Skip to main content
Log in

Experiences and Support Needs of Mothers of Children with Food Allergy During the Transition to School

  • Published:
Early Childhood Education Journal Aims and scope Submit manuscript

Abstract

Despite the increasing attendance of children with food allergy in schools in Australia and globally, little is known about how affected families manage their children’s transition to school. This paper discusses the experiences and support needs of ten mothers during their child’s transition to school in Sydney, Australia, drawn from the thematic analysis of Photo Elicitation Interviews in homes. One of the significant findings of this study was that most mothers found their child’s transition to school both emotionally and practically challenging, even though their children previously attended a long day care or preschool setting. While the school’s pro-active transitional planning, procedures of food allergy management and psychological support provided to families facilitated a smooth start to school, a lack of these, together with poor or no communication and non-involvement of families in the management of children’s food allergy hindered it. Correspondingly, mothers highlighted the need for schools to keep children’s food allergy at the forefront of their transitional planning and support them holistically by pro-actively communicating, collaborating and involving families in the discussions about food allergy, empowering them with information on the school’s policies and procedures, and acknowledging their concerns of safety. Mothers considered these things to be essential. Additionally, mothers provided advice to other parents on how to achieve a positive start to school. The implications of this study’s findings for schools and families are discussed. Considering the small sample size and generalisability of the findings to other contexts and countries, further research is recommended both nationally and internationally.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • Australasian Society of Clinical Immunology and Allergy. Action Plan for Anaphylaxis. http://www.allergy.org.au/health-professionals/anaphylaxis-resources/ascia-action-plan-for-anaphylaxis. (Accessed 15 Oct 2014).

  • Avery, N. J., King, R. M., Knight, S., & Hourihane, J. O. B. (2003). Assessment of quality of life in children with peanut allergy. Paediatric Allergy Immunology, 14, 378–382, doi:10.1034/j.1399-3038.2003.00072.X.

    Article  Google Scholar 

  • Bock, A. W., Munoz-Furlong, A., & Sampson, H. A. (2007). Further fatalities caused by anaphylactic reactions from 2001 to 2006. Journal of Allergy and Clinical Immunology, 119(4), 1106–1108.

    Article  Google Scholar 

  • Bohan-Baker, M., & Little, P. M. D. (2002). The transition to kindergarten: A review of current research and promising practices to involve families. http://www.hfrp.org/content/download/1165/48670/file/bohan.pdf. (Accessed 25 Aug 2016).

  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology. doi:10.1191/1478088706qp063oa.

    Google Scholar 

  • Brissette, I., Scheier, M. F., & Carver, C. S. (2002). The role of optimism in social network development, coping, and psychological adjustment during a life transition. Journal of Personality and Social Psychology, 82, 102–111.

    Article  Google Scholar 

  • Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Cohen, L., Manion, L., & Morrison, K. (2000). Research methods in education. London: Routledge Falmer.

    Book  Google Scholar 

  • Dockett, S., Perry, B., & Kearney, E. (2012). Family transitions as children start school. Family Matters, 90, 57–67.

    Google Scholar 

  • Dunlop, A. (2003). Bridging early educational transitions in learning through children’s agency. European Early Childhood Education Research Journal, Themed Monographs, pp. 67–86. ISSN 1350-293X. http://www.aare.edu.au/03pap/dun03188.pdf. (Accessed 24 Mar 2017).

  • Dunlop, A. W. (2007). Bridging research, policy, and practice. In A. W. Dunlop & H. Fabien (Eds.), Informing transitions in the early years. Research, policy and practice (pp. 151–168). Maidenhead: Open university Press.

    Google Scholar 

  • Epstein, I., Stevens, B., McKeever, P., & Baruchel, S. (2006). Photo elicitation interview (PEI): Using photos to elicit children’s perspectives. International Journal of Qualitative Methods, 5(3), 1–11.

    Article  Google Scholar 

  • Fargas-Malet, M., McSherry, D., Larkin, E., & Robinson, C. (2010). Research with children: Methodological issues and innovative techniques. Journal of Early Childhood Research, 8(2), 175–192.

    Article  Google Scholar 

  • Fontil, L., & Petrakos, H. H. (2015). Transition to school: The experiences of Canadian and immigrant families of children with Autism Spectrum Disorders. Psychology in the Schools. doi:10.1002/pit.21859.

