Addressing the Educational Needs of Children with Williams Syndrome: A Rather Neglected Area of Research?
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Williams syndrome (WS) is a rare neurodevelopmental disorder associated with physical health problems, limitations in cognitive abilities and increased risk of mental health difficulties. This profile of complex needs may make it challenging to support children with WS in schools. Surprisingly, in the current international move for inclusion, limited research exists on the educational provision and academic achievements of children with WS, including the non-existing literature on their voices and the perspectives of key stakeholders. This letter calls for additional research on the risk and protective factors associated with the educational outcomes of these children, the perspectives of the children themselves and the development of the evidence-base about the effectiveness of education intervention programs.
KeywordsWilliams syndrome Educational provision Academic achievements Transition Interventions
This study was funded by Williams Syndrome Foundation.
- Burgoyne, K., Duff, F. J., Clarke, P. J., Buckley, S., Snowling, M. J., & Hulme, C. (2012). Efficacy of a reading and language intervention for children with down syndrome: A randomised controlled trial. Journal of Child Psychology and Psychiatry, 53, 1044–1053. https://doi.org/10.1111/j.1469-7610.2012.02557.x.CrossRefPubMedGoogle Scholar
- Department for Education. (2015). Special educational needs and disability code of practice: 0 to 25 years. London: HMSO.Google Scholar
- Department for Education (2017). Special educational needs and disability (SEND) (Available at: https://www.gov.uk/government/policies/special-educational-needs-and-disability-send) (Accessed 16 Nov 2017).
- Dykens, E. M., Hodapp, R. M., & Finucane, B. M. (2000). Genetics and mental retardation syndromes: A new look at behavior and interventions. Baltimore: Paul H Brookes Publishing.Google Scholar
- Hodapp, R. M., & Fisher, M. H. (2017). Using genetic etiology to intervene with students with intellectual disabilities. In S. Bouregy, E. L. Grigorenko, S. R. Latham & M. Tan (Eds.), Genetics, ethics, and education. Cambridge University Press: Cambridge.Google Scholar
- Howlin, P., Elison, S., & Stinton, C. (2009). Trajectories of cognitive, linguistic and adaptive functioning in Williams syndrome. Journal of Intellectual Disability Research, 53(10), 836–836.Google Scholar
- Individuals with Disabilities Education Act (IDEA). (2004). USA.Google Scholar
- Morris, C. A., & Mervis, C. B. (1999). Williams syndrome. In S. Goldstein & C. R. Reynolds (Eds.), Handbook of neurodevelopmental and genetic disorders in children (pp. 555–590). New York: The Guilford Press.Google Scholar