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Mindfulness, Stress and Well-Being in Parents of Children with Autism Spectrum Disorder: A Systematic Review

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Abstract

Parenting a child with Autism Spectrum Disorder (ASD) is often associated with reduced quality of life, high stress, depression and anxiety due to the ongoing nature of care. This review systematically investigated the efficacy of mindfulness interventions in reducing stress and increasing psychological wellbeing in parents of children with ASD. A comprehensive electronic database search was conducted for relevant articles. Only studies investigating parental stress or a measure of psychological wellbeing in parents of children with ASD post a mindfulness-based intervention were included. Ten studies met inclusion criteria; each was examined for treatment fidelity. All included studies contributed at least one self-report finding supporting the efficacy of mindfulness interventions in reducing stress and increasing psychological wellbeing. Three studies included physiological measures of reduced stress and emotional responses. Two reported concomitant improvements in child behavior. Mindfulness-based interventions potentially have long-term positive effects on stress levels and psychological wellbeing of parents of children with ASD, in addition to enhancing their child’s behavior. Future research is needed to develop a cost and time effective intervention aimed at maximising efficacy of current interventions in children with ASD and their parents.

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References

References marked with an asterisk indicate studies included in the Systematic Review

  • Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., Murphy, M. M., & Floyd, F. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile x syndrome. American Journal on Mental Retardation, 109, 237–254.

    Article  PubMed  Google Scholar 

  • Barnes, S., Brown, K. W., Krusemark, E., Campbell, W. K., & Rogge, R. D. (2007). The role of mindfulness in romantic relationship satisfaction and responses to relationship stress. Journal of Marital and Family Therapy, 33, 482–500.

    Article  PubMed  Google Scholar 

  • Baron Short, E., Kose, S., Mu, Q., Borckardt, J., Newberg, A., George, M. S., & Kozel, F. A. (2010). Regional brain activation during meditation shows time and practice effects: An exploratory FMRI study. Evidence-Based Complementary and Alternative Medicine, 7, 121–127.

    Article  PubMed  PubMed Central  Google Scholar 

  • Beer, M., Ward, L., & Moar, K. (2013). The relationship between mindful parenting and distress in parents of children with an autism spectrum disorder. Mindfulness, 4, 102–112.

    Article  Google Scholar 

  • *Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48, 1476–1487.

    Article  PubMed  Google Scholar 

  • Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorder. Australian Journal of Guidance and Counselling, 14(2), 151–161.

    Google Scholar 

  • *Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28(1), 1–18.

    Article  Google Scholar 

  • Bögels, S. M., Lehtonen, A., & Restifo, K. (2010). Mindful parenting in mental health care. Mindfulness, 1, 107–120.

    Article  PubMed  PubMed Central  Google Scholar 

  • Borders, A., Earleywine, M., & Jajodia, A. (2010). Could mindfulness decrease anger, hostility, and aggression by decreasing rumination? Aggressive Behavior, 36, 28–44.

    Article  PubMed  Google Scholar 

  • Brefczynski-Lewis, J. A., Lutz, A., Schaefer, H. S., Levinson, D. B., & Davidson, R. J. (2007). Neural correlates of attentional expertise in long-term meditation practitioners. Proceedings of the National Academy of Sciences, 104, 11483–11488.

    Article  Google Scholar 

  • Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders the couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24, 38–49.

    Article  Google Scholar 

  • Carmody, J., & Baer, R. A. (2008). Relationships between mindfulness practice and levels of mindfulness, medical and psychological symptoms and well-being in a mindfulness-based stress reduction program. Journal of Behavioral Medicine, 31, 23–33.

    Article  PubMed  Google Scholar 

  • Carmody, J., & Baer, R. A. (2009). How long does a mindfulness-based stress reduction program need to be? A review of class contact hours and effect sizes for psychological distress. Journal of Clinical Psychology, 65, 627–638.

    Article  PubMed  Google Scholar 

  • Conner, C. M., & White, S. W. (2014). Stress in mothers of children with autism: Trait mindfulness as a protective factor. Research in Autism Spectrum Disorders, 8, 617–624.

    Article  Google Scholar 

  • Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54, 266–280.

    Article  PubMed  Google Scholar 

  • Davidson, R. J., Kabat-Zinn, J., Schumacher, J., Rosenkranz, M., Muller, D., Santorelli, S. F., & Sheridan, J. F. (2003). Alterations in brain and immune function produced by mindfulness meditation. Psychosomatic Medicine, 65, 564–570.

    Article  PubMed  Google Scholar 

  • *de Bruin, E. I., Blom, R., Smit, F. M., van Steensel, F. J., & Bögels, S. M. (2014). MYmind: Mindfulness training for youngsters with autism spectrum disorders and their parents. Autism. doi:10.1177/1362361314553279.