    Google Scholar 

  • Guest, G., MacQueen, K., & Namey, M. M. (2012). Applied thematic analysis. London: Sage Publishers.

    Book  Google Scholar 

  • Hetherington, S. A., Durant-Jones, L., Johnson, K., Nolan, K., Smith, E., Taylor-Brown, S., & Tuttle, J. (2010). The lived experiences of adolescents with disabilities and their parents in transition planning. Focus on Autism and Other Developmental Disabilities. doi:10.1177/1088357610373760.

    Google Scholar 

  • Jackson, K. D., Howie, L. D., & Akinbami, L. J. (2013). Trends in allergic conditions among children: United States, 1997–2011. NCHS Data Brief, No. 121. https://pdfs.semanticscholar.org/2aea/9abd11f5e51bfc3756f41e6d3cb894b8bb1d.pdf (Accessed 25 Aug 2017).

  • Janus, M., Lefort, J., Cameron, R., & Kopechanski, L. (2007). Starting kindergarten: Transition issues for children with special needs. Canadian Journal of Education, 30(3), 628–648.

    Article  Google Scholar 

  • Johnston, L. G., & Sabin, K. (2010). Sampling hard-to-reach populations with respondent driven sampling. Methodological Innovations Online, 5(2), 38–48.

    Google Scholar 

  • Kim, J. S., Jennifer, S., Sicherer, S. H., & Scott, C. (2010). Should avoidance of foods be strict in prevention and treatment of food allergy? Current Opinion in Allergy & Clinical Immunology. doi:10.1097/ACI.0b013e328337bd3a.

    Google Scholar 

  • Kljakovic, M., Gatenby, P., Hawkins, C., Attewell, R. G., Ciszek, K., Kratochvil, G., Moreira, A., & Ponsonby, A. (2009). The parent-reported prevalence and management of peanut and nut allergy in school children in the Australian. Capital Territory. Journal of Paediatrics and Child Health, 45(3), 98–103.

    Article  Google Scholar 

  • Knibb, R. C., Barnes, C., & Stalker, C. (2015). Parental confidence in managing food allergy: Development and validation of the food allergy self-efficacy scale for parents (FASE-P). Clinical Experimental Allergy. doi:10.1111/cea.12599.

    Google Scholar 

  • McIntyre, L. E., Eckert, T. L., Fiese, B. H., DiGennaro, F. D., & Wildenger, K. (2007). Transition to kindergarten: Family experiences and involvement. Early Childhood Education Journal. doi:10.1007/s10643-007-0175-6.

    Google Scholar 

  • Muraro, A., Werfel, T., Hoffmann-Sommergruber, K., Roberts, G., Beyer, K., Bindslev-Jensen, C., Cardona, V., Dubois, A., duToit, G., Eigenmann, P., Fernandez Rivas, M., Halken, S., Hickstein, L., Høst, A., Knol, E., Lack, G., Marchisotto, M. J., Niggemann, B., Nwaru, B. I., Papadopoulos, N. G., Poulsen, L. K., Santos, A. F., Skypala, I., Schoepfer, A., Van Ree, R., Venter, C., Worm, M., Vlieg–Boerstra, B., Panesar, S., de Silva, D., Soares-Weiser, K., Sheikh, A., Ballmer-Weber, B. K., Nilsson, C., de Jong, N. W., & Akdis, C. A. (2014). EAACI Food Allergy and Anaphylaxis Guidelines: Diagnosis and management of food allergy. European Journal of Allergy and Clinical Immunology. doi:10.1111/all.12429.

    Google Scholar 

  • New South Wales Department of Education and Communities. (2012). Anaphylaxis Procedures for Schools, 2012. http://www.schools.nsw.edu.au/media/downloads/schoolsweb/studentsupport/studenthealth/conditions/anaphylaxis/guidelines/anaphylaxis-procedures.pdf. (Accessed 25 Oct 2014).

  • Nurmatov, U., Venderbosch, I., Devereux, G., Estelle, F., Simons, R., & Sheik, A. (2012). Allergen-specific oral immunotherapy for peanut allergy. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD009014.pub2.

    Google Scholar 

  • Osborne, N. J., Koplin, J. J., Martin, P. E., Gurrin, L. C., Lowe, A. J., Matheson, M. C., Ponsonby, A., Wake, M., Tang, M. L. K., Dhramage, S. C., & Allen, K. J. (2011). Prevalence of challenge-proven IgE-mediated food allergy using population-based sampling and predetermined challenge criteria in infants. Journal of Allergy and Clinical Immunology, 127(3), 668–676.

