Skip to main content

Advertisement

Log in

Process Evaluation of a Pilot Intervention for Psychosocial Rehabilitation for Service Users with Schizophrenia in North West Province, South Africa

  • Original Paper
  • Published:
Community Mental Health Journal Aims and scope Submit manuscript

Abstract

This study investigated a non-specialist delivered programme for psychosocial rehabilitation for service users with schizophrenia in a low-resource South African setting. Forty-four service users with schizophrenia living in the community, receiving ongoing medication through primary care, participated in a structured support group. Quantitative measures (WHODAS 12 item, Brief Psychiatric Rating Scale and Internalized Stigma of Mental Illness Inventory) were assessed at baseline and 12 months. Sixteen service users were interviewed on their experiences. WHODAS data showed a small reduction. ISMI assessment showed a statistically significant reduction. Qualitative data revealed: improved self-esteem and increased illness knowledge, reduced risk taking, reduced social isolation and improved pro-social behavior, improved financial management and engagement in income generation activities as well as improved acceptance by the community. This study provides preliminary evidence on the benefits of this programme that warrant further study incorporating experimental methods.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • Alem, A., Jacobsson, L., & Hanlon, C. (2008). Community-based mental health care in Africa: Mental health workers’ views. World Psychiatry, 7(1), 54–57.

    Article  PubMed  PubMed Central  Google Scholar 

  • Asher, L., De Silva, M., Hanlon, C., Weiss, H. A., Birhane, R., Ejigu, D. A., et al. (2016). Community-based rehabilitation intervention for people with Schizophrenia in Ethiopia (RISE): Study protocol for a cluster randomised controlled trial. Trials, 17(1), 299.

    Article  PubMed  PubMed Central  Google Scholar 

  • Asher, L., Fekadu, A., Hanlon, C., Mideksa, G., Eaton, J., Patel, V., et al. (2015). Development of a community-based rehabilitation intervention for people with Schizophrenia in Ethiopia. PLoS ONE, 10(11), e0143572.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Betancourt, T. S., Bass, J., Borisova, I., Neugebauer, R., Speelman, L., Onyango, G., et al. (2009). Assessing local instrument reliability and validity: A field-based example from northern Uganda. Social Psychiatry and Psychiatric Epidemiology, 44(8), 685–692.

    Article  PubMed  PubMed Central  Google Scholar 

  • Bolton, P., & Tang, A. M. (2002). An alternative approach to cross-cultural function assessment. Social Psychiatry and Psychiatric Epidemiology, 37(11), 537–543.

    Article  PubMed  Google Scholar 

  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.

    Article  Google Scholar 

  • Brooke-Sumner, C., Lund, C., & Petersen, I. (2014). Perceptions of psychosocial disability amongst psychiatric service users and caregivers in South Africa. African Journal of Disability, 3, 146.

    Article  PubMed  PubMed Central  Google Scholar 

  • Brooke-Sumner, C., Lund, C., & Petersen, I. (2016). Bridging the gap: Investigating challenges and way forward for intersectoral provision of psychosocial rehabilitation in South Africa. International Journal of Mental Health Systems, 10, 21.

    Article  PubMed  PubMed Central  Google Scholar 

  • Brooke-Sumner, C., Lund, C., Selohilwe, O., & Petersen, I. (2017). Community-based psychosocial rehabilitation for schizophrenia service users in the north west province of South Africa: A formative study. Social Work in Mental Health, 15(3), 249–283.

    Article  Google Scholar 

  • Burns, J. (2009). Dispelling a myth: Developing world poverty, inequality, violence and social fragmentation are not good for outcome in schizophrenia. Afr J Psychiatry, 12(3), 200–205.

    Article  CAS  Google Scholar 

  • Chatterjee, S., Leese, M., Koschorke, M., McCrone, P., Naik, S., John, S., et al. (2011). Collaborative community based care for people and their families living with schizophrenia in India: protocol for a randomised controlled trial. Trials, 12, 12–12.

    Article  PubMed  PubMed Central  Google Scholar 

  • Chatterjee, S., Naik, S., John, S., Dabholkar, H., Balaji, M., Koschorke, M., et al. (2014). Effectiveness of a community-based intervention for people with schizophrenia and their caregivers in India (COPSI): A randomised controlled trial. Lancet, 383(9926), 1385–1394.

    Article  PubMed  PubMed Central  Google Scholar 

  • Chatterjee, S., Pillai, A., Jain, S., Cohen, A., & Patel, V. (2009). Outcomes of people with psychotic disorders in a community-based rehabilitation programme in rural India. [Research Support, Non-U.S. Gov’t]. The British Journal of Psychiatry, 195(5), 433–439.

    Article  PubMed  PubMed Central  Google Scholar 

  • Craig, T. (2006). What is psychiatric rehabilitation? In S. D. G. Roberts & F. Holloway, & & T. Tattan (Eds.), Enabling recovery: The principles and practice of rehabilitation psychiatry (pp. 3–17). London: Gaskell.

