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Parent Expectations and Preparatory Activities as Adolescents with ASD Transition to Adulthood

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Abstract

Community stakeholders, researchers, and providers are increasingly focused on individual, family, and systemic factors that contribute to positive outcomes for adults on the autism spectrum. Parent expectations for their youth’s future are associated with adult outcomes (e.g., employment, school success, independence), yet the mechanism for this effect remains unclear. This study investigated how expectations were related to parent transition-related activities in a sample of 298 parents of adolescents on the autism spectrum (48% female adolescents), stratified by parent-reported IQ (average or above, borderline, or below 70). Parent expectations for the future predicted engagement in some activities intended to enhance adult outcomes when controlling for IQ, gender, age, and household income. The results have implications for how providers discuss expectations and support families in preparing for adulthood.

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Notes

  1. Please note that a subset of participants (n = 198) have been described in previous research on parent–child sexuality communication [Blinded for review].

References

  • Agran, M., MacLean, W., & Kitchen Andren, K. A. (2015). I never thought about it: Teaching people with intellectual disability to vote. Education and Training in Autism and Developmental Disabilities, 50, 388–396.

    Google Scholar 

  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (Revised 4th ed.). Washington, DC: American Psychiatric Association.

  • Campbell, J., & Oliver, M. (1996). Disability politics: Understanding our past, changing our future. New York: Routledge.

    Google Scholar 

  • Carter, E. W., Austin, D., & Trainor, A. A. (2012). Predictors of postschool employment outcomes for young adults with severe disabilities. Journal of Disability Policy Studies, 23, 50–63.

    Article  Google Scholar 

  • Cicognani, E., Zani, B., Fournier, B., Gavray, C., & Born, M. (2012). Gender differences in youths’ political engagement and participation: The role of parents and of adolescents’ social and civic participation. Journal of Adolescence, 35, 561–576.

    Article  PubMed  Google Scholar 

  • Cimera, R. E., & Cowan, R. J. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. Autism, 13, 285–302.

    Article  PubMed  Google Scholar 

  • Constantino, J. N., & Gruber, C. P. (2012). Social Responsiveness Scale-2. Los Angeles: Western Psychological Services.

    Google Scholar 

  • Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2012). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders, 42, 257–265.

    Article  PubMed  Google Scholar 

  • Davis-Kean, P. E. (2005). The influence of parent education and family income on child achievement: The indirect role of parental expectations and the home environment. Journal of Family Psychology, 19, 294–304.

    Article  PubMed  Google Scholar 

  • DiClemente, R. J., Wingood, G. M., Crosby, R., Sionean, C., Cobb, B. K., Harrington, K., & Oh, M. K. (2001). Parental monitoring: Association with adolescents’ risk behaviors. Pediatrics, 107, 1363–1368.

    Article  PubMed  Google Scholar 

  • Dishion, T. J., & McMahon, R. J. (1998). Parental monitoring and the prevention of child and adolescent problem behavior: A conceptual and empirical formulation. Clinical Child and Family Psychology Review, 1, 61–75.

    Article  PubMed  Google Scholar 

  • Doren, B., Gau, J. M., & Lindstrom, L. E. (2012). The relationship between parent expectations and postschool outcomes of adolescents with disabilities. Exceptional Children, 79, 7–23.

    Article  Google Scholar 

  • Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–749.

    Article  PubMed  Google Scholar 

  • Englund, M. M., Luckner, A. E., Whaley, G. J. L., & Egeland, B. (2004). Children’s achievement in early elementary school: Longitudinal effects of parental involvement, expectations, and quality of assistance. Journal of Educational Psychology, 96, 723–730.

    Article  Google Scholar 

  • Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., & Coon, H. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2, 109–118.

    Article  PubMed  Google Scholar 

  • Finkelhor, D., Shattuck, A., Turner, H. A., & Hamby, S. L. (2014). The lifetime prevalence of child sexual abuse and sexual assault assessed in late adolescence. Journal of Adolescent Health, 55, 329–333.

