Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome
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Mothers of individuals with Prader-Willi syndrome (PWS) often experience numerous stressors, even when compared to mothers of children with other intellectual and developmental disabilities. Despite this, these mothers show great variability in self-reported life satisfaction. Using data from a longitudinal study of individuals with PWS and their families, the present study analyzed factors related to maternal life satisfaction, both cross-sectionally and over time. Results show that both child factors (e.g., behavior problems, hyperphagia) and maternal factors (e.g., stress, coping style) were significantly related to maternal life satisfaction. However, none of the tested variables predicted change in life satisfaction over time. Research and practice implications are discussed.
KeywordsPrader-Willi syndrome Life satisfaction Mothers Coping
We would like to thank the children and families who participated in the study and made this research possible, as well as Elizabeth Roof, M.A., Senior Research Scientist and all the members of the Prader-Willi Syndrome Lab at the Vanderbilt Kennedy Center. This research was supported by NICHD Grants R01HD035684, U54 HD061222, and P30HD015052.
CS conceived of the present study, conducted the analyses, and drafted the manuscript. CL participated in statistical interpretation and draft of the manuscript. ED is the PI for the larger study from which the present data was drawn and participated in draft of the manuscript. All authors made contributions worthy of authorship and approved of the final version of the manuscript.
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