    PubMed  Google Scholar 

  • Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, down syndrome, behavior disorders, and normal development. Exceptionality: A Special Education Journal, 2, 97–110.

    Article  Google Scholar 

  • Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387.

    Article  PubMed  Google Scholar 

  • *Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: Feasibility and preliminary outcome data. Mindfulness 4, 89–101.

    Article  Google Scholar 

  • Goodman, M. J., & Schorling, J. B. (2012). A mindfulness course decreases burnout and improves well-being among healthcare providers. The International Journal of Psychiatry in Medicine, 43, 119–128.

    Article  PubMed  Google Scholar 

  • Greenberg, J., Reiner, K., & Meiran, N. (2012). Mind the trap: Mindfulness practice reduces cognitive rigidity. PLoS ONE, 7(5), e36206. doi:10.1371/journal.pone.0036206.

    Article  PubMed  PubMed Central  Google Scholar 

  • Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with down syndrome and autism. Journal of Autism and Developmental Disorders, 40, 610–619.

    Article  PubMed  Google Scholar 

  • Grossman, P., Niemann, L., Schmidt, S., & Walach, H. (2004). Mindfulness-based stress reduction and health benefits: A meta-analysis. Journal of Psychosomatic Research, 57, 35–43.

    Article  PubMed  Google Scholar 

  • *Hahs, A. D. (2013a). A comparative analysis of acceptance and commitment therapy and a mindfulness-based therapy with parents of individuals diagnosis: Experiment 1 (Doctoral dissertation). Retrieved from ProQuest Dissertations and Theses. (UMI 3604355).

  • *Hahs, A. D. (2013b). A comparative analysis of acceptance and commitment therapy and a mindfulness-based therapy with parents of individuals diagnosed with autism spectrum disorder: Experiment 2 (Doctoral dissertation). Retrieved from ProQuest Dissertations and Theses. (UMI 3604355).

  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457.

    Article  PubMed  PubMed Central  Google Scholar 

  • Hassed, C., & Chambers, R. (2014). Mindful learning: Reduce stress and improve brain performance for effective learning. Wollombi, NSW: Exisle Publishing.

    Google Scholar 

  • Hastings, R. P. (2002). Parental stress and behavior problems of children with developmental disability. Journal of Intellectual and Developmental Disability, 27, 149–160.

    Article  Google Scholar 

  • Jha, A. P., Stanley, E. A., Kiyonaga, A., Wong, L., & Gelfand, L. (2010). Examining the protective effects of mindfulness training on working memory capacity and affective experience. Emotion, 10, 54–64.

    Article  PubMed  Google Scholar 

  • Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: The mediating role of mindfulness and acceptance. American Journal on Intellectual and Developmental Disabilities, 119, 171–185.

    Article  PubMed  Google Scholar 

  • Jones, K. C., Welton, S. R., Oliver, T. C., & Thorburn, J. W. (2011). Mindfulness, spousal attachment, and marital satisfaction: A mediated model. The Family Journal, 19, 357–361.

    Article  Google Scholar 

  • Kabat-Zinn, J. (2003). Mindfulness-based stress reduction (MBSR). Constructivism in the Human Sciences, 8(2), 73–107.

    Google Scholar 

  • Kabat-Zinn, J. (2009). Full catastrophe lisving: Using the wisdom of your body and mind to face stress, pain, and illness. New York: Random House LLC.

    Google Scholar 

  • Kabat-Zinn, M., & Kabat-Zinn, J. (1997). Everyday blessings: The inner work of mindful parenting. New York: Hyperion.

    Google Scholar 

  • Keng, S. L., Smoski, M. J., & Robins, C. J. (2011). Effects of mindfulness on psychological health: A review of empirical studies. Clinical Psychology Review, 31, 1041–1056.

    Article  PubMed  PubMed Central  Google Scholar 

  • *Kowalkowski, J. D. (2012). The impact of a group-based acceptance and commitment therapy intervention on parents of children diagnosed with an autism spectrum disorder (Doctoral Dissertation). Retrieved from Master’s Theses and Doctoral Dissertations. (Paper 512).

  • Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.

    Article  PubMed  Google Scholar 

  • Lengacher, C. A., Kip, K. E., Barta, M., Post-White, J., Jacobsen, P. B., Groer, M., & Le, N. (2012). A pilot study evaluating the effect of mindfulness-based stress reduction on psychological status, physical status, salivary cortisol, and interleukin-6 among advanced-stage cancer patients and their caregivers. Journal of Holistic Nursing, 30, 170–185.

    Article  PubMed  Google Scholar 

  • Lykins, E. L., & Baer, R. A. (2009). Psychological functioning in a sample of long-term practitioners of mindfulness meditation. Journal of Cognitive Psychotherapy, 23, 226–241.