    Google Scholar 

  • Dieterich, M., Claire, I., Park, B., B., & Marshall, M. (2010). Intensive case management for severe mental illness. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD007906.pub2.

    Article  PubMed  Google Scholar 

  • DOH. (2013). National Mental Health Policy Framework and Strategic Plan 2013–2020. Pretoria: Department of Health Republic of South Africa.

    Google Scholar 

  • Egbe, C. O., Brooke-Sumner, C., Kathree, T., Selohilwe, O., Thornicroft, G., & Petersen, I. (2014). Psychiatric stigma and discrimination in South Africa: Perspectives from key stakeholders.. BMC Psychiatry, 14(1), 191.

    Article  PubMed  PubMed Central  Google Scholar 

  • Habtamu, K., Alem, A., Medhin, G., Fekadu, A., Dewey, M., Prince, M., et al. (2017). Validation of the World Health Organization disability assessment schedule in people with severe mental disorders in rural Ethiopia. Health and Quality Life Outcomes, 15(1), 64.

    Article  Google Scholar 

  • Hanlon, C., Wondimagegn, D., & Alem, A. (2010). Lessons learned in developing community mental health care in Africa. World Psychiatry, 9(3), 185–189.

    Article  PubMed  PubMed Central  Google Scholar 

  • Iemmi, V., Gibson, L., Blanchet, K., Suresh Kumar, K., Rath, S., Hartley, S., et al. (2016). Community-based rehabilitation for people with physical and mental disabilities in low- and middle-income countries: A systematic review and meta-analysis. Journal of Development Effectiveness, 8(3), 368–387.

    Article  Google Scholar 

  • King, R., Lloyd, C., & Meehan, T. (2007). Handbook of Psychosocial Rehabilitation. Oxford: Blackwell Publishing Inc.

    Google Scholar 

  • Lacey, A. L., & Donna. (2001). Trent focus for research and development in primary health care: Qualitative Data analysis. Nottingham: Trent Focus Group.

    Google Scholar 

  • Leucht, S., Kane, J. M., Kissling, W., Hamann, J., Etschel, E., & Engel, R. (2005). Clinical implications of Brief Psychiatric Rating Scale scores. The British Journal of Psychiatry, 187, 366–371.

    Article  PubMed  Google Scholar 

  • Lora, A., Hanna, F., & Chisholm, D. (2017). Mental health service availability and delivery at the global level: An analysis by countries’ income level from WHO’s Mental Health Atlas 2014. Epidemiology and Psychiatric Sciences, 13, 1–12.

    Article  Google Scholar 

  • Lund, C., Tomlinson, M., Da Silva, M., Fekadu, A., Shidhaye, R., Jordans, M., et al. (2012). PRIME: A programme to reduce the treatment gap for mental disorders in five low and middle-income countries. PLoS Medicine, 9(12), e1001359.

    Article  PubMed  PubMed Central  Google Scholar 

  • Marshall, M., & Lockwood, A. (2000). Assertive community treatment for people with severe mental disorders. Cochrane Database of Systematic Review, 2, Cd001089.

    Google Scholar 

  • Mouaffak, F., Morvan, Y., Bannour, S., Chayet, M., Bourdel, M. C., Thepaut, G., et al. (2010). Validation of the French version of the expanded Brief Psychiatric Rating Scale with anchor BPRS-E(A). Encephale, 36(4), 294–301.

    Article  CAS  PubMed  Google Scholar 

  • Park, S. C., Jang, E. Y., Kim, J. M., Jun, T. Y., Lee, M. S., Kim, J. B., et al. (2017). Clinical validation of the psychotic depression assessment scale, Hamilton depression rating scale-6, and brief psychiatric rating scale-5: Results from the Clinical Research Center for Depression Study. Psychiatry Investigation, 14(5), 568–576.

    Article  PubMed  PubMed Central  Google Scholar 

  • Patel, V. (2016). Universal health coverage for Schizophrenia: A global mental health priority. Schizophrenia Bulletin, 42(4), 885–890.

    Article  PubMed  Google Scholar 

  • Patel, V., Chowdhary, N., Rahman, A., & Verdeli, H. (2011). Improving access to psychological treatments: Lessons from developing countries. Behaviour Research and Therapy, 49(9), 523–528.

    Article  PubMed  PubMed Central  Google Scholar 

  • Peltzer, K., Ramlagan, S., Jones, D., Weiss, S. M., Fomundam, H., & Chanetsa, L. (2012). Efficacy of a lay health worker led group antiretroviral medication adherence training among non-adherent HIV-positive patients in KwaZulu-Natal, South Africa: Results from a randomized trial. Sahara Journal, 9(4), 218–226.

    Article  PubMed  Google Scholar 

  • Petersen, I., Hanass Hancock, J., Bhana, A., & Govender, K. (2014). A group-based counselling intervention for depression comorbid with HIV/AIDS using a task shifting approach in South Africa: A randomized controlled pilot study. Journal of Affective Disorders, 158, 78–84.