    Article  PubMed  Google Scholar 

  • Fisher, K., Egerton, M., Gershuny, J. I., & Robinson, J. P. (2007). Gender convergence in the American Heritage Time Use Study (AHTUS). Social Indicators Research, 82, 1–33.

    Article  PubMed  Google Scholar 

  • Giarelli, E., Wiggins, L. D., Rice, C. E., Levy, S. E., Kirby, R. S., Pinto-Martin, J., & Mandell, D. (2010). Sex differences in the evaluation and diagnosis of autism spectrum disorders among children. Disability and Health Journal, 3, 107–116.

    Article  PubMed  Google Scholar 

  • Goldenberg, C., Gallimore, R., Reese, L., & Garner, H. (2001). Cause or effect? A longitudinal study of immigrant Latino parents’ aspirations and expectations, and their children’s school performance. American Educational Research Journal, 38, 547–582.

    Article  Google Scholar 

  • Gray, K., Keating, C., Taffe, J., Brereton, A., Einfeld, S., & Tonge, B. (2012). Trajectory of behaviour and emotional problems in autism. American Journal of Intellectual and Developmental Disabilities, 117, 121–133.

    Article  Google Scholar 

  • Halladay, A., Bishop, S., Constantino, J. N., Daniels, A. M., Koenig, K., Palmer, K., & Szatmari, P. (2015). Sex and gender differences in autism spectrum disorder: Summarizing evidence gaps and identifying emerging areas of priority. Molecular Autism, 6, 1–5.

    Article  Google Scholar 

  • Halpern, A. S. (1993). Quality of life as a conceptual framework for evaluating transition outcomes. Exceptional Children, 59, 486–498.

    Article  Google Scholar 

  • Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17, 103–116.

    Article  PubMed  Google Scholar 

  • Hogan, D. P., & Astone, N. M. (1986). The transition to adulthood. Annual Review of Sociology, 12, 109–130.

    Article  Google Scholar 

  • Holmes, L. G., & Himle, M. B. (2014). Brief report: Parent-child sexuality communication and autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 2964–2970.

    Article  PubMed  Google Scholar 

  • Holmes, L. G., Himle, M. B., & Strassberg, D. S. (2016a). Parental romantic expectations and parent–child sexuality communication in autism spectrum disorders. Autism, 20, 687–699.

    Article  PubMed  Google Scholar 

  • Holmes, L. G., Himle, M. B., & Strassberg, D. S. (2016b). Parental sexuality-related concerns for adolescents with autism spectrum disorders and average or above IQ. Research in Autism Spectrum Disorder, 21, 84–93.

    Article  Google Scholar 

  • Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid- to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child & Adolescent Psychiatry, 52, 572–581.

    Article  Google Scholar 

  • Ivey, J. K. (2004). What do parents expect?: A study of likelihood and importance issues for children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 19, 27–33.

    Article  Google Scholar 

  • Kirby, A. V. (2015). Factors influencing participation outcomes of young adults with autism spectrum disorder (Doctoral dissertation). Retrieved from ProQuest. (3703827).

  • Kirby, A. V. (2016). Parent expectations mediate outcomes for young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46, 1643–1655.

    Article  PubMed  Google Scholar 

  • Leigh, J. P., Grosse, S. D., Cassady, D., Melnikow, J., & Hertz-Picciotto, I. (2016). Spending by California’s Department of Developmental Services for persons with autism across demographic and expenditure categories. PLoS ONE, 11, e0151970.

    Article  PubMed  PubMed Central  Google Scholar 

  • Lindstrom, L., Doren, B., Metheny, J., Johnson, P., & Zane, C. (2007). Transition to employment: Role of the family in career development. Exceptional Children, 73, 348–366.

    Article  Google Scholar 

  • Liptak, G. S., Kennedy, J. A., & Dosa, N. P. (2011). Social participation in a nationally representative sample of older youth and young adults with autism. Journal of Developmental and Behavioral Pediatrics, 32, 277–283.

    Article  PubMed  Google Scholar 

  • Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417.

