Quality of Life of Adults with Pervasive Developmental Disorders and Intellectual Disabilities
- 528 Downloads
The purpose of this study was to observe quality of life (QoL) and global evolution of persons with Pervasive Developmental Disorders (PDD) in three different groups. Individualized programs for PDD were compared to traditional programs for intellectual disabilities. Behavioural disorders were repeatedly evaluated using the Aberrant Behaviour Checklist (ABC) and QoL once a year. Little research has investigated this domain due to methodological problems with a non-verbal population. Two preliminary studies of individualized programs showed a significant reduction in behaviour disorders over the course of the study. The recent inclusion of a control group indicates that a traditional program reduces lethargy/social withdrawal (ABC factor 2). A good QoL was measured for the three groups.
KeywordsQuality of life Adults Pervasive development disabilities Intellectual disabilities Aberrant Behaviour Checklist Behavioural disorders
The authors would like to thank the research grant “Research & Development” of the University Hospitals of Geneva, which financially supported this study. Authors would also like to thank the Fondation FRH for its financial support of the longitudinal study since 2002 with the “Muriel Sarfati Grant”. Finally, we would like to thank Severine Bessero for her help in editing the article.
- Aman, M. G., Richmond, G., Stewart, A. W., Belle, J. C., & Kissel, R. C. (1987). The Aberrant behaviour checklist: Factor structure and the effect of subject variables in American and New Zealand Facilities. American Journal of Mental Deficiency, 91, 578–579.Google Scholar
- Galli Carminati, G., Gerber, F., Constantin, N., & Baud, O. (2007b). Evolution of adults with autism and profound intellectual disabilities living within a structured residential program: a 21-month longitudinal study. Swiss Archives of Neurology and Psychiatry, 158(5), 233–241.Google Scholar
- Mesibov, G. B., Schopler, E., Schaffer, B., & Landrus, R. (1997). Profil psycho-éducatif pour adolescents et adultes (AAPEP) [Adolescents and adults psychoeducational profile]. Editions De Boeck Université.Google Scholar
- Schalock, R. L., & Keith, K. (1993). Quality of life Questionnaire. Worthington, OH: IDS.Google Scholar
- Schopler, E., & Mesibov, G. B. (1985). Autism in Adolescents and Adults. New York/London Plenum Press.Google Scholar
- Schopler, E., Mesibov, G. B., Reichler, R. J., & Brenner, B. R. (1988). The Childhood Autism Rating Scale (CARS). Los Angeles, USA: Western Psychological Services.Google Scholar
- Tremblay, G., & Martin-Laval, H. (1997). Inventaire de qualité de vie en milieu résidentiel, I.Q.V.M.R. Montréal, Québec: Les Editions de la collectivité.Google Scholar
- World Health Organization. (1994). International statistical classification of diseases and related health problems-10th revision (ICD-10). Paris: WHO/Masson.Google Scholar