    Article  CAS  PubMed  Google Scholar 

  • Petersen, I., & Lund, C. (2011). Mental health service delivery in South Africa from 2000 to 2010: One step forward, one step back. SAMJ, 101, 751–757.

    PubMed  Google Scholar 

  • Ritchie, J. a. S., L (1994). Qualitative data analysis for applied policy research. In B. a. Burgess (Ed.), Analysing qualitative data (pp. 173–194). London: Routledge.

    Google Scholar 

  • Ritsher, J. B., Otilingam, P. G., & Grajales, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Res, 121(1), 31–49.

    Article  PubMed  Google Scholar 

  • Rosenthal, R. (1991). Meta-analytic procedures for social research. Thousand Oaks: Sage Publications Inc.

    Book  Google Scholar 

  • Rotheram-Borus, M. J., Richter, L. M., van Heerden, A., van Rooyen, H., Tomlinson, M., Harwood, J. M., et al. (2014). A cluster randomized controlled trial evaluating the efficacy of peer mentors to support South African women living with HIV and their infants. PLoS ONE, 9(1), e84867.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Sanchez, R., Ibanez, M. A., & Pinzon, A. (2005). Factor analysis and validation of a Spanish version of the Brief Psychiatric Rating Scale in Colombia. Biomedica, 25(1), 120–128.

    Article  PubMed  Google Scholar 

  • Schneider, M., Baron, E., Davies, T., Bass, J., & Lund, C. (2015). Making assessment locally relevant: measuring functioning for maternal depression in Khayelitsha, Cape Town. Social Psychiatry and Psychiatric Epidemiology, 50(5), 797–806.

    Article  PubMed  PubMed Central  Google Scholar 

  • Shibre, T., Kebede, D., Alem, A., Negash, A., Kibreab, S., Fekadu, A., et al. (2002). An evaluation of two screening methods to identify cases with schizophrenia and affective disorders in a community survey in rural Ethiopia. International Journal of Social Psychiatry, 48(3), 200–208.

    Article  CAS  PubMed  Google Scholar 

  • Sjonnesen, K., Bulloch, A. G. M., Williams, J., Lavorato, D., & Patten, B., S (2016). Characterization of disability in canadians with mental disorders using an abbreviated version of a DSM-5 emerging measure: The 12-Item WHO disability assessment schedule (WHODAS) 2.0. Canadian Journal of Psychiatry, 61(4), 227–235.

    Article  PubMed  Google Scholar 

  • Tanabe, Y., Hayashi, K., & Ideno, Y. (2016). The Internalized Stigma of Mental Illness (ISMI) scale: Validation of the Japanese version. BMC Psychiatry, 16, 116.

    Article  PubMed  PubMed Central  Google Scholar 

  • Üstün, T. B. (2010). Measuring health and disability: Manual for WHO disability assessment schedule WHODAS 2.0. Geneva: World Health Organization.

    Google Scholar 

  • van Ginneken, N., Tharyan, P., Lewin, S., Rao, G. N., Meera, S., Pian, J., et al. (2013). Non-specialist health worker interventions for the care of mental, neurological and substance-abuse disorders in low- and middle-income countries. Cochrane Database of Systematic Review, 19(11), CD009149

    Google Scholar 

  • Whiteford, H. A., Degenhardt, L., Rehm, J., Baxter, A. J., Ferrari, A. J., Erskine, H. E., et al. (2013). Global burden of disease attributable to mental and substance use disorders: Findings from the Global Burden of Disease Study 2010. The Lancet, 382(9904), 1575–1586.

    Article  Google Scholar 

  • Yank, G. R., Bentley, K. J., & Hargrove, D. S. (1993). The vulnerability-stress model of schizophrenia: Advances in psychosocial treatment. American Journal of Orthopsychiatry, 63(1), 55–69.

    Article  CAS  PubMed  Google Scholar 

Download references

Acknowledgements

This study has been funded by UK aid from the UK Government, as part of the PRogramme for Improving Mental health carE (PRIME), however the views expressed do not necessarily reflect the UK Government’s official policies. CBS is supported by the South African Medical Research Council Intramural Career Development Fund. The authors gratefully acknowledge the support of the North West Province Mental Health Society and Palesa Mothibedi.

Author information

Authors and Affiliations

Authors

Contributions

IP conceptualized the study and advised on all aspects of fieldwork, analysis and write up. OS managed field work and data collection. MSM conducted fieldwork and initial qualitative analysis. CBS reviewed and revised qualitative analysis and compiled the initial draft. All authors contributed to and agreed on the final manuscript.

Corresponding author

Correspondence to Carrie Brooke-Sumner.

Ethics declarations

Conflict of interest

All authors declare that they have no conflict of interest.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Brooke-Sumner, C., Selohilwe, O., Mazibuko, M.S. et al. Process Evaluation of a Pilot Intervention for Psychosocial Rehabilitation for Service Users with Schizophrenia in North West Province, South Africa. Community Ment Health J 54, 1089–1096 (2018). https://doi.org/10.1007/s10597-018-0318-9

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10597-018-0318-9

Keywords

Navigation