    Article  Google Scholar 

  • Prescott, S. L., Pawankar, R., Allen, K. J., Campbell, D. E., Sinn, J. K. H., Fiocchi, A., Ebisawa, O., Sampson, H. A., Beyer, K., & Lee, B. (2013). A global survey of changing patterns of food allergy burden in children. World Allergy Organization Journal. doi:10.1186/1939-4551-6-21.

    Google Scholar 

  • Quach, J., & Barnett, T. (2014). Impact of chronic illness timing and persistence at school entry on child and parent outcomes: Australian Longitudinal Study. Academic Paediatrics, 15(1), 89–95.

    Article  Google Scholar 

  • Rimm-Kaufman, S. E., & Pianta, R. C. (1999). Patterns of family-school contact in preschool and kindergarten. School Psychology Review, 28(3), 426–438.

    Google Scholar 

  • Rimm-Kaufman, S. E., & Pianta, R. C. (2000). An ecological perspective on transition to kindergarten: A theoretical framework to guide empirical research. Journal of Applied Developmental Psychology, 21(5), 491–511.

    Article  Google Scholar 

  • Rous, B., Myers, C. T., & Stricklin, S. B. (2007). Strategies for supporting transitions of young children with special needs and their families. Journal of Early Intervention, doi:10.1177/105381510703000102.

    Google Scholar 

  • Saldaña, M. (2013). The coding manual for qualitative researchers (2nd edn.). Thousand Oaks: Sage.

    Google Scholar 

  • Sampson, H. A. (1999). Food allergy. Part 1: Immunopathogenesis and clinical disorders. Journal of Allergy Clinical Immunology, 103(5 Part 1), 717–728.

    Article  Google Scholar 

  • Sanagavarapu, P. (2012). ‘Don’t forget to pack my EpiPen please: What issues does food allergy present for children’s starting school?’ Australasian Journal of Early Childhood, 37(2), 56–61.

    Google Scholar 

  • Sanagavarapu, P., Said, M., Katelaris, C., & Wainstein, B. (2016). Transition to school anxiety for mothers of children with food allergy. Implications for educators. Australasian Journal of Early Childhood. 41(4), 115–122.

    Google Scholar 

  • Teufel, M., Biedermann, T., Rapps, N., Hausteiner, C., Henningsen, P., Enck, P., & Zipfel, S. (2007). Psychological burden of food allergy. World Journal of Gastroenterology, 13(25), 3456–3465.

    Article  Google Scholar 

  • Urquhart, B., & Pooley, J. A. (2007). The transition experiences of Australian students to university: The importance of social support. The Australian Community Psychologist, 19(2), 78–91.

    Google Scholar 

  • Whitsel, C. M., & Lapham, K. (2013). Increasing program effectiveness through parent empowerment: The getting ready for school project in Tajikistan. International Journal of Early Years Education. doi:10.1080/09669760.2013.809658.

    Google Scholar 

Download references

Acknowledgements

My sincere thanks to all mothers and children for sharing their valuable perspectives on starting school with food allergy. My research partners: Ms. Maria Said, President, Allergy and Anaphylaxis Australia, Professor Constance H Katelaris—Immunologist, Campbelltown Hospital, NSW and Western Sydney University, Australia. Dr Brynn Wainstein—Paediatric Immunologist, Sydney Children’s Hospital, Randwick NSW and University of New South Wales; Australia. Ms. Dana Slape and Mr. Jawed Gabriel, Western Sydney University, Australia for their assistance in recruitment and data analysis.

Disclaimer

The information presented in this paper on food allergy is general and drawn from the published literature. The affected parents or caregivers are strongly advised to seek advice on identifying and managing their child’s food allergy from their medical practitioners.

Funding

Allergy and Anaphylaxis Australia- for funding this important study. Western Sydney University for supporting publication of this research via Women’s Research Fellowship.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Prathyusha Sanagavarapu.

Ethics declarations

Conflict of interest

None to declare.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Sanagavarapu, P. Experiences and Support Needs of Mothers of Children with Food Allergy During the Transition to School. Early Childhood Educ J 46, 523–534 (2018). https://doi.org/10.1007/s10643-017-0880-8

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10643-017-0880-8

Keywords

Navigation