22(2), 475–479.PubMedGoogle Scholar
  7. Davidson, L., Bellamy, C., Guy, K., & Miller, R. (2012). Peer support among persons with severe mental illnesses: A review of evidence and experience. World psychiatry: official journal of the World Psychiatric Association (WPA), 11(2), 123–128.CrossRefGoogle Scholar
  8. Davidson, L., Chinman, M., Sells, D., & Rowe, M. (2006). Peer support among adults with serious mental illness: A report from the field. Schizophrenia Bulletin, 32(3), 443–450.CrossRefPubMedPubMedCentralGoogle Scholar
  9. Desai, P. P., Rivera, A. T., & Backes, E. M. (2016). Latino caregiver coping with children’s chronic health conditions: An integrative literature review. Journal of Pediatric Health Care, 30(2), 108–120.CrossRefPubMedGoogle Scholar
  10. Dixon, L., McFarlane, W. R., Lefley, H., Lucksted, A., Cohen, M., Falloon, I., et al. (2001). Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatric Services, 52(7), 903–910.CrossRefPubMedGoogle Scholar
  11. Family Caregiver Alliance (2016). A population at risk. https://www.caregiver.org/caregiver-health.
  12. Foster, M., Whitehead, L., & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centered care for children in hospital, in developed and developing countries: A review of the literature. International Journal of Nursing Studies, 47(9), 1184–1193.CrossRefPubMedGoogle Scholar
  13. Hoagwood, K., Cavaleri, M. A., Olin, S., Burns, B., Slaton, E., Gruttadaro, D., et al. (2010). Family support in children’s mental health: A review and synthesis. Clinical Child and Family Psychology Review, 13, 1–45.CrossRefPubMedGoogle Scholar
  14. Hoagwood, K. E., Jensen, P., Acri, M., Olin, S. S., Lewandowski, E., & Herman, R. (2012). Outcome domains in child mental health research since 1996: Have they changed and why does it matter? Journal of the American Academy of Child & Adolescent Psychiatry, 51(12), 1241–1260.CrossRefGoogle Scholar
  15. Laks, J., Goren, A., Dueñas, H., Novick, D., & Kahle‐Wrobleski, K. (2016). Caregiving for patients with alzheimer’s disease or dementia and its association with psychiatric and clinical comorbidities and other health outcomes in Brazil. International Journal of Geriatric Psychiatry, 31(2), 176–185.CrossRefPubMedGoogle Scholar
  16. Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.Google Scholar
  17. Neri, L., Lucidi, V., Catastini, P., & Colombo, C. (2015). Caregiver burden and vocational participation among parents’ of adolescents with CF. Pediatric Pulmonology, 51(3), 243–252.Google Scholar
  18. O’Brien, I., Duffy, A., & Nicholl, H. (2009). Impact of childhood chronic illnesses on siblings: A literature review. British Journal of Nursing, 18(22), 1358–1365CrossRefGoogle Scholar
  19. Phillips, S. S., Ragas, D. M., Hajjar, N., Tom, L. S., Dong, X., & Simon, M. A. (2016). Leveraging the experiences of informal caregivers to create future healthcare workforce options. Journal of the American Geriatrics Society, 64(1), 174–180.CrossRefPubMedPubMedCentralGoogle Scholar
  20. Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168(8), 969–973.PubMedPubMedCentralGoogle Scholar
  21. Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. In R. G. Hughes (Ed.), Patient safety and quality: An evidence-based handbook for nurses (Chapter 14). Rockville, MD: Agency for Healthcare Research and Quality.Google Scholar
  22. Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249.CrossRefPubMedGoogle Scholar
  23. St. Jude Children’s Research Hospital (2016). What is patient family centered care? https://www.stjude.org/treatment/patient-resources/family-centered-care.html.
  24. Sullivan-Bolyai, S., Bova, C., Leung, K., Trudeau, A., Lee, M., & Gruppuso, P. (2010). Social support to empower parents (STEP) An intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator, 36(1), 88–97.CrossRefPubMedGoogle Scholar
  25. Tam, V. V., Larsson, M., Pharris, A., Diedrichs, B., Nguyen, H. P., & Nguyen, C. T. K., et al. (2012). Peer support and improved quality of life among persons living with HIV on antiretroviral treatment: A randomised controlled trial from north-eastern Vietnam. Health and Quality of Life Outcomes, 10(1), 1.CrossRefGoogle Scholar
  26. Yale New Haven Hospital (2016). What is patient and family centered care? https://www.ynhh.org/services/quality-safety/patient-and-family-centered-care.aspx.

Copyright information

© Springer Science+Business Media New York 2016

Authors and Affiliations

  • Mary Acri
    • 1
  • Shirley Zhang
    • 1
  • Joshua G. Adler
    • 2
  • Geetha Gopalan
    • 3
  1. 1.New York University Medical CenterThe McSilver Institute for Poverty, Policy, and ResearchNew YorkUSA
  2. 2.Steinhardt School of Culture, Education, and Human DevelopmentUniversity in New York CityManhattanUSA
  3. 3.University of Maryland School of Social Work, M School of Social WorkBaltimoreUSA

Personalised recommendations