    Article  PubMed  Google Scholar 

  • Magiati, I., Tay, X. W., & Howlin, P. (2014). Cognitive, language, social, and behavioral outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34, 73–86.

    Article  PubMed  Google Scholar 

  • Masino, L. L., & Hodapp, R. M. (1996). Parental educational expectations for adolescents with disabilities. Exceptional Children, 62, 515–523.

    Article  Google Scholar 

  • Mistry, R. S., White, E. S., Benner, A. D., & Huynh, V. W. (2009). A longitudinal study of the simultaneous influence of mothers’ and teachers’ educational expectations on low-income youth’s academic achievement. Journal of Youth and Adolescence, 38, 826–838.

    Article  PubMed  Google Scholar 

  • Mutua, K., & Dimitrov, D. M. (2001). Prediction of school enrollment of children with intellectual disabilities in Kenya: The role of parents’ expectations, beliefs, and education. International Journal of Disability, Development, and Education, 48, 179–191.

    Article  Google Scholar 

  • Perez, J. M., & Sevilla, M. (1993). Psychological assessment of adolescents and adults with autism. Journal of Autism and Developmental Disorders, 23, 653–664.

    Article  Google Scholar 

  • Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., & Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52, 931–939.

    Article  PubMed  PubMed Central  Google Scholar 

  • Schlozman, K. L., Burns, N., & Verba, S. (1999). What happened at work today?: A multistage model of gender, employment, and political participation. The Journal of Politics, 61, 29–53.

    Article  Google Scholar 

  • Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234–247.

    Article  PubMed  Google Scholar 

  • Shakespeare, T. (2006). The social model of disability. In L. J. Davis (Ed.), The disability studies reader (2nd ed., pp. 214–220). New York: Routledge.

    Google Scholar 

  • Sharpe, D. (2015). Your chi-square test is statistically significant: Now what? Practical Assessment, Research, and Evaluation, 20, e1–e10.

    Google Scholar 

  • Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary and employment among youth with an autism spectrum disorder. Pediatrics, 129, 1042–1049.

    Article  PubMed  PubMed Central  Google Scholar 

  • Taylor, J. L., & Mailick, M. R. (2014). A longitudinal examination of 10-year change in vocational and educational activities for adults with autism spectrum disorders. Developmental Psychology, 50, 699–708.

    Article  PubMed  Google Scholar 

  • Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.

    Article  PubMed  PubMed Central  Google Scholar 

  • Test, D. W., Fowler, C. H., Wood, W. M., Brewer, D. M., & Eddy, S. (2005). A conceptual framework of self-advocacy for students with disabilities. Remedial and Special Education, 26, 43–54.

    Article  Google Scholar 

  • Thomas, P. A., King, J. S., Mendelson, J. L., & Nelson-Gray, R. O. (2017). Parental psychopathology and expectations for the futures of children with autism spectrum disorder. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12337.

    PubMed  Google Scholar 

  • United States. (2017). American time use survey. Washington, DC: U.S. Bureau of Labor Statistics.

    Google Scholar 

  • Yamamoto, Y., & Holloway, S. D. (2010). Parental expectations and children’s academic performance in sociocultural context. Educational Psychology Review, 22, 189–214.

    Article  Google Scholar 

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Acknowledgments

Anne V. Kirby’s research efforts were supported by the University of Utah Program in Personalized Health and the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number KL2TR001065. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

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LGH conceived of the study, participated in its design and coordination, recruited participants, performed the statistical analyses, and drafted the manuscript. AVK conceived of the study, performed and interpreted statistical analyses, and drafted the manuscript. MBH and DSS participated in study design and coordination, recruitment of participants, and helped to draft the manuscript.

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Correspondence to Laura G. Holmes.

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Holmes, L.G., Kirby, A.V., Strassberg, D.S. et al. Parent Expectations and Preparatory Activities as Adolescents with ASD Transition to Adulthood. J Autism Dev Disord 48, 2925–2937 (2018). https://doi.org/10.1007/s10803-018-3545-6

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