    Article  Google Scholar 

  • McGrath, A. (2013). Links between the conduct of carers and clients’ challenging behavior: Anthony McGrath explains how a cycle of reciprocal behavioral reinforcement can develop between service users and members of support staff. Learning Disability Practice, 16(6), 30–32.

    Article  Google Scholar 

  • Minor, H. G., Carlson, L. E., Mackenzie, M. J., Zernicke, K., & Jones, L. (2006). Evaluation of a mindfulness-based stress reduction (MBSR) program for caregivers of children with chronic conditions. Social Work in Health Care, 43, 91–109.

    Article  PubMed  Google Scholar 

  • Myers, R. E., Winton, A. S. W., Lancioni, G. E., & Singh, N. N. (2014). Mindfulness meditation in developmental disabilities. In N. N. Singh (Ed.), Psychology of meditation (pp. 209–240). New York: Nova.

    Google Scholar 

  • Neece, C. L. (2014). Mindfulness-based stress reduction for parents of young children with developmental delays: Implications for parental mental health and child behavior problems. Journal of Applied Research in Intellectual Disabilities, 27, 174–186.

    Article  PubMed  Google Scholar 

  • Neece, C. L., Green, S. A., & Baker, B. L. (2012). Parenting stress and child behavior problems: A transactional relationship across time. American Journal on Intellectual and Developmental Disabilities, 117, 48–66.

    Article  PubMed  Google Scholar 

  • Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092–1103.

    Article  PubMed  Google Scholar 

  • *Ruiz-Robledillo, N., Sarinana-Gonzalez, P., Perez-Blasco, J., Gonzalez-Bono, E., & Moya-Albiol, L. (2014). A mindfulness-based program improves health in caregivers of people with autism spectrum disorder: A pilot study. Mindfulness. doi:10.1007/s12671-014-0316-0.

    Google Scholar 

  • Singh, N. N., Lancioni, G. E., Karazsia, B. T., Myers, R. E., Winton, A. S., Latham, L. L., & Nugent, K. (2014a). Effects of training staff in MBPBS on the use of physical restraints, staff stress and turnover, staff and peer injuries, and cost effectiveness in developmental disabilities. Mindfulness. doi:10.1007/s12671-014-0369-0.

    PubMed  PubMed Central  Google Scholar 

  • *Singh, N. N., Lancioni, G. E., Winton, A. S., Fisher, B. C., Wahler, R. G., Mcaleavey, K., & Sabaawi, M. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14, 169–177.

    Article  Google Scholar 

  • *Singh, N. N., Lancioni, G. E., Winton, A. S., Karazsia, B. T., Myers, R. E., Latham, L. L., & Singh, J. (2014b). Mindfulness-based positive behavior support (MBPBS) for mothers of adolescents with autism spectrum disorder: Effects on adolescents’ behavior and parental stress. Mindfulness 5, 646–657.

    Article  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31, 749–771.

    Article  PubMed  Google Scholar 

  • Singh, N. N., Wahler, R. G., Adkins, A. D., Myers, R. E., & MR Group. (2003). Soles of the feet: A mindfulness-based self-control intervention for aggression by an individual with mild mental retardation and mental illness. Research in Developmental Disabilities, 24, 158–169.

    Article  PubMed  Google Scholar 

  • Sullivan, R. C., Ward, D., Faragoh, E., Hagamen, M. B., Foster, R. E., & LaVigna, G. W. (1979). The burn-out syndrome. Journal of Autism and Developmental Disorders, 9, 111–126.

    Article  Google Scholar 

  • Van Gordon, W., Shonin, E., Griffiths, M. D., & Singh, N. N. (2014). There is only one mindfulness: Why science and buddhism need to work together. Mindfulness 6, 49–56.

    Article  Google Scholar 

  • Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M., & Lunsky, Y. (2012). The impact of child problem behaviors of children with ASD on parent mental health: The mediating role of acceptance and empowerment. Autism, 16, 261–264.

    Article  PubMed  Google Scholar 

  • What Works Clearinghouse (WWC). (2014). Pilot single-case design standards. In The what works clearinghouse procedures and standards handbook, Version 3.0 (pp. E.1–E.15). Retrieved from http://ies.ed.gov/ncee/wwc/pdf/reference_resources/wwc_procedures_v3_0_standards_handbook.pdf.

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Authors and Affiliations

  1. Faculty of Education, Monash University, Clayton, VIC, 3800, Australia

    Renee L. Cachia, Angelika Anderson & Dennis W. Moore

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  1. Renee L. Cachia
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  2. Angelika Anderson
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  3. Dennis W. Moore
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Correspondence to Renee L. Cachia.

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Cachia, R.L., Anderson, A. & Moore, D.W. Mindfulness, Stress and Well-Being in Parents of Children with Autism Spectrum Disorder: A Systematic Review. J Child Fam Stud 25, 1–14 (2016). https://doi.org/10.1007/s10826-015-0